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Trying to make the most of being chronically ill and unemployed 💕
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
x_emily_x
in
Endometriosis UK
6 months ago
update on hubby
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
LAJ12345
in
Cure Parkinson's
11 months ago
2 year old Toddler with RLS
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
OrangeDino
in
Restless Legs Syndrome
11 months ago
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Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
6 months ago
Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
9 months ago
Do I risk taking T3 medication?
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
Scolbyn
in
Thyroid UK
10 months ago
COQ10
👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by 'holistic' nutritionist. Was very impressed with her research into AI inflammatory diseases - one suggestion was to try Gluten free diet for 4 weeks to see if any improvements noticed and the above supplement. Going down to
👋 to allHas anyone tried COQ10 supplement? Have been recommended to try it by 'holistic' nutritionist. Was very impressed with her research into AI inflammatory diseases - one suggestion was to try Gluten free diet for 4 weeks to see if any improvements noticed and the above supplement. Going down to
Poshdog
in
PMRGCAuk
7 months ago
Early 50s male, healthy till hypothyroidism my first few months experience of treatment
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
I don't usually share info on the internet, but as a lot of material out there is aimed at women or Americans (I mean no offence to either!) I thought I'd stay my experience so far. Diagnosis, what does it all mean, and treatment/first medications. DIAGNOSIS Late 2022 I saw a nurse as I was taking longer
BobMcBob
in
Thyroid UK
11 months ago
Satisfactory Serum free T4?
Hi everyone, First time posting anything but my latest results say satisfactory T4 result, as a comment from the health professional. The result is out of the range so I am wondering if I am being fobbed off. Results as follows: TSH - 1.64 mIU/L (0.38-5.33) Serum free T3 - 4.8 pmol/L (3.8-6.0) Serum
Hi everyone, First time posting anything but my latest results say satisfactory T4 result, as a comment from the health professional. The result is out of the range so I am wondering if I am being fobbed off. Results as follows: TSH - 1.64 mIU/L (0.38-5.33) Serum free T3 - 4.8 pmol/L (3.8-6.0) Serum
BeePurple
in
Thyroid UK
7 months ago
Am I going insane?
Hmm so I’m just wondering, do those of you with PA that self inject regularly still suffer extreme fatigue and body aches and pains or other symptoms? I have celiac disease and that’s in remission thanks to a gluten free diet and I self inject fortnightly. I follow a good gut health diet but was told
Hmm so I’m just wondering, do those of you with PA that self inject regularly still suffer extreme fatigue and body aches and pains or other symptoms? I have celiac disease and that’s in remission thanks to a gluten free diet and I self inject fortnightly. I follow a good gut health diet but was told
Mandymoos8
in
Pernicious Anaemia Society
7 months ago
Supplements to Stop Before Holmium Laser Enucleation of the Prostate (HoLEP) Surgery
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Despe
in
Cure Parkinson's
11 months ago
Advice/assistance regarding starting T3.
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Most recent results, Monitor my health 24/7/2023 TSH 0.3 (0.27-4.2) FT4 20 (12-22) FT3 4.2 (3.1-6.8) Vit D 117 - their ranges are just lines on a graph but it’s in the excess category. VitB12/folate/ferritin- I have a replacement kit (which I forgot to do this morning) due to blood clotting so they
Beads
in
Thyroid UK
9 months ago
GP referred me to Endocrinology
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
Kaatse
in
Thyroid UK
6 months ago
endo diet
Hey ladies dise anyone follow a gluten free diet to help with endometriosis and if so dose it help xx 😘
Hey ladies dise anyone follow a gluten free diet to help with endometriosis and if so dose it help xx 😘
Shay30
in
Endometriosis UK
7 months ago
my results today
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
FoxyTed
in
Thyroid UK
6 months ago
where to go from here
I started t3 a month ago first 2 weeks 2.5 mornings only which I definitely believe gave me more stamina and energy and then after 2 weeks added in a second afternoon 2.5, - im not sure if this made much difference, perhaps as first was going from nothing to something and this was just a small increase
I started t3 a month ago first 2 weeks 2.5 mornings only which I definitely believe gave me more stamina and energy and then after 2 weeks added in a second afternoon 2.5, - im not sure if this made much difference, perhaps as first was going from nothing to something and this was just a small increase
samking5
in
Thyroid UK
8 months ago
Ingrown Toenail due to Tagrisso - preventative care?
Has anyone used
tea
tree
oil
? With gratitude, 🌺🙏 https://routerlogin.ltd/ https://pikashow.ltd/
Has anyone used
tea
tree
oil
? With gratitude, 🌺🙏 https://routerlogin.ltd/ https://pikashow.ltd/
jiondene537
in
Small Cell Lung Cancer Support
2 years ago
Help please
Hi all. I am after some advice really. My sleep is just awful at the moment. For weeks now I get less than 2 hours sleep a night. I am currently taking Sertraline for some issues I have. I have been on this for a couple of years now. I go to bed because I am nodding off on the sofa but as soon as the
Hi all. I am after some advice really. My sleep is just awful at the moment. For weeks now I get less than 2 hours sleep a night. I am currently taking Sertraline for some issues I have. I have been on this for a couple of years now. I go to bed because I am nodding off on the sofa but as soon as the
Stormtrooper4
in
Sleep Matters
1 year ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
8 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
MPN Voice
8 months ago
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