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Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
3 months ago
Total hysterectomy with oopherectomy recovery advice needed please!
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hi all, it’s been about 3 years since I wrote into this group. Back then I was considering having a hysterectomy to help relive the symptoms of severe endo. I still couldn’t decide so I decided to wait and see how I felt in a few years. Well, life had other plans. I got stage 3 ovarian cancer at 40
Hailun
in
Endometriosis UK
3 months ago
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Mounjaro
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
I’ve been off the Verity boards for over 10 years but I find myself needing new advice as I continue my PCOS life. A lot has happened. I had cancer and a total hysterectomy so I’m experiencing the menopause and PCOS stage. I’ve managed to maintain my weight through constant careful eating but any gains
Lennysanders-gould
in
PCOS UK (Verity)
4 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
4 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
4 months ago
Recovering well
Some of you may recall I was going in for a total hysterectomy. I am 10 days post op, doing well and the lupus seems to be behaving itself. Bloods were all good but as many of you will agree, they are not always a good indicator. Talking of blood, having a complete nightmare trying to get my INR back
Some of you may recall I was going in for a total hysterectomy. I am 10 days post op, doing well and the lupus seems to be behaving itself. Bloods were all good but as many of you will agree, they are not always a good indicator. Talking of blood, having a complete nightmare trying to get my INR back
Sher78
in
LUPUS UK
4 months ago
Hormonal therapy ?
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Rarlod
in
SHARE Breast Cancer Support
4 months ago
Fear about upcoming surgery
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
Good Evening all hope you are well I am having a total hysterectomy on Tuesday 12th March Suffer from endometriosis and I had fluid in my cervix that the consultant hadn't seen before. Did a hysteroscopy DNC and took a bit of my cervix away More fluid further up inside me the could not get to Sent
harryhonda25
in
Menopause and Perimenopause Support
4 months ago
Spotting - ovarian cancer
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
I have stage IIIb ovarian clear cell, and I had my first chemo infusion 10 days ago. I've just started to feel a little better after all the side effects. A worrisome new symptom has come up today (Sunday), which was a little spotting when I went pee. I had a total hysterectomy in September, and I can't
Susi3
in
SHARE Ovarian Cancer Support
4 months ago
frustrated and frightened
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
Poppyg16
in
Endometriosis UK
5 months ago
Uterosacral Ligament removal ?
Hi, hope everyone is doing as well as they can.My question is do they remove the Uterosacral ligament In total hysterectomy,I had my surgery back in June everything including cervix removed .Whilst in hospital recovering I mentioned a distinct pain in left sided area ,I mentioned it to the consultant
Hi, hope everyone is doing as well as they can.My question is do they remove the Uterosacral ligament In total hysterectomy,I had my surgery back in June everything including cervix removed .Whilst in hospital recovering I mentioned a distinct pain in left sided area ,I mentioned it to the consultant
K2023
in
Endometriosis UK
6 months ago
flare?
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
kentish61
in
PMRGCAuk
11 months ago
Chronic pain medication review - help!
Hi all. I've been taking opioid medication for over 10 years for endometriosis/adenomyosis. I'm now finally on the waiting list for a total hysterectomy which should get rid of the bulk of my pain - and therefore i will stop the pain medication.However, I've now to have a meeting with a chronic pain
Hi all. I've been taking opioid medication for over 10 years for endometriosis/adenomyosis. I'm now finally on the waiting list for a total hysterectomy which should get rid of the bulk of my pain - and therefore i will stop the pain medication.However, I've now to have a meeting with a chronic pain
KM1986
in
Pain Concern
6 months ago
low immunoglobulins and knee replacement
I’m contemplating total knee replacement. My concern is that my immunoglobulins have sunk below normal range - but not low enough to start infusions. Has anyone else had to consider this? What recommendations were made to you? Did you go ahead with surgery? Did you have complications? So much to think
I’m contemplating total knee replacement. My concern is that my immunoglobulins have sunk below normal range - but not low enough to start infusions. Has anyone else had to consider this? What recommendations were made to you? Did you go ahead with surgery? Did you have complications? So much to think
shazzy57
in
CLL America Support
8 months ago
post menopausal health problems - pain in pelvic area after total hysterectomy
Hi Since being properly post menopausal and having a total hysterectomy for early stage cancer which was cured by surgery, I have developed several new health issues. One which causes me a lot of discomfort is pain in my pelvic area - it feels like it’s just inside my right buttock near the perineum
Hi Since being properly post menopausal and having a total hysterectomy for early stage cancer which was cured by surgery, I have developed several new health issues. One which causes me a lot of discomfort is pain in my pelvic area - it feels like it’s just inside my right buttock near the perineum
Lara1244
in
Menopause and Perimenopause Support
6 months ago
Pain relief. How do advocate for myself?
Hello lovely people. Wishing you a peaceful pain free day.I need some support on how to advocate for myself as I'm pretty useless. I'm currently on the waiting list for a total hysterectomy for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees
Hello lovely people. Wishing you a peaceful pain free day.I need some support on how to advocate for myself as I'm pretty useless. I'm currently on the waiting list for a total hysterectomy for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees
KM1986
in
Endometriosis UK
6 months ago
Bowel resection with total hysterectomy
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
Drakesie
in
Endometriosis UK
6 months ago
Knee advice needed
I’m now five months post total knee replacement and am still having problems which I have no idea are normal or not. My knee is still numb on the outer aspect and sitting even for short periods means the knee is incredibly stiff and it’s difficult to stand momentarily. Also when walking it can judder
I’m now five months post total knee replacement and am still having problems which I have no idea are normal or not. My knee is still numb on the outer aspect and sitting even for short periods means the knee is incredibly stiff and it’s difficult to stand momentarily. Also when walking it can judder
BonnieMagic
in
Arthritis Action
11 months ago
ET and Successful Hip Replacement
Hello friends, I posted some months ago about needing hip replacement for arthritis, and I appreciate the many replies I received. I am 5 weeks out from my surgery and doing great. I was able to have the surgery where I see my MPN specialist. I was nervous, given this was my first surgery since diagnosis
Hello friends, I posted some months ago about needing hip replacement for arthritis, and I appreciate the many replies I received. I am 5 weeks out from my surgery and doing great. I was able to have the surgery where I see my MPN specialist. I was nervous, given this was my first surgery since diagnosis
Indigo42916
in
MPN Voice
1 day ago
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