Unusual additional symptoms - Fibromyalgia Acti...

Fibromyalgia Action UK

59,982 members67,146 posts

Unusual additional symptoms

Bertiemum profile image
13 Replies

I have had Fibromyalgia for a number of years, and compared to some sufferers manage reasonably well. The worst of the problems are pins and needles in my legs and feet, and extreme fatigue from time to time. I take Amitriptyline at night, and also evening primrose oil and Q10, which do help.

I also suffer with IBS, dry eye and painful muscles particularly in my legs and shoulders/neck. However, I have a persistent dry tickle in my throat, which leads to a violent coughing bout several times a day, for which my GP can find no medical reason. This, in turn, results in runny nose and eyes and sneezing similar to hay fever. I have had numerous checks for allergies, but all are negative. Additionally, I have one single place on my arm which starts to itch suddenly for no reason. This is no ordinary itch, but a deep burning itchy feeling so severe that I want to claw at my skin. The only relief I can get is a cold water compress and itch relief cream - not possible if out!

I have read somewhere that these can be linked to Fibromyalgia as it is possible that they are damaged nerve related. It is generally felt that the main symptoms of Fibromyalgia are pain, fatigue and pins & needles, but on digging further I have discovered that there are numerous other issues all related to the condition.

I wonder if anyone out there experiences the same problems?

All the best to my fellow sufferers- if only the medical profession could come up with some answers to what is a widespread and debilitating condition! ❤️

Written by
Bertiemum profile image
Bertiemum
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Art24 profile image
Art24

Afternoon to you, I actually suffer with similar symptoms, chronic sinusitis is my cause my gp said, its worse with hay-fever sufferers. you can get postnasal drip which means it agitates your throat, Dr prescribed me with a nasal spray, it works well, unless I forget to take it haha! Also certain medications can cause those symptoms as well. Might be worth mentioning this to a pharmacist they might be able to help. Also as for itchy burning skin that is another symptoms of fm, I get welts and they burn so badly, cold compress and antihistamine helps me, also being out in the sun can aggravate it even with 50 factor on, plus certain meds make you more sensitive to the sun. Good luck and I hope the rest of your day Is kind to you. 😊

Bertiemum profile image
Bertiemum in reply toArt24

Thank you! That is very helpful. ❤️

Art24 profile image
Art24 in reply toBertiemum

You're welcome 💜

Dingledell profile image
Dingledell

Hi I seem to have all those symptoms but I also get a hot pain of pins and needles in my chest and shoulders when I am in bed . It wakes me up very worried. I thought it was my heart but thinking is May be myFibro. But then everything can be blamed with that. Does anyone else get it ?

Bertiemum profile image
Bertiemum in reply toDingledell

I only tend to get pins and needles in my legs and feet, which are worse in the evening, presumably because I am tired, which gives problems getting to sleep, and also first thing in the morning until I get going.

My shoulders are very painful and achy, which my GP described as ‘coat hanger syndrome’ i.e. the area where a coat hanger would be in your clothes. I think this is a common symptom. Worth checking with your GP to see if the pins and needles are nerve issues. Do you take Amitriptyline? I find it does help, although I sometimes have to take quite a large dose. Fortunately I can tolerate it, which not everyone can. Good luck and all the best.

Dingledell profile image
Dingledell

Thank you for reply, I can't tolerate Amitriptyline. Yes pain in feet is horrible mine get freezing cold, then burning pain with pins and needles. Same in my chest. I have Reynauds with it as well so double pain . Oh well must get out of bed now 😀

in reply toDingledell

Hello. I’m interested in why you couldn’t tolerate Amytriptyline. How did it affect you?

Dingledell profile image
Dingledell in reply to

Hi Amatrypline gave me extreme dry mouth and lips, I didn't seem to have any saliva to talk . Dry eyes and skin too. Saliva returned after I stopped taking Amatrypline.

E8L8dh profile image
E8L8dh

I also have symptoms which seem to be much the same as yours. Like you I was also tested for allergies and nothing showed up. Just recently I paid to be tested for intolerances. Which showed that I had a few intolerances including Gluten, Lactose, Wheat, Rye, Barley, Oats, Yeast, Eggs to name but a few. This has really helped although its early days and I am still experimenting with different alternatives but it has helped. Hope this helps.

Bertiemum profile image
Bertiemum in reply toE8L8dh

👍❤️

Bertiemum profile image
Bertiemum in reply toE8L8dh

👍❤️

Fibrooh profile image
Fibrooh

I get the throat thing and the severe itching too.

Bertiemum profile image
Bertiemum in reply toFibrooh

Thank you.❤️👍

Not what you're looking for?

You may also like...

Petition ~ Change DWP Medicals for Fibromyalgia Syndrome

http://www.gopetition.com/petitions/change-dwp-medicals-for-fibromyalgia-syndrome/sign.html...

similar symptoms?

Hi all, I have just been sitting here thinking about the bigger picture when it comes to having...
Queencara78 profile image

fibromyalgia and carpel tunnel

hi everyone. I was diagnosed with fibromyalgia a few weeks ago but because the pins and needles...
Kazzza1976 profile image

Symptoms worsening ?

The docs have recently mentioned fibromyalgia after numerous blood tests, I think my condition is...
Queen-sab profile image

Help Please - New victim of Fibromyalgia

I was diagnosed with Fibromyalgia 2 weeks ago. My symptoms are constant extreme pain in my upper...

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.