Mistake with grommets

[PetraK]

Hi

I am 56 and been off work since January with complications with PCD. One has been extreme vertigo and blocked Eustachian tubes. In May, a local ENT surgeon insisted on inserting grommets despite my fears of PCD and the UK website not recommending them. I also asked about the balloon method, but it was something she does not do. I now still blocked tubes with moderate and mild hearing loss in either ear. I am on my third round of antibiotic drops. She then wants me to use olive oil and see her in three months.

In the meantime I am seeing a second ENT specialist in Vancouver due to a mass in my sinus near my optic nerve that needs to surgery to have it removed. The Ent specialist above did say to discuss alternatives with this new specialist in regards to the blocked Eustachian tubes. She also added there may be no solution.

So my questions are- is there a solution to blocked Eustachian tubes and sinus issues? Or is this now another piece to PCD that needs to be managed as I continue to age?

Any personal experiences gratefully received- it is hard to feel a little isolated in Canada. (I am from the UK). On a positive note ST. Paul's in Vancouver is looking into becoming a PCD centre which would be fantastic in the future.

Thanks for reading

Petra

[Chrissie82]

Hi, I have problems with my ears and sinuses to, when I struggle I see my cranial osteopath I can't tell you how it works exactly but it feels lovely and soothing on my sinuses and I feel so much clearer and less congested afterwards. I also wear hearing aids which help massively. I also pinch my nose and blow short and sharp to open my eustachian tubes. Good luck xx

[Chrissie82 in reply to Chrissie82]

Me again, the Epley manouver works wonders for vertigo, my drshiwed me and now I watch YouTube videos to do it properly xx

[PetraK in reply to Chrissie82]

Thank you for sharing.

[Chrissie82]

I just re read my message above, the bit that makes me sense is supposed to say 'my doctor showed me!'