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getting better but anxiety over future
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Particle32
in
Asthma Community Forum
3 months ago
research opportunity
Apologies if this is a duplicate. This came from The Vasculitis charity. I was impressed that PMR was included. I have done the interview hour on Teams. Very pleasant and well organised. “Good afternoon, Sarah Mackie has asked us to share this opportunity with you all, and would be happy for you
Apologies if this is a duplicate. This came from The Vasculitis charity. I was impressed that PMR was included. I have done the interview hour on Teams. Very pleasant and well organised. “Good afternoon, Sarah Mackie has asked us to share this opportunity with you all, and would be happy for you
Nightingales
in
PMRGCAuk
3 months ago
New, A Bit Scared, Would Appreciate Advice.
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
Sparklingsunshine
in
British Heart Foundation
3 months ago
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Recieved rheumatologist letter and conclusion
Hi all, here is an update. I received my Rheumatologist letter and the conclusion was Fibromyalgia as expected. He is without any doubt that i have fibro and with my history believes i have been undiagnosed since 2015. He reported that the introduction of Pred at 15mg was no more than an effective
Hi all, here is an update. I received my Rheumatologist letter and the conclusion was Fibromyalgia as expected. He is without any doubt that i have fibro and with my history believes i have been undiagnosed since 2015. He reported that the introduction of Pred at 15mg was no more than an effective
Cooper02
in
PMRGCAuk
3 months ago
help with carpal tunnel please
Hi I’m new on this site for carpal tunnel. I’m on Iv magnesium due to a high output ileostomy. I’ve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . I’m waiting for an appointment at the hospital. these are
Hi I’m new on this site for carpal tunnel. I’m on Iv magnesium due to a high output ileostomy. I’ve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . I’m waiting for an appointment at the hospital. these are
Esme2007
in
Thyroid UK
3 months ago
After Pluvicto #6 results
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Miccoman
in
Advanced Prostate Cancer
3 months ago
New to RA
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Pjf0265
in
NRAS
3 months ago
Flare Up
Feeling frustrated at the moment, thought I was making progress but pain in arms and legs as increased in last few weeks. GP consult yesterday and advised to up steroids. Flare up due most likely to with drawing steroids to quickly. It will be slower now and every 4 - 6 weeks by 1 mg. Hopefully that
Feeling frustrated at the moment, thought I was making progress but pain in arms and legs as increased in last few weeks. GP consult yesterday and advised to up steroids. Flare up due most likely to with drawing steroids to quickly. It will be slower now and every 4 - 6 weeks by 1 mg. Hopefully that
lynda1955
in
PMRGCAuk
3 months ago
How long does it take for your immune system to get back to normality?
Hi lve been on & off sulfasalazine then methotrexate 2006/2013 then in remission till 2020 & had knee flare ups so had steroids etc so was on sulfasalazine again but never suited & methotrexate but just kept getting chest infections & feeling ill etc so stopped in December & at moment feeling ok just
Hi lve been on & off sulfasalazine then methotrexate 2006/2013 then in remission till 2020 & had knee flare ups so had steroids etc so was on sulfasalazine again but never suited & methotrexate but just kept getting chest infections & feeling ill etc so stopped in December & at moment feeling ok just
Chezjones
in
NRAS
3 months ago
Versus arthritis leaflet on steroids and PMR
They also have guides to PMR and GCA, a booklet about
steroid
injections
and guides to all sorts of arthritis and medicines used to treat it and other autoimmune conditions such as Raynauds. I'm sure they'd welcome donations if you can afford it but it's all free at source.
They also have guides to PMR and GCA, a booklet about
steroid
injections
and guides to all sorts of arthritis and medicines used to treat it and other autoimmune conditions such as Raynauds. I'm sure they'd welcome donations if you can afford it but it's all free at source.
tangocharlie
in
PMRGCAuk
1 year ago
inhalation symbicort 200
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
RABS1957
in
Asthma Community Forum
3 months ago
OsteoArthritis v RA
Recent flaring and RA activity has been largely rooted in that knee and have had three
steroid
injections
since Christmas. The most latest one was in response to searing pain in the knee.
Recent flaring and RA activity has been largely rooted in that knee and have had three
steroid
injections
since Christmas. The most latest one was in response to searing pain in the knee.
TheBoys
in
NRAS
1 year ago
Histiocytoid Sweet's syndrome - unusual crusted lesions
An atypical facial eruption in skin of color: A rare presentation of histiocytoid Sweet syndrome, 2024. https://www.jaadcasereports.org/article/S2352-5126%2824%2900087-0/fulltext - Normally red to purple lesions in Sweet's syndrome. - Doesn't disproportionately affect specific racial groups. "Although
An atypical facial eruption in skin of color: A rare presentation of histiocytoid Sweet syndrome, 2024. https://www.jaadcasereports.org/article/S2352-5126%2824%2900087-0/fulltext - Normally red to purple lesions in Sweet's syndrome. - Doesn't disproportionately affect specific racial groups. "Although
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
3 months ago
Steroid reduction
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few days had pain in shoulders hips and lower back. I also have osteoarthritis in most joints so wondering if it's that that is causing all the pain
kathyrob
in
PMRGCAuk
3 months ago
Severe mental reaction to prednisolone
As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and still are making my life a misery. I cannot go on any longer. I began to think I am going insane. One of the family googled "Side effects
As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and still are making my life a misery. I cannot go on any longer. I began to think I am going insane. One of the family googled "Side effects
tinlid
in
PMRGCAuk
3 months ago
Update
Hi everyone, it’s been a while. I’ve had a very long journey involving numerous hospital admissions and investigations into why I’ve got pleural/pericardial effusion’s and although my respiratory we’re saying connective tissue disease, the rheumatologist I seen wasn’t fully onboard as my ANA is negative
Hi everyone, it’s been a while. I’ve had a very long journey involving numerous hospital admissions and investigations into why I’ve got pleural/pericardial effusion’s and although my respiratory we’re saying connective tissue disease, the rheumatologist I seen wasn’t fully onboard as my ANA is negative
Numptybrain
in
Lung Conditions Community Forum
3 months ago
throbbing ribs
Hi I have been completely off steroids since September 2023 for GCA. However I have developed throbbing joints especially in the evenings mainly in my ribs but the last few days in most of my body. It’s very uncomfortable and prevents sleep. Does it sound like a PMR symptom? I’m waiting on a rheumatologist
Hi I have been completely off steroids since September 2023 for GCA. However I have developed throbbing joints especially in the evenings mainly in my ribs but the last few days in most of my body. It’s very uncomfortable and prevents sleep. Does it sound like a PMR symptom? I’m waiting on a rheumatologist
Marley12b
in
PMRGCAuk
3 months ago
lower dose prednisone
Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of prednisone until I see rheumatologist in June instead of stopping in may as planned as it’s obviously working providing this was a connective tissue
Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of prednisone until I see rheumatologist in June instead of stopping in may as planned as it’s obviously working providing this was a connective tissue
Numptybrain
in
PMRGCAuk
3 months ago
Patroleum Jelly as a protective barrier for the clitoris and inner lips (away from vagina opening) while healing from an abrasion/cut/burn?
Hello, Me and my husband had sex during a house renovation, following this I started with strong burning/pain in the clitoris area and inner lips. I’ve been treated for UTI and thrush and checked for STIs. All clear and no relief. After seeing a specialist he believes he can see ‘discontinuity’ of
Hello, Me and my husband had sex during a house renovation, following this I started with strong burning/pain in the clitoris area and inner lips. I’ve been treated for UTI and thrush and checked for STIs. All clear and no relief. After seeing a specialist he believes he can see ‘discontinuity’ of
Redskytonight
in
Pelvic Pain Support Network
3 months ago
Cortisol result help in interpreting please
Hi Hashimoto's sufferer for 40 years and ill most of that time. Worsening symptoms although I have had these symptoms before just not as long lasting or debilitating as they have been over the last 12 months. Treated with Levothyroxine only (this after being advised in writing by an endocrinologist 6
Hi Hashimoto's sufferer for 40 years and ill most of that time. Worsening symptoms although I have had these symptoms before just not as long lasting or debilitating as they have been over the last 12 months. Treated with Levothyroxine only (this after being advised in writing by an endocrinologist 6
Shebbie
in
Thyroid UK
3 months ago
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