help with carpal tunnel please : Hi I’m new on... - Thyroid UK

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help with carpal tunnel please

Esme2007 profile image
31 Replies

Hi I’m new on this site for carpal tunnel. I’m on Iv magnesium due to a high output ileostomy. I’ve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . I’m waiting for an appointment at the hospital.

these are my symptoms

- pins and needles

-numbness

- electric shock feelings

- thumb, first, second and part of fourth finger affected.

- inside my wrists seem to have a weakness

- burning

- extreme pain

This morning I woke with it travelling up my left arm. I was crying due to the pain .

I am waiting for further surgery on my abdomen hopefully soon and can therefore not have surgery on my hands. I’m not sure about steroids injections either yet as I have complex other problems.

Please can someone suffering too let me know if their symptoms and maybe what they do to relieve them . It’s horrendous.

Many thanks

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Esme2007
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31 Replies
bantam12 profile image
bantam12

Wrist splints usually work well.

Esme2007 profile image
Esme2007 in reply tobantam12

thank you for replying so quickly. Yes I have wrist splints and they do help .

APAscot profile image
APAscot in reply toEsme2007

My husband uses the wrist splints - sometimes with, sometimes without, the metal parts which can cause more pain, depending on where the pressure is. He swears by Flexiseq cream but you do have to follow the instructions for it to be effective and keep it up. It’s also pretty expensive

JGBH profile image
JGBH in reply tobantam12

Wrist splints are ok as long as one can use their hands/fingers to put them on and off… This is impossible in my case because of extreme swelling and pain/weakness in wrists and fingers because of RA. I could use those in the past but no longer. If one lives alone it is not possible to use wrist splint, unfortunately.

bantam12 profile image
bantam12 in reply toJGBH

It was just a suggestion for Esme, I’m sorry you have a problem with them, for me they worked well until I could have the surgery.

JGBH profile image
JGBH in reply tobantam12

Of course suggestions are helpful but it is important that this is not always possible if one’s hands are extremely swollen and painful… Even doctors and physios seem not to understand that. Naturally it’s only when one experiences the problems that one understands. It’s normal. It wasn’t a criticism.

Jaydee1507 profile image
Jaydee1507Administrator

Welcome to the group.

Do you have a thyroid condition or suspect it? This is a thyroid support group.

Carpal tunnel can be caused by low thyroid hormones.

Do you have a copy of your latest blood results that you can share with us? You are legally entitled to a printed copy of your results, ask at GP reception. In England you can get the NHS app and ask for permission to see your blood results on that by asking at GP’s reception.

Esme2007 profile image
Esme2007 in reply toJaydee1507

Oh sorry …. I think I’ve posted on the wrong one haven’t I….. my consultant has checked for thyroid and diabetes and all fine . I’ve been experiencing light symptoms I think for a few years . My gastro consultant thinks the extra fluids I’m having are aggravating it . Thank you for replying . I will go o. The correct site now ! Thank you .

Jaydee1507 profile image
Jaydee1507Administrator in reply toEsme2007

if you can get hold of a copy of your thyroid results then do post them here for comments.

Esme2007 profile image
Esme2007 in reply toJaydee1507

Will do

posthinking01 profile image
posthinking01 in reply toEsme2007

Hi Esme - what is the correct site ? Also I suffer with this and it is so painful - I am so sorry you are having to go through this but as someone else has advised it is connected to thyroid function but also low Vitamin B6 - if at all possible (and personally considering what treatment you are receiving) your medical team should be checking you are not becoming deficient generally of vitamins and minerals as they are flooding your body with medication - I take B6 and it really helps but please check with your medical team - I take Natures Best B6 50 mg they also give you energy too and help with homocysteine levels and balancing of the female hormones. Hope this helps Esme.

helvella profile image
helvellaAdministrator in reply toposthinking01

There are huge numbers of posts across multiple forums:

healthunlocked.com/search/p...

I don't know which was was being referred to.

posthinking01 profile image
posthinking01 in reply tohelvella

Thanks for this - there are so many sites which is great news for all those having to fight to get their health back these days.

helvella profile image
helvellaAdministrator in reply toposthinking01

Which form of B6?

helvella - Vitamers of Vitamin B6

Some time ago, I mentioned that the form in which we take vitamin B6 is important. I think I linked to this paper:

helvella.blogspot.com/p/hel...

Esme2007 profile image
Esme2007 in reply toposthinking01

Hi thank you so much for replying. I have quite small hands but did go for medium . There are different types and I got them from Amazon . They have helped but over the last couple of nights haven’t as much . I have complex other problems and was in hospital for many weeks . I’m hoping once they reverse the high output stoma and I go back to my colostomy I will be off Iv magnesium. My hands have swollen at times due to the fluids . I have had lots of things tested and lots of bloods done . I see my gastro consultation on 15th do not too long until I can discuss things with him . I thank everyone who has taken the time to try and help . I’ve had many operations over the years and cancer twice . This pain in my hands is on another level. I would gladly go and get the surgery but cannot at the moment. Try the splints xx

posthinking01 profile image
posthinking01 in reply toEsme2007

Hi Esme - my late Mum (she lived until she was 93 years of age) suffered all her young life with ulcerative colitis and was the first person in our local Surrey hospital to have an ileostomy - a gastro surgeon had come down from London to undertake the operation - at aged 46 years of age she was free from 6 month stints in hospital - all I remember is Mum being in hospital with us kids looking at her from the garden through the ward windows - or in those days (1966 plus) her being in a convalescent home - she was a really really bad case once having to have 8 pints of blood - then it was foreign holidays - swimming - it changed her life - you are very very brave and things will get better Esme - but try to get your medical team to check your vitamin and minerals as much as possible as is available on the NHS and do ask us on here and we will try to help as much as we can. What I can tell you is that Carpal Tunnel is as the result of something else i.e. something is becoming deficient - as I said B6 is the carpal tunnel vitamin - before I retired I was a Secretary and often my wrist would play up and I would think - hello I'm low on B6 would take it for a few weeks and low and behold the pain and swelling went. Obviously your case is more serious as you have a heavy load on your body but boy it is painful especially the electrical type shooting pains - it is awful. There are gadgets you can buy to calm the tendons and ligaments that are inflamed as I used them on a regular basis for muscular skeletal pain. Also it could be that the Magnesium is depleting you of Vitamin C which is vital for tendons and ligaments but you won't be able to take C for a while as it can cause you to be 'loose' - take care and let us know how you get on - you are with friends here.

Esme2007 profile image
Esme2007 in reply toposthinking01

thank you so much for your heartfelt reply . I have been through a lot and my 12 hours surgery in September led me to these problems but also rid me of fistulas that housebound me for 6 years and a hernia the size of a football. I had to weigh up the risks against quality of life for not only myself but my husband, children and grandchild too .

It was a risk but I had to take it . If it wasn’t for the ileostomy being high output I would be doing so well . The story about your mum bless her, is fascinating and has given me some hope so thank you . I am grateful for all of everyone’s replies and information. I had slight feelings in my wrists before all of this . Something has definitely aggravated it . Thank you ….. you are so kind .

Carpetking231 profile image
Carpetking231 in reply toEsme2007

hi Esme,sorry to hear of your problem.Some stomach ops can cause problems with b12 absorbsion .I was told this 15 years after a bowel resection and it took another 15 years of asking fo b12 checks until a new Gp.diagnosed I had intrinsic factor and due to the portion of bowel removed being the area which absorbed b12 not allowing b12 absorption,one of the symptoms is tingling in the fingers there is a good uk site which if googled will give more info. Good luck in your quest for health.

posthinking01 profile image
posthinking01 in reply toCarpetking231

Yes site is Pernicious Anaemia Society !

Esme2007 profile image
Esme2007 in reply toCarpetking231

that’s very interesting as I’ve had bowel resection a few times . I will definitely look into this and mention when I see my consultant. Thank you .

posthinking01 profile image
posthinking01 in reply toEsme2007

Esme see this:-

Most of the reasoning for taking these vitamins to treat carpal tunnel comes from one simple observation. That is, a lack of vitamin B6 or B12 causes symptoms similar to carpal tunnel. For instance, tingling or pins-and-needles in the extremities (like the fingers and hand) are a common sign of vitamin B deficiency.

Esme2007 profile image
Esme2007 in reply toposthinking01

Thank you I will mention this at my consultation.

SlowDragon profile image
SlowDragonAdministrator

my consultant has checked for thyroid and diabetes and all fine

Personally I would double check that

Your other posts on Restless legs ……frequently linked to low iron/ferritin

Very common when hypothyroid

Carpal tunnel extremely common when hypothyroid

Gut issues extremely common hypothyroid symptom

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

optimal vitamin levels

Vitamin D at least over 80nmol

Serum B12 over 500

Active B12 over 70

Ferritin at least over 70

Folate at top of range

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Esme2007 profile image
Esme2007 in reply toSlowDragon

thank you I have taken on board all of your thorough information.

Mandcol profile image
Mandcol

200mg of B6 daily proved to help a lot of my customers when I had a health food shop.

TiggerMe profile image
TiggerMeAmbassador in reply toMandcol

Wow, that could be a harmful dose taken for any length of time?? It's recommended to never take more than 100mg daily as it can cause nerve damage, numbness, photosensitivity etc...

posthinking01 profile image
posthinking01 in reply toMandcol

Hi yes that is a bit of a high dose - which could if 'prescribed' by a medical person have helped for a short sharp intake of the vitamin they need if blood tested they are deficient - but 100 mg would be a maximum dose I would take and in fact I only take 50 mg and I think that is high enough - but it does work and I have possible coeliac disease and it is vital for that problem apparently as it is one of the vitamins and minerals that for some reason is not absorbed.

SarahJane1471 profile image
SarahJane1471

wrist splints and steroid injections

kiefer profile image
kiefer

Be sure to rule out myofascial trigger points as the cause for your wrist pain.

"Both Thoracic Outlet Syndrome and Carpal Tunnel Syndrome are disorders that are more likely to be created by trigger points than by anatomical or structural malformations. Not only can trigger points refer pain that mimics these disorders, but the muscle tension created by these trigger points will frequently compress nerves as they travel in the neck, shoulder, and forearm regions."

painwhisperer.com/trigger-p...

Nana321 profile image
Nana321

Hi Esme , I've just had both wrists released and can sympathize. Splints and elevation helped some especially at night. Pain relievers too. My GP thought it unusual to have both simultaneously. I believe it's from B12 deficiency. Good luck.

Esme2007 profile image
Esme2007 in reply toNana321

Thank you so much for your reply . It’s an awful condition isn’t it ? I feel like I’m being tortured . It’s such a coincidence too that both mine have gone at the same time when I have a high output ileostomy where I am losing all my nutrients. I have an appointment in a couple of weeks and am going to mention the vitamin b12 . My nurses who administer my Iv magnesium have said that they also give vitamin b12 injections . Do I will definitely be finding out if this would be possible and would benefit me …. I’m having the ileostomy reversed sometime this year once my large bowel has rested . I’m hoping I will have less problems. Thank you so very much for taking the time to share your experience and advice . I wish you well with your recover recovery ❤️‍🩹

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