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Stem cell and bone marrow transplants
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“I think we’ll cure leukemia in my lifetime”
Targeted therapy improved that to 35% to 40%, but patients had to receive a
stem
cell
transplant
, which isn’t easy. But I’ve led research on a drug called ponatinib in combination with chemotherapy, and we’ve seen the survival rate jump to 80% without a transplant.
Targeted therapy improved that to 35% to 40%, but patients had to receive a
stem
cell
transplant
, which isn’t easy. But I’ve led research on a drug called ponatinib in combination with chemotherapy, and we’ve seen the survival rate jump to 80% without a transplant.
Manouche
in
MPN Voice
3 years ago
A small piece of advice
Having been through Cirrhosis and fatty liver then the liver cancer string I can only give this advice I also have anxiety as well as depression and PTSD. Keep above all a positive outlook on life. Is it easy no, not at all. Turn to what helps. I spent months angry at God for my life circumstance. I
Having been through Cirrhosis and fatty liver then the liver cancer string I can only give this advice I also have anxiety as well as depression and PTSD. Keep above all a positive outlook on life. Is it easy no, not at all. Turn to what helps. I spent months angry at God for my life circumstance. I
utep99
in
Living with Fatty Liver and NASH
3 years ago
Hair Loss
Hi everyone, I have been on dialysis for 9 months. I am on the registry for a liver and kidney transplant. Along with other symptoms that so many of us suffer from, it is devastating that I have lost half of my hair : (( This started about 6 months into dialysis. Thyroid issues have been ruled out
Hi everyone, I have been on dialysis for 9 months. I am on the registry for a liver and kidney transplant. Along with other symptoms that so many of us suffer from, it is devastating that I have lost half of my hair : (( This started about 6 months into dialysis. Thyroid issues have been ruled out
BeachLove
in
Kidney Transplant
3 years ago
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NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
3 years ago
Immense sweating
I am 2 yes 9 months post kidney transplant. Has anyone had issues with immense sweating that your hair is sopping wet? I thought it could be my thyroid but that’s not it. Apparently my blood work is stable. I’ve asked the transplant team, nephrologist and an Endochronogist….. no answers. I am wondering
I am 2 yes 9 months post kidney transplant. Has anyone had issues with immense sweating that your hair is sopping wet? I thought it could be my thyroid but that’s not it. Apparently my blood work is stable. I’ve asked the transplant team, nephrologist and an Endochronogist….. no answers. I am wondering
Dara3351
in
Kidney Transplant Patient Support
3 years ago
FRUSTRATED ON INACTIVE LIST
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
I am very frustrated with my Transplant Hospital (I need to vent or get guidance if anyone has a suggestion). I have completed all of my THIRD two-year re-evaluation with the multiple tests required. The Transplant hospital insisted I get a special Heart Cath procedure because they found a little “blip
TaffyTwoshoes27
in
Kidney Transplant
3 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
3 years ago
How we grow and empathise through shared story
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
Bio-artificial kidney
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Sharam
in
Kidney Disease
3 years ago
Bronchiectasis, disease progression and lifestyle changes
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
Good afternoon all, Apologies once again for the radio silence after my last post back in June when you all very kindly gave me some sage advice on whether or not I should continue working full time. After some considerable soul searching, I decided to take the option of stepping back from my current
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Issues with elevated blood markers
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Lm371260
in
Kidney Transplant
3 years ago
After being told last night they have concerns re my heart which needs sorting before lung transplant this has cheered me up…🤪
Smart landlord!
Smart landlord!
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Well, I have sarcoidosis folks
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
Missbrenda21
in
Lung Conditions Community Forum
3 years ago
Lung transplant assessment
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
mary1956
in
Lung Conditions Community Forum
3 years ago
Hepatic Encephalopathy
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
Albw
in
British Liver Trust
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
Stem cell transplant saved me
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had
stem
cell
transplant
have been in remission for 7 years do it!
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had
stem
cell
transplant
have been in remission for 7 years do it!
patricih
in
Non Hodgkin's Lymphoma Friends
3 years ago
New to this
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
Kidney Cancer Support
3 years ago
New To this site
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
British Liver Trust
3 years ago
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