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Stem cell and bone marrow transplants
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High risk for COVID-19 and receiving letters/contact from NHS
https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults The above guidance describes 2 groups of people; “those who are at increased risk of severe
https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults The above guidance describes 2 groups of people; “those who are at increased risk of severe
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
Guidance on social distancing for everyone in the UK and protecting older people and vulnerable adults - and THAT'S ALL OF US.
From the UK Gov website. "[i]There are some clinical conditions which put people at even higher risk of severe illness from COVID-19. If you are in this category, next week the NHS in England will directly contact you with advice the more stringent measures you should take in order to keep yourself and
From the UK Gov website. "[i]There are some clinical conditions which put people at even higher risk of severe illness from COVID-19. If you are in this category, next week the NHS in England will directly contact you with advice the more stringent measures you should take in order to keep yourself and
Jm954
Administrator
in
CLL Support
4 years ago
Transplant Coordinator issues
Has anyone requested to change the coordinator assigned to them when they got listed? Before my own listing, I watched my Dad go through kidney transplant. Based on his experience, I thought that the coordinator would be "on my team" and provide support through this journey - was I assuming too much
Has anyone requested to change the coordinator assigned to them when they got listed? Before my own listing, I watched my Dad go through kidney transplant. Based on his experience, I thought that the coordinator would be "on my team" and provide support through this journey - was I assuming too much
Bax509
in
Kidney Transplant
4 years ago
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Hello 'Everyone', I'm Andrew and have a 'Number' of Skin Issues. I have Vasculitis and I also had a Kidney Transplant, way back, in 2013. As a result or, all of this, I am heavily Immuno- Suppressed which means I get.... Warts, Lumps, Growths (only one was cancerous, and was fully removed), Psoriasis
Hello 'Everyone', I'm Andrew and have a 'Number' of Skin Issues. I have Vasculitis and I also had a Kidney Transplant, way back, in 2013. As a result or, all of this, I am heavily Immuno- Suppressed which means I get.... Warts, Lumps, Growths (only one was cancerous, and was fully removed), Psoriasis
AndrewT
in
MY SKIN
4 years ago
Official Government advice on who is in the ‘at risk’ category for Covid-19
From www.gov.uk “We are advising those who are at increased risk of severe illness from coronavirus (COVID-19) to be particularly stringent in following social distancing measures. This group includes those who are: aged 70 or older (regardless of medical conditions) under 70 with an underlying health
From www.gov.uk “We are advising those who are at increased risk of severe illness from coronavirus (COVID-19) to be particularly stringent in following social distancing measures. This group includes those who are: aged 70 or older (regardless of medical conditions) under 70 with an underlying health
Bookworm55
in
NRAS
4 years ago
Government Guidelines 16.03.2020 for transplanted patients
Listed on government website last night. All transplant patients will be contacted directly by NHS to deliver more stringent guidelines. Note: there are some clinical conditions which put people at even higher risk of severe illness from COVID-19.
If you are in this category, next week the NHS in
Listed on government website last night. All transplant patients will be contacted directly by NHS to deliver more stringent guidelines. Note: there are some clinical conditions which put people at even higher risk of severe illness from COVID-19.
If you are in this category, next week the NHS in
Kimlescam
in
British Liver Trust
4 years ago
Refused a kidney transplant
Hi Everyone, it’s been quite while since I have posted anything, but what I just went through tonight still has me wondering if I made the right decision. I was working tonight, when I received a phone call from my transplant center. I was offered a kidney, and I refused it. I just had a doctors appointment
Hi Everyone, it’s been quite while since I have posted anything, but what I just went through tonight still has me wondering if I made the right decision. I was working tonight, when I received a phone call from my transplant center. I was offered a kidney, and I refused it. I just had a doctors appointment
Socky
in
Kidney Transplant
4 years ago
job portal
Is there anyone from India. I want to know that is there any forum which can help me to find job after kidney transplant. i am from Gujarat India .MBA+engineer
Is there anyone from India. I want to know that is there any forum which can help me to find job after kidney transplant. i am from Gujarat India .MBA+engineer
pateldev
in
Kidney Transplant
4 years ago
Ppfe
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in
Lung Conditions Community Forum
4 years ago
Coronavirus & kidney transplant
My husband is 3 months post kidney transplant (donated by his sister) and on immune suppressants now for life. Anyone have insight into how coronavirus might affect him if he was to get it? Anyone have any advice?
My husband is 3 months post kidney transplant (donated by his sister) and on immune suppressants now for life. Anyone have insight into how coronavirus might affect him if he was to get it? Anyone have any advice?
Pem_0904
in
Kidney Disease
4 years ago
Just now learning my GFR's were low for 5 years.
With the world under a medical crisis, I don't know if I should wait. My GFR has been from 55-64 for the past 5 years but nobody alerted me. My doc recently had a nurse call and tell me about it and ordered repeat blood tests. Twice. It's now 64. I'm Freaked. My beloved sister had 3 kidney transplants
With the world under a medical crisis, I don't know if I should wait. My GFR has been from 55-64 for the past 5 years but nobody alerted me. My doc recently had a nurse call and tell me about it and ordered repeat blood tests. Twice. It's now 64. I'm Freaked. My beloved sister had 3 kidney transplants
Hidden
in
Kidney Disease
4 years ago
Sickle cell and endometriosis
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Gabyp
in
Sickle Cell Society
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Kidney Disease: https://healthunlocked.com/nkf-ckd
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Kidney Disease: https://healthunlocked.com/nkf-ckd
KristiS_NKF
Administrator
in
Parents of Children with Kidney Disease
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out! Kidney Dialysis: https://healthunlocked.com/nkf-dial... Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
Do you know about our other communities? Check them out! Kidney Dialysis: https://healthunlocked.com/nkf-dial... Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
KristiS_NKF
Administrator
in
Kidney Donation
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out: Kidney Dialysis: https://healthunlocked.com/nkf-dialysis Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com
Do you know about our other communities? Check them out: Kidney Dialysis: https://healthunlocked.com/nkf-dialysis Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com
KristiS_NKF
Administrator
in
Kidney Disease
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
KristiS_NKF
Administrator
in
Kidney Dialysis
4 years ago
Medication Query
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Santaponsa1
in
Kidney Transplant Patient Support
4 years ago
Insurance cover for Belatacept anti rejection infusion therapy. How do I get insurance for this drug therapy? My Medicare ends in 3 months?
Has anyone else had experience in getting Belatacept covered (or not covered) under their ACA insurance provider or other insurance provider? If so, how did you go about it? What was the process? How easy was it to get them to decide to cover it or not? I am going on three years after a successful kidney
Has anyone else had experience in getting Belatacept covered (or not covered) under their ACA insurance provider or other insurance provider? If so, how did you go about it? What was the process? How easy was it to get them to decide to cover it or not? I am going on three years after a successful kidney
Kidneygirl
in
Kidney Transplant
4 years ago
Mum has liver cancer and cirrhosis, help and advice please
My mum has primary liver cancer, she had 2 smaller tumours they managed to abalate one of them but the other one they couldn't get to as she has cirrhosis the liver was too scared to get to it and it was deeper in. They will try abalation again and are putting her on liver transplant list. I am very
My mum has primary liver cancer, she had 2 smaller tumours they managed to abalate one of them but the other one they couldn't get to as she has cirrhosis the liver was too scared to get to it and it was deeper in. They will try abalation again and are putting her on liver transplant list. I am very
Tomcat123
Caregiver
in
Blue Faery Liver Cancer
4 years ago
How important is it to have full time care taker when recovering from bone marrow transplant
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
hossbball
in
CLL Support
4 years ago
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