Experiences with

Stoma surgery

She is also trained to deliver classes to those who have had stoma surgery. Sarah has a stoma herself, and offers specialist knowledge of abdominal surgery and rehab. Please note that if you have recently had surgery you must be at least 6 weeks post-op to take part.

Advise please had in last 2years carboplatin and paxo two lots 6 sessions 3 lots surgery stoma hysterectomy any advice on just carboplatin 2 hour sessions as its now spread to nodules hair just started to grow back slowly wondering if side effects will be as severe with 2 hours instead

Hello, my Dad had emergency surgery yesterday due to a complete blockage of the bowel caused by a lesion.

support group 11am – 12:30pm https://www.ovacome.org.uk/Events/stoma-group-event Thursday 17 April Restoring your Pelvic Floor, Exercise and Q&A 11am – 12 noon https://www.ovacome.org.uk/Events/restoring-the-pelvic-floor Here is a link to information about all our groups, workshops and events at

Does anyone take high doses of Loperamide regularly to firm up the stoma output? I'd love to hear of people's experience with this. Thank you.

Thank you everyone for your helpful replies this perhaps needs addressing in the training of security staff at airports so they may understand the venerability we sometimes feel if we happen to have a stoma. The experience you had in Spain sounded absolutely horrendous. Once again thanks.

You can imagine I had to explain that I had an ileostomy and consequently a stoma bag. I was informed that they wanted to see my stoma bag and swab it(this I did not object to but was a bit taken aback that they wanted me to show them my bag in the middle of the airport terminal!).

I have just been discharged from hospital last Monday (3 March 2025) after being admitted in via A&E (again ,after 11days from the previous visit) and had to have an emergency operation as I had sepsis, the sigmoid, large bowel and part of intestines taken out and a stoma put in.

Dear all, We are delighted that our next Members Series online session will be on Wednesday 26th March from 11:00am -12:00pm on the topic of 'Living with a stoma'.

Does anyone on here have a stoma? I haven't met anyone so far trying to manage a colostomy (or an ileostomy) together with PMR. I would really love to know if anyone else has experienced the same as I am going through. Thank you for such an amazing forum.

I have been offered irrigation or a stoma but never had any bowel motility tests just colonoscopy. I have upper gastric motility issues. Thank you.

Loads of changes of having to live with stoma. Nearly 9yrs ago, my journey started. Always having problems with leaking bag, tried so many alternatives and different resources. Still to this day problems. Not only leaking but over 2yrs I have been in a server pain.

Hi there I have stage 4 endo and due to have endo surgery, stoma reversal, bowel resection and partial bladder removal. This will be my first Endo surgery and will be open surgery. I’d like some advice on what to expect and what to pack for my hospital stay.

I’m also having a bowel resection plus possible stoma fitting (they won’t know the extent of the damage until they get in there) plus a review of my bladder so it’s going to be a biggie, with them using the Da Vinci robot and estimating an op time of 5-6 hours.

I was just about to start taking ibandronic acid when I found out I had colorectal cancer so I was worried about side effects of the ibandronic acid and didn't take it until November.I was given an ileostomy for a short while and the had stoma reversal in October.I am now Cancer and free but in September

Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell!

If it fails while in hospital he could have a trachy back in right away, BUT, if the stoma heals over and he gets a cold or infection in the future it could affect his airway as the vocal cords are only slightly open. Then it would be more serious and would need to be put under to put a new one in.

I’m having surgery on Monday for stage 4 endo excision at a BSGE centre. Undoing all adhesions, excision, possible loss of tubes, removing large bilateral endometriomas and possible loss of one ovary and removal of endo from bowel or potential resection / stoma bag.

b]Tuesday 19 November Worcestershire ovarian cancer support group between 11:00am - 1:00pm https://www.ovacome.org.uk/Event/worcestershire-group Gentle strengthening exercise class between 11:00am – 12:00pm https://www.ovacome.org.uk/Event/exercise-class Wednesday 20 November Stoma

I started having a prickly feeling in my lower back/buttocks - this has progressed (I think) to my genital area where I have a sensation of wetness- I wasn’t sure if this was the vaginal or urinary area (not my anus as I have a stoma!).