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on an upward trajectory after busy summer, even year
Busy summer: - 2nd hip replacement end of June - MRI in early August - Ocrevus also in early August after 9-10 months to give room for hip surgey. I had started to feel that 2 months w/o exercise and 9 months w/o Ocrevus was giving room for the MS to progress: fatigue, stiffness, muscle weakness
Busy summer: - 2nd hip replacement end of June - MRI in early August - Ocrevus also in early August after 9-10 months to give room for hip surgey. I had started to feel that 2 months w/o exercise and 9 months w/o Ocrevus was giving room for the MS to progress: fatigue, stiffness, muscle weakness
Anais_Hunter
in
My MSAA Community
1 month ago
unilateral oophorectomy period struggles
hi, i found this site when researching this and i just need to figure out if what im experiencing is normal. when i was 17, i had regular hospital trips due to being in agony. Doctors first told me i had a urine infection and sent me home. The second time, nothing came of it but i was told to come back
hi, i found this site when researching this and i just need to figure out if what im experiencing is normal. when i was 17, i had regular hospital trips due to being in agony. Doctors first told me i had a urine infection and sent me home. The second time, nothing came of it but i was told to come back
Petessally
in
Women's Health
1 month ago
Shoulder saga
Hi all, as some of you know, I had surgery in March this year for a hernia. Since then I have had horrible burning pain in my shoulder. It’s not getting better and painkillers don’t seem to touch it. In the past few weeks I’ve been back to the surgeon for MRI results on the shoulder and I’ve also seen
Hi all, as some of you know, I had surgery in March this year for a hernia. Since then I have had horrible burning pain in my shoulder. It’s not getting better and painkillers don’t seem to touch it. In the past few weeks I’ve been back to the surgeon for MRI results on the shoulder and I’ve also seen
MusicalFurbaby
in
LUPUS UK
1 month ago
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what next?? Adenomyosis, endo and now found on colon
so I’m wondering if anyone has been in the same position and can tell me what happened to them. Suffered severe heavy bleeding and debilitating pain and finally got diagnosed with adenomyosis a year ago and recurring endo having had some removed previously. Laparoscopy in Jan this year to remove endo
so I’m wondering if anyone has been in the same position and can tell me what happened to them. Suffered severe heavy bleeding and debilitating pain and finally got diagnosed with adenomyosis a year ago and recurring endo having had some removed previously. Laparoscopy in Jan this year to remove endo
NBeanie1978
in
Endometriosis UK
1 month ago
Conflicting Advice from Surgeons!
I had a laparoscopy in 2019 to excise endo tissue. The surgery was ineffective at relieving my symptoms (agonizing intercourse and period pain) which have recently worsened considerably. Over the past year, I have received conflicting advice from two consultants -- the first said I needed surgery imminently
I had a laparoscopy in 2019 to excise endo tissue. The surgery was ineffective at relieving my symptoms (agonizing intercourse and period pain) which have recently worsened considerably. Over the past year, I have received conflicting advice from two consultants -- the first said I needed surgery imminently
PhoebeMc
in
Endometriosis UK
1 month ago
New diagnosis... & Enzalutamide question
Hi guys, I've been reading these APC posts for a few weeks and I have to say that I massively appreciate your shared knowledge, humour... and grace. It's helped me face where I am, and not paint it too black. Thank you! DX start of July, PSA 530, Gleason 7 (4,3), low volume Metastatic PC with extensive
Hi guys, I've been reading these APC posts for a few weeks and I have to say that I massively appreciate your shared knowledge, humour... and grace. It's helped me face where I am, and not paint it too black. Thank you! DX start of July, PSA 530, Gleason 7 (4,3), low volume Metastatic PC with extensive
Broccoli24
in
Advanced Prostate Cancer
1 month ago
Blood pressure review
Just had a telephone call from my GP to review my blood pressure as its always very low I was put on Bisoprolol 5mg after my heart attack but my BP started to drop so just over a year ago the dosage was dropped to 1.25mg but this hasn't changed my readings as they were still very low. GP has told me
Just had a telephone call from my GP to review my blood pressure as its always very low I was put on Bisoprolol 5mg after my heart attack but my BP started to drop so just over a year ago the dosage was dropped to 1.25mg but this hasn't changed my readings as they were still very low. GP has told me
Coopergirl52
in
British Heart Foundation
1 month ago
Parkinson’s and cervical fusion surgery question
Greetings, all! I’m looking for a little advice regarding Parkinson’s and neck surgery. It looks like I may need triple fusion surgery in my neck. The complicating factor (potentially) is that in order to do this surgery from the front of the neck, which would be optimal, the surgeon sort of has to pull
Greetings, all! I’m looking for a little advice regarding Parkinson’s and neck surgery. It looks like I may need triple fusion surgery in my neck. The complicating factor (potentially) is that in order to do this surgery from the front of the neck, which would be optimal, the surgeon sort of has to pull
Jojaku123
in
Cure Parkinson's
1 month ago
optimal curative therapy?
Very fortunate still to have a chance for cure — Gleason 9 with post surgery LN involvement, but no distant mets detected. Received RT and about half way through a 2-year course of Lupron. PSA undetectable; tolerable SEs. Would adding Abiraterone or Apalutamide now maximize chance of cure or is it better
Very fortunate still to have a chance for cure — Gleason 9 with post surgery LN involvement, but no distant mets detected. Received RT and about half way through a 2-year course of Lupron. PSA undetectable; tolerable SEs. Would adding Abiraterone or Apalutamide now maximize chance of cure or is it better
NickKnick
in
Advanced Prostate Cancer
1 month ago
ferrous fumurate 320mg, diet and a few other points
hi I was taking iron bisglycinate but still getting RLS in my lower trunk and upper body and I suffer with BFS too slightly different symptoms but they definitely interplay Anyhow the Gp wanted me to try ferrous fumurate as iron level not moving much at all The GP had asked me to wait re the medical
hi I was taking iron bisglycinate but still getting RLS in my lower trunk and upper body and I suffer with BFS too slightly different symptoms but they definitely interplay Anyhow the Gp wanted me to try ferrous fumurate as iron level not moving much at all The GP had asked me to wait re the medical
Zenawarrior73
in
Restless Legs Syndrome
1 month ago
Failed Fistula
Six weeks ago I had surgery to get a brachio-basilic fistula in my left arm. I went for my first post-op follow-up appointment yesterday. First they did an ultrasound on the fistula. I was supposed to be scheduling the surgery to do the transposition of the fistula. Instead I was told that the fistula
Six weeks ago I had surgery to get a brachio-basilic fistula in my left arm. I went for my first post-op follow-up appointment yesterday. First they did an ultrasound on the fistula. I was supposed to be scheduling the surgery to do the transposition of the fistula. Instead I was told that the fistula
Sapphire187
in
Kidney Disease
1 month ago
Surgery waiting list
Hi all! I’ve had my results back from the MRI, they’re not great but not awful; endometriosis stage 4, 2 cysts of 7cm each of them (tenis ball size), both tubes need to be removed and endo and adhesions on my bowels 😵💫 My surgeon has said that minimum 6 months, which I thought it wasn’t too bad after
Hi all! I’ve had my results back from the MRI, they’re not great but not awful; endometriosis stage 4, 2 cysts of 7cm each of them (tenis ball size), both tubes need to be removed and endo and adhesions on my bowels 😵💫 My surgeon has said that minimum 6 months, which I thought it wasn’t too bad after
Cris_SC
in
Endometriosis UK
1 month ago
Mistake with grommets
Hi I am 56 and been off work since January with complications with PCD. One has been extreme vertigo and blocked Eustachian tubes. In May, a local ENT surgeon insisted on inserting grommets despite my fears of PCD and the UK website not recommending them. I also asked about the balloon method, but
Hi I am 56 and been off work since January with complications with PCD. One has been extreme vertigo and blocked Eustachian tubes. In May, a local ENT surgeon insisted on inserting grommets despite my fears of PCD and the UK website not recommending them. I also asked about the balloon method, but
PetraK
in
PCD Family Support Group (UK)
1 month ago
Steep Learning Curve
Hi All Four months ago, I was diagnosed with advanced Ovarian Cancer. I have had surgery and am now in the middle of chemotherapy. I did not know anything about cancer when I was diagnosed. To start with managing the shock and fear was all I could do. But as time is passing I find that I want to understand
Hi All Four months ago, I was diagnosed with advanced Ovarian Cancer. I have had surgery and am now in the middle of chemotherapy. I did not know anything about cancer when I was diagnosed. To start with managing the shock and fear was all I could do. But as time is passing I find that I want to understand
MountainSeeker
in
My Ovacome
1 month ago
my next hurdle
am down to 7and a half Prednisolone dose. My knee ( ( which I had surgery on in January 2022 for a torn meniscus) has now packed in so to speak.. I saw a Nurse Practitioner who was extremely helpful at my surgery yesterday. Not a good idea to have an x Ray yet as would have to repeat in 6 months , although
am down to 7and a half Prednisolone dose. My knee ( ( which I had surgery on in January 2022 for a torn meniscus) has now packed in so to speak.. I saw a Nurse Practitioner who was extremely helpful at my surgery yesterday. Not a good idea to have an x Ray yet as would have to repeat in 6 months , although
Havanahula
in
PMRGCAuk
1 month ago
RSV vaccine
I have just had an invite from my surgery for this vaccine. I am I right in thinking it is a live vaccine? If so, def don't want it. If not, is it worth it? We seem to be very well punctured these days with one thing or another
I have just had an invite from my surgery for this vaccine. I am I right in thinking it is a live vaccine? If so, def don't want it. If not, is it worth it? We seem to be very well punctured these days with one thing or another
herdysheep
in
PMRGCAuk
1 month ago
ive used my 9 lives
On the 22/06/2024 i was travelling to work in my car and blacked out causing a car accident . I woke up in ambulance was taken to local hospital diagnosed with a fracture in foot and fractured to t12 they noticed something in a scan and this lifted the corcern level to high . I was flown to the alfred
On the 22/06/2024 i was travelling to work in my car and blacked out causing a car accident . I woke up in ambulance was taken to local hospital diagnosed with a fracture in foot and fractured to t12 they noticed something in a scan and this lifted the corcern level to high . I was flown to the alfred
Hidden
in
Meningioma Support
1 month ago
Recovery from aortic valve surgery
My husband had aortic valve replacement and by pass on 16 August - little advice given on discharge - suggested activities at this stage seem far beyond his capability - e.g. water the garden - should I be worried?
My husband had aortic valve replacement and by pass on 16 August - little advice given on discharge - suggested activities at this stage seem far beyond his capability - e.g. water the garden - should I be worried?
Daffodilia
in
Heart Valve Voice
1 month ago
Puzzled by results
Good morning all. I had a Triple Bypass and Mitral Valve Repair done in 2019 and 2 years ago I was diagnosed with Heart Failure. I’ve recently had my Annual CHD Check up. This was detailed on the ECG Results “Interpretation: Sinus Rhythm with 1st degree A V Anterior Block Cannot rule out Anterior
Good morning all. I had a Triple Bypass and Mitral Valve Repair done in 2019 and 2 years ago I was diagnosed with Heart Failure. I’ve recently had my Annual CHD Check up. This was detailed on the ECG Results “Interpretation: Sinus Rhythm with 1st degree A V Anterior Block Cannot rule out Anterior
Davewm
in
British Heart Foundation
1 month ago
bleeding during two week wait (again)
Hi everyone. The first time I posted here it was about bleeding during my tww which ended on a negative test. I’ve since had 2 more transfers (currently in the middle of 3rd tww) and I’m bleeding again like I’m on my period, so I’m not feeling very positive. Sadly we only managed to get one egg from
Hi everyone. The first time I posted here it was about bleeding during my tww which ended on a negative test. I’ve since had 2 more transfers (currently in the middle of 3rd tww) and I’m bleeding again like I’m on my period, so I’m not feeling very positive. Sadly we only managed to get one egg from
PizzaAndPasta
in
Fertility Network UK
1 month ago
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