2 spots: I was undetected for a year... - Advanced Prostate...

Advanced Prostate Cancer

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2 spots

Howard53545 profile image
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I was undetected for a year after pelvic radiation then my PSA went up to .04 so we did a PSMA scan and discovered 2 spots, although one was on a rib. My PSA was .36 so the spots were radiated. I am having a slight pain in the area where the rib is located. My PSA has gone down to .26 so it’s moving in the right direction . My oncologist wants to hold off on ADT until PSA start rising. I know a cure is out now and it’s just a matter of time before it’s all over. Any advice or thoughts.

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Howard53545 profile image
Howard53545
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NanoMRI profile image
NanoMRI

I am up at 0300 my time, reading up on liver lesions. Mine was recently identified by Pylarify PSMA, uPSA 0.03X, no ADT. Concurrent GUARDANT liquid blood biopsy indicates a mutation. Scheduling additional investigations.

Advice, thoughts? Do not give this beast time and obscurity. Push for all possible investigative methods. Although we face many disparities with this disease one uncontested universal thought is early detection is key.

Been reading that prostate cancer metastasis to liver is greater near term threat than spread to bones and lungs. Awaiting MRI and biopsy to identify this lesion; I am striving to be positive. We both may have more time than our emotions want to give us. All the best!

Justfor_ profile image
Justfor_

I bash silly docs all the time for their magic numbers and "one size fits all" cookbook approaches. You oncologist is the exact opposite. Strives to understand what is happening inside YOU. Consider yourself a lucky guy to have her/him.

j-o-h-n profile image
j-o-h-n

Hey Professor,

Quote: I know a cure is out now and it’s just a matter of time before it’s all over.

There was never a cure...... and it's always over when it's over. So just keep living the lovely life you have, cause if you keep thinking of the end you'll miss the middle.

Good Luck, Good Health and Good Humor.

j-o-h-n

Tall_Allen profile image
Tall_Allen

Treating your PSA can be different from treating your cancer.

prostatecancer.news/2020/07...

Janhpr profile image
Janhpr

My husband read your post and following this up. He had Radiotherapy in 2019 got rectal proctitis frequency urgency daily bleeding, anemic and recently had a blood transfusion + IV iron.

Has widespread mets with pain. We think this is in his coccyx after finding progression after having 4 treatments of R223. Single fraction radiation has been suggested but cautioned because of proctitis, any advice

vintage42 profile image
vintage42

"... a year after pelvic radiation... discovered 2 spots... one was on a rib... oncologist wants to hold off on ADT until PSA start rising..."

I would think ADT is always important, from the beginning, and especially after mets.

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