Unusual additional symptoms

[Bertiemum]

I have had Fibromyalgia for a number of years, and compared to some sufferers manage reasonably well. The worst of the problems are pins and needles in my legs and feet, and extreme fatigue from time to time. I take Amitriptyline at night, and also evening primrose oil and Q10, which do help.

I also suffer with IBS, dry eye and painful muscles particularly in my legs and shoulders/neck. However, I have a persistent dry tickle in my throat, which leads to a violent coughing bout several times a day, for which my GP can find no medical reason. This, in turn, results in runny nose and eyes and sneezing similar to hay fever. I have had numerous checks for allergies, but all are negative. Additionally, I have one single place on my arm which starts to itch suddenly for no reason. This is no ordinary itch, but a deep burning itchy feeling so severe that I want to claw at my skin. The only relief I can get is a cold water compress and itch relief cream - not possible if out!

I have read somewhere that these can be linked to Fibromyalgia as it is possible that they are damaged nerve related. It is generally felt that the main symptoms of Fibromyalgia are pain, fatigue and pins & needles, but on digging further I have discovered that there are numerous other issues all related to the condition.

I wonder if anyone out there experiences the same problems?

All the best to my fellow sufferers- if only the medical profession could come up with some answers to what is a widespread and debilitating condition! ❤️

[Art24]

Afternoon to you, I actually suffer with similar symptoms, chronic sinusitis is my cause my gp said, its worse with hay-fever sufferers. you can get postnasal drip which means it agitates your throat, Dr prescribed me with a nasal spray, it works well, unless I forget to take it haha! Also certain medications can cause those symptoms as well. Might be worth mentioning this to a pharmacist they might be able to help. Also as for itchy burning skin that is another symptoms of fm, I get welts and they burn so badly, cold compress and antihistamine helps me, also being out in the sun can aggravate it even with 50 factor on, plus certain meds make you more sensitive to the sun. Good luck and I hope the rest of your day Is kind to you. 😊

[Bertiemum in reply to Art24]

Thank you! That is very helpful. ❤️

[Art24 in reply to Bertiemum]

You're welcome 💜

[Dingledell]

Hi I seem to have all those symptoms but I also get a hot pain of pins and needles in my chest and shoulders when I am in bed . It wakes me up very worried. I thought it was my heart but thinking is May be myFibro. But then everything can be blamed with that. Does anyone else get it ?

[Bertiemum in reply to Dingledell]

I only tend to get pins and needles in my legs and feet, which are worse in the evening, presumably because I am tired, which gives problems getting to sleep, and also first thing in the morning until I get going.

My shoulders are very painful and achy, which my GP described as ‘coat hanger syndrome’ i.e. the area where a coat hanger would be in your clothes. I think this is a common symptom. Worth checking with your GP to see if the pins and needles are nerve issues. Do you take Amitriptyline? I find it does help, although I sometimes have to take quite a large dose. Fortunately I can tolerate it, which not everyone can. Good luck and all the best.

[Dingledell]

Thank you for reply, I can't tolerate Amitriptyline. Yes pain in feet is horrible mine get freezing cold, then burning pain with pins and needles. Same in my chest. I have Reynauds with it as well so double pain . Oh well must get out of bed now 😀

[Hidden in reply to Dingledell]

Hello. I’m interested in why you couldn’t tolerate Amytriptyline. How did it affect you?

[Dingledell in reply to Hidden]

Hi Amatrypline gave me extreme dry mouth and lips, I didn't seem to have any saliva to talk . Dry eyes and skin too. Saliva returned after I stopped taking Amatrypline.

[E8L8dh]

I also have symptoms which seem to be much the same as yours. Like you I was also tested for allergies and nothing showed up. Just recently I paid to be tested for intolerances. Which showed that I had a few intolerances including Gluten, Lactose, Wheat, Rye, Barley, Oats, Yeast, Eggs to name but a few. This has really helped although its early days and I am still experimenting with different alternatives but it has helped. Hope this helps.

[Bertiemum in reply to E8L8dh]

👍❤️

[Bertiemum in reply to E8L8dh]

👍❤️

[Fibrooh]

I get the throat thing and the severe itching too.

[Bertiemum in reply to Fibrooh]

Thank you.❤️👍