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Major surgery and a Vasovagal event
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
Sumojo
in
PMRGCAuk
2 months ago
Surgery Today!
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
Kati66
in
NRAS
2 months ago
Update on T3 endo appointment 🤦♀️
Hi everyone ❤️ As I've posted a lot in the last few days about the awful endo appointment (27th Dec) and the gp saying I can go without my thyroid medication 😳(no thyroid). I have today received a phone call from said gp, who told me she as now received the report, I let her talk.. The recommendation
Hi everyone ❤️ As I've posted a lot in the last few days about the awful endo appointment (27th Dec) and the gp saying I can go without my thyroid medication 😳(no thyroid). I have today received a phone call from said gp, who told me she as now received the report, I let her talk.. The recommendation
birkie
in
Thyroid UK
5 months ago
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health anxiety
hello ☺️ I got diagnosed with stage 2 Endo at the end of November and had the coil fitted during surgery. today I have had a total panic as I couldn’t feel my strings or cervix so had an emergency gp appointment - turns out everything was fine, in place as it should be and it’s quite normal to not
hello ☺️ I got diagnosed with stage 2 Endo at the end of November and had the coil fitted during surgery. today I have had a total panic as I couldn’t feel my strings or cervix so had an emergency gp appointment - turns out everything was fine, in place as it should be and it’s quite normal to not
nikogirl18
in
Endometriosis UK
5 months ago
Loss of service
Since being diagnosed with lymphoedema early this year as a result of surgery/trauma I have been trying various stockings and tights which wouldn't make my sensitive skin itch. I phoned my lymph team up today to discuss where to go from here and I have been told that they can no longer support Lymph
Since being diagnosed with lymphoedema early this year as a result of surgery/trauma I have been trying various stockings and tights which wouldn't make my sensitive skin itch. I phoned my lymph team up today to discuss where to go from here and I have been told that they can no longer support Lymph
1vern0n
in
LSN
5 months ago
Pred 5 mg blocked by GP until consultant letter produced!
As flagged up earlier, I am having a flare, so ordered more Pred 5mg as per usual. I had to put a message in to explain the request. I said that the consultant had advised the increase. It was cleared on line but then blocked by the time I got to the Pharmacist. A new salaried GP texted me -
As flagged up earlier, I am having a flare, so ordered more Pred 5mg as per usual. I had to put a message in to explain the request. I said that the consultant had advised the increase. It was cleared on line but then blocked by the time I got to the Pharmacist. A new salaried GP texted me -
Motida
in
PMRGCAuk
5 months ago
Dienogest?
I've finally seen a specialist and he's told me I haven't got deep infiltrating endo as it's not showing up on scans but I could have mild so has put me onto the list for surgery (which is a relief) but he also wants me to start dienogest. I've never mentally reacted well to birth control but was willing
I've finally seen a specialist and he's told me I haven't got deep infiltrating endo as it's not showing up on scans but I could have mild so has put me onto the list for surgery (which is a relief) but he also wants me to start dienogest. I've never mentally reacted well to birth control but was willing
Lavenderpetal
in
Endometriosis UK
5 months ago
Mini maze update.
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
waveylines
in
Atrial Fibrillation Support
5 months ago
Small hernia
I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago. I got over the surgery very quickly and have been very lucky with no recurrence so far. Yesterday I saw my Oncologist who said she had found a small hernia but I should carry on as normal but avoid heavy lifting. I’m
I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago. I got over the surgery very quickly and have been very lucky with no recurrence so far. Yesterday I saw my Oncologist who said she had found a small hernia but I should carry on as normal but avoid heavy lifting. I’m
Frinks
in
My Ovacome
2 months ago
cataract surgery and prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
musicalJ
in
PMRGCAuk
2 months ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
2 months ago
Help with MRI results / treatment pathway (inc bowel endo)
Hi all - Please can you have a look at my MRI findings below. Any help on other people's experiences or what my surgery/treatment pathway might look like I would really appreciate it. I'm trying to decide whether I should wait it out for NHS surgery and what that might look like or bite the bullet
Hi all - Please can you have a look at my MRI findings below. Any help on other people's experiences or what my surgery/treatment pathway might look like I would really appreciate it. I'm trying to decide whether I should wait it out for NHS surgery and what that might look like or bite the bullet
Scoutybob
in
Endometriosis UK
5 months ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
5 months ago
Inflammation — this stuff works?
Added 1/26/24: I had sleep issues and had to quit 299v. I can’t rule out placebo, but sleep could also be B1 break (I was on day 4 of the break. I quit 299v on day 22 of the B1.) Could the effects of B1 being cleared from my body be responsible for any improvements and/or any problems? I believe 299v
Added 1/26/24: I had sleep issues and had to quit 299v. I can’t rule out placebo, but sleep could also be B1 break (I was on day 4 of the break. I quit 299v on day 22 of the B1.) Could the effects of B1 being cleared from my body be responsible for any improvements and/or any problems? I believe 299v
Gcf51
in
Cure Parkinson's
5 months ago
helpful YouTube yoga channel
I just wanted to share this . It’s a YouTuber called Yoga with Joy . She has a whole series of gentle yoga specifically for post hysterectomy/post abdominal surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she
I just wanted to share this . It’s a YouTuber called Yoga with Joy . She has a whole series of gentle yoga specifically for post hysterectomy/post abdominal surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she
Batwoman3
in
Endometriosis UK
5 months ago
Infertility and endo options
Currently starting second round of IVF (x2 embryos in round 1 with x1 negative pregnancy test and x1 embryo left frozen) with endo still on uterosacral ligaments, pelvis and bowel vaginal wall. Been trying to find consistent & clear guidance whether to have remaining endo removed before further embryo
Currently starting second round of IVF (x2 embryos in round 1 with x1 negative pregnancy test and x1 embryo left frozen) with endo still on uterosacral ligaments, pelvis and bowel vaginal wall. Been trying to find consistent & clear guidance whether to have remaining endo removed before further embryo
Pickle1988
in
Endometriosis UK
5 months ago
End of life information for heart disease sufferers
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
Jessica37
in
British Heart Foundation
5 months ago
lung volume reduction operation
I have been told cannot have the valves fitted into my lungs as severity of my emphysema however another heart/chest surgeon says he will carry out the volume reduction surgery. Has anybody else had this procedure, what was your outcome, how much improvement in breathing and anything else you can tell
I have been told cannot have the valves fitted into my lungs as severity of my emphysema however another heart/chest surgeon says he will carry out the volume reduction surgery. Has anybody else had this procedure, what was your outcome, how much improvement in breathing and anything else you can tell
Vinny5
in
Lung Conditions Community Forum
5 months ago
Latest blood test results
Happy New Year!A bit of a long post so please accept my apologies. Firstly thanks for the previous advice on taking vitamins to help with my Hashi diagnosis, which l got last September. I received my blood results from Medichecks this afternoon. Bloods were done 24 hrs after my last levo at 9.30 am
Happy New Year!A bit of a long post so please accept my apologies. Firstly thanks for the previous advice on taking vitamins to help with my Hashi diagnosis, which l got last September. I received my blood results from Medichecks this afternoon. Bloods were done 24 hrs after my last levo at 9.30 am
DitzyGrandma
in
Thyroid UK
5 months ago
Gyne Referral Made
Hi, after years of painful periods, painful sex, I decided to go to my GP to ask for a referral for a possible endometriosis diagnosis. My GP did a pelvic exam today and I have been sore ever since on the left side (feels like it's the left ovary). My fertility consultant during a stimulation cycle
Hi, after years of painful periods, painful sex, I decided to go to my GP to ask for a referral for a possible endometriosis diagnosis. My GP did a pelvic exam today and I have been sore ever since on the left side (feels like it's the left ovary). My fertility consultant during a stimulation cycle
TheBeachBabe
in
Endometriosis UK
5 months ago
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