Experiences with

Stoma surgery

Advise please had in last 2years carboplatin and paxo two lots 6 sessions 3 lots surgery stoma hysterectomy any advice on just carboplatin 2 hour sessions as its now spread to nodules hair just started to grow back slowly wondering if side effects will be as severe with 2 hours instead

Hello, my Dad had emergency surgery yesterday due to a complete blockage of the bowel caused by a lesion. This is a complete shock to us as although he had been feeling ill for a week or so and Gp was just starting investigation, we didnt even know he had a lesion.They had to remove most of his large

Hi there I have stage 4 endo and due to have endo surgery, stoma reversal, bowel resection and partial bladder removal. This will be my first Endo surgery and will be open surgery. I’d like some advice on what to expect and what to pack for my hospital stay.

I am 74 and have an extremely sluggish bowel, as well as a lifelong very sweet tooth. I've recently been definitively diagnosed specifically with IMO. I'm struggling and am heading pretty inexorably towards an ileostomy. to be situated right at the ileocaecal junction. With an ileostomy I understand

Thank you everyone for your helpful replies this perhaps needs addressing in the training of security staff at airports so they may understand the venerability we sometimes feel if we happen to have a stoma. The experience you had in Spain sounded absolutely horrendous. Once again thanks. Debbie

I just wondered if I was overreacting about my recent incident going through customs at Birmingham airport. After putting my luggage through x ray I stood in front of the X-ray machine and was pulled to the side to be searched/patted down. You can imagine I had to explain that I had an ileostomy and

Hi all, hope you are enjoying the sun. This is a bit of a long post, so please bear with me and I hope you could give me some advice. I’ve been in hospital 5 times over the past 8 months due to , sepsis and severe diverticulitis flare and perforations in the intestines. I have just been discharged

Dear all, We are delighted that our next Members Series online session will be on Wednesday 26th March from 11:00am -12:00pm on the topic of 'Living with a stoma'. Unlike our clinical webinars, these sessions are hosted by members of our Ovacome community, who deliver the session based on their own

I have 2 stomas and I am really struggling to manage the colostomy as I reduce the steroids. Every time I change everything goes haywire with my output. Does anyone on here have a stoma? I haven't met anyone so far trying to manage a colostomy (or an ileostomy) together with PMR. I would really love

Has anyone used procalopride laxative. I have slow gut motility and cant go to the toilet at all without a laxative. Dulcolax usually works but I feel so nauseous and shivering on it. I have to use a stimulant laxative as nothing else helps. I have been prescribed procalopride which is a big step

Hi i have not posted in a while. Loads of changes of having to live with stoma. Nearly 9yrs ago, my journey started. Always having problems with leaking bag, tried so many alternatives and different resources. Still to this day problems. Not only leaking but over 2yrs I have been in a server pain.

At 31, a total hysterectomy wasn’t on my bingo card but it is what it is! Anyone got any advice, pointers, things to bear in mind that they want to share? I’m also having a bowel resection plus possible stoma fitting (they won’t know the extent of the damage until they get in there) plus a review of

Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell!

Hi I was diagnosed with osteoporosis in February this year after having a bone density scan. I was just about to start taking ibandronic acid when I found out I had colorectal cancer so I was worried about side effects of the ibandronic acid and didn't take it until November.I was given an ileostomy

Hi everyone.Ralph had trachy changed again yesterday (Thursday), a few later than normal, to avoid being due at Christmas. Consultant pleased he's capping 7 hours a day, but now wants him to get to capping all his waking hours if he can. NOT to do it while sleeping in case he stops breathing. Next appointment

Undoing all adhesions, excision, possible loss of tubes, removing large bilateral endometriomas and possible loss of one ovary and removal of endo from bowel or potential resection / stoma bag. From people who have experienced similar - What kind of surgery length should I be expecting? Thanks

Hello All This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 19 November Worcestershire ovarian cancer support group between 11:00am - 1:00pm https://www.ovacome.org.uk/Event/worcestershire-group

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I received pelvic radiation after a pollop removal. At the time it was suggested I could have radiation just in case anything had escaped although the doctors thought they had removed everything (the pollop had become fractured

Hi, I’m really worried my stoma has sucked itself back inside so now it’s flat to my skin no dongle bit 😭 I don’t know why this happened I was in a lot of pain last night and naturally it’s sore but I changed it after my bath yesterday and it was fine but now today I changed it and it’s now not protruding

Hi, I’m really worried my stoma has sucked itself back inside so now it’s flat to my skin no dongle bit 😭 I don’t know why this happened I was in a lot of pain last night and naturally it’s sore but I changed it after my bath yesterday and it was fine but now today I changed it and it’s now not protruding