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Takayasu arteritis
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Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
28 days ago
Migratory inflammatory arthritis, Hydroxychloroquine and Prednisolone
Hi all, at last I have plucked up courage to post on here..... Sorry it is a long one.Back in Aug '22 I suddenly started getting weak hands, swollen ankles and other achey symptoms. After several months and my first visit to Rheumatology I was told I had a migratory type of inflammatory arthritis. By
Hi all, at last I have plucked up courage to post on here..... Sorry it is a long one.Back in Aug '22 I suddenly started getting weak hands, swollen ankles and other achey symptoms. After several months and my first visit to Rheumatology I was told I had a migratory type of inflammatory arthritis. By
Pianissimoso
in
NRAS
6 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
1 month ago
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Psoriatic Arthritis?
I've just seen my rheumatologist (who I like very much) and her feeling is that I have Psoriatic Arthritis and not PMR. The reasoning is that - even though I have no psoriasis on my skin - I had bad swelling and pain in my knees and hips when I first went to see her about 2 months ago. However, the
I've just seen my rheumatologist (who I like very much) and her feeling is that I have Psoriatic Arthritis and not PMR. The reasoning is that - even though I have no psoriasis on my skin - I had bad swelling and pain in my knees and hips when I first went to see her about 2 months ago. However, the
CupOfEarlGrey
in
PMRGCAuk
4 months ago
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Sumojo
in
PMRGCAuk
6 months ago
Newbi
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
Jerry02
2023 December
in
Weight Loss Support
6 months ago
Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
6 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
2 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
3 months ago
rheumatoid arthritis
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
Bncc
in
PMRGCAuk
7 months ago
Osteoarthritis in feet ?
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
Frenchi88
in
Fibromyalgia Action UK
7 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
3 months ago
Pain and frustration 😟
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Pangolin43
in
PMRGCAuk
7 months ago
Advice on back pain & pred dosing...
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Ruthie64
in
PMRGCAuk
7 months ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
7 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
5 months ago
Even more confused?
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Cushties
in
LUPUS UK
7 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
7 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
7 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
3 months ago
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