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Stem cell mobilization
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Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
Will B12 skew PC and IF results
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
rw1001
in
Pernicious Anaemia Society
8 years ago
Allogeneic Stem Cell Transplant: Who Is It Most Appropriate For?
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
mcints
in
Myeloma America Support
8 years ago
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Considering a Bone Marrow Transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
mcints
in
CLL America Support
8 years ago
Plymouth Devon & Cornwall PMR/GCA meet up 15th June 10.30
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Hidden
in
PMRGCAuk
8 years ago
Younger age GCA data?
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
CloudGazer6
in
PMRGCAuk
8 years ago
Donating blood
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Good Blood counts = cured?
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
crapaud
in
MPN Voice
8 years ago
Hemoglobin, iron, and vitamin B12 deficiencies and high blood homocysteine levels in patients with anti-thyroid autoantibodies
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Understanding New Myeloma Therapies and the Role of Stem Cell Transplant
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
mcints
in
Myeloma America Support
8 years ago
Weekly Clinical Trial Spotlight
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
tclementi
in
Myeloma America Support
8 years ago
Share your story please!
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
My ET Has Progressed to MF: Am I a Candidate for Stem Cell Transplant?
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
mcints
in
Fight MPN
8 years ago
Stick or Twist...Not Really.
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
zentangle
in
CLL Support
8 years ago
Is the Use of a JAK inhibitor Prior to Stem Cell Transplant Recommended?
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
mcints
in
Fight MPN
8 years ago
My Journey
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
bigpants
in
Myeloma America Support
8 years ago
Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
karenmarie
in
CLL Support
8 years ago
Stem cell breakthrough - using fat cells to create human multipotent stem cells to regenerate body parts
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
AussieNeil
Partner
in
CLL Support
8 years ago
Aitl
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Kvick
in
LGBT Cancer Community
8 years ago
Living with Metastatic Prostate Cancer
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
My story starts with a colonoscopy in 2008. A small lump was discovered on my prostate so I went to an Urologist who recommended a biopsy. My PSA at the time was 2.1. At that time I did what the doctor ordered. The biopsy was perform in his office and was extremely painful to me. I do believe that
skateguy
in
Advanced Prostate Cancer
8 years ago
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