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What is normal after surgery and what isn't
My husband had
stoma
surgery
two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning.
My husband had
stoma
surgery
two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning.
Suebedoo
in
Living with a Stoma
4 months ago
Ablasion
finally had my long awaited ablasion and was hopeful that it was going well when 2weeks later ended up with major
surgery
and a
stoma
has anything thing happened to anyone else like this. advice on coping much appreciated thanks
finally had my long awaited ablasion and was hopeful that it was going well when 2weeks later ended up with major
surgery
and a
stoma
has anything thing happened to anyone else like this. advice on coping much appreciated thanks
Lumps
in
AF Association
5 months ago
What's on at Ovacome next week? (week starting Monday 15 July 2024)
Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 16 July - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 16 July - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
OvacomeSupport
My Ovacome Team
in
My Ovacome
11 days ago
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Apprehensive +++
I am 73 and I live in England. Amongst several other conditions, I have a very slow transit bowel and SIBO. These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to
I am 73 and I live in England. Amongst several other conditions, I have a very slow transit bowel and SIBO. These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to
skylark15
in
Living with a Stoma
18 days ago
awareness advocate🫶
[i]
Hey there Everyone 👋🏼
[/i] [i]
I’m new to this amazing community ☺️
[/i] [i]
My names Hollie & I am 27 years old.
[/i] [i]
Since 11 years of age I have been suffering with Bowel Endometriosis.
[/i] [i]
It took years to get the correct diagnosis & many teams of specialists
[i]
Hey there Everyone 👋🏼
[/i] [i]
I’m new to this amazing community ☺️
[/i] [i]
My names Hollie & I am 27 years old.
[/i] [i]
Since 11 years of age I have been suffering with Bowel Endometriosis.
[/i] [i]
It took years to get the correct diagnosis & many teams of specialists
HolandstaceTED
in
Endometriosis UK
18 days ago
ovary removed, womb with mirena coil still there . Now in full menopause has anyone else been thru this ? Wot was your journey?
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
madtabby
in
Endometriosis UK
1 month ago
What's on at Ovacome next week? (week starting Monday 17 June 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 18 June - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 18 June - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 month ago
More good news
Ralph hasn't had his swallow x-ray, they only do 3 a week on a Tuesday, and it's in order of need and Ralph's is just to see what can happen in the future. He may not even get it done before he goes home.Physio are almost ready to sign him off, he's done 36 steps yesterday and tomorrow they're taking
Ralph hasn't had his swallow x-ray, they only do 3 a week on a Tuesday, and it's in order of need and Ralph's is just to see what can happen in the future. He may not even get it done before he goes home.Physio are almost ready to sign him off, he's done 36 steps yesterday and tomorrow they're taking
Gardenview10
in
British Heart Foundation
1 month ago
A survey of your experiences of one-piece closed stoma bags
Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage Assessment on one-piece closed bags for adults with a colostomy. Thank you so much to those of you who have already contacted us with your feedback
Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage Assessment on one-piece closed bags for adults with a colostomy. Thank you so much to those of you who have already contacted us with your feedback
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 month ago
Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
2 months ago
NICE colostomy consultation - invitation to Ovacome focus group
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Mum in ICU
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Exhausted247
in
ICUsteps
2 months ago
What's on at Ovacome next week? (week commencing Monday 13 May 2024)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Dealing with endo after children in late thirties
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
EKP31
in
Endometriosis UK
2 months ago
Leo 2327
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking
surgery
and
stoma
then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking
surgery
and
stoma
then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Leo2327
in
My Ovacome
6 months ago
Ilieostomy - waistband issue
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
Suebedoo
in
Living with a Stoma
3 months ago
Catheters and travel
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hopeful-one
in
Pelvic Radiation Disease Association
3 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
4 months ago
Stoma with Denosumab osteoporosis medication
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Florrie2
in
Bone Health and Osteoporosis UK
4 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
4 months ago
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