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New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Judigardener
in
PMRGCAuk
8 years ago
Books on PMR & GCA
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
jinasc
in
PMRGCAuk
8 years ago
NHS public consultation on Tocilizumab in GCA
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
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High cortisol in evening yet exhausted anyone know what is going on ? blood level analysis and help required
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
I have Hashimotos and have just got the results of my cortisol test it states that my first three samples are normal but the one late at night is elevated normal range is 0.83-3.86 mine is 4.91 it says on the private Genova report this suggests adrenal hyperfuction what do I do with this now? Could
spacestar
in
Thyroid UK
8 years ago
Will Oxygen help in the home when suffering from a sickle cell crisis?
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
Will Oxygen help in the home when suffering from a sickle cell crisis? If this is not the case why do S.C sufferers including those who are a carrier of the Gene need extra oxygen when having an operation? Any opinions and answers would be grateful.
cazzera
in
Sickle Cell Society
8 years ago
Causes of GCA?????????
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
Thought others might like to read this which I found when searching for a link between RA and GCA Rheumatoid arthritis and giant cell arteritis linked with solar cycles https://www.sciencedaily.com/releases/2015/06/150615142841.htm
PMRpro
Ambassador
in
PMRGCAuk
8 years ago
B12 result 253, GP has prescribed 50 mcg cyanocobalamin tablets. Methylcobalamine 5000 mcg better?
Title says it all really! Also what is a good make of Vitamin B complex to supplement this?
Title says it all really! Also what is a good make of Vitamin B complex to supplement this?
seamail57
in
Thyroid UK
8 years ago
Pain
After stem cell transplant is the pain less, and does it simply go away for several years?
After stem cell transplant is the pain less, and does it simply go away for several years?
Price918
in
Myeloma America Support
8 years ago
parietal cell antibody test.
My test was positive but an if test not was not done... what does this tell me please??
My test was positive but an if test not was not done... what does this tell me please??
xJJx
in
Pernicious Anaemia Society
8 years ago
Bloood exchange's
I have sickle cell anemia, Am 37, I've had 2 strokes, and i now have blood exchanges every 5 weeks because of the strokes. Does anyone else have blood exchanges? and how are you coping with them?
I have sickle cell anemia, Am 37, I've had 2 strokes, and i now have blood exchanges every 5 weeks because of the strokes. Does anyone else have blood exchanges? and how are you coping with them?
mzdonz
in
Sickle Cell Society
8 years ago
Panorama
Hi Watching panorama where they are treating ms by giving patients chemo then a bone Marrow transplant and rebooting their immune system to before their MS. wouldn't it be wonderful if that could help RA X
Hi Watching panorama where they are treating ms by giving patients chemo then a bone Marrow transplant and rebooting their immune system to before their MS. wouldn't it be wonderful if that could help RA X
allanah
in
NRAS
9 years ago
Dear ENDOTEXT and THYROIDMANAGER READERS
For your interest and information, I just received one of the emails I am subscribed to. For any of you who do not know of these resources, I commend them. Even though we often end up criticising doctors and "big pharma", there is no doubt that what is available here demonstrates that thyroid is an enormously
For your interest and information, I just received one of the emails I am subscribed to. For any of you who do not know of these resources, I commend them. Even though we often end up criticising doctors and "big pharma", there is no doubt that what is available here demonstrates that thyroid is an enormously
helvella
Thyroid UK
in
Thyroid UK
9 years ago
Daughter update
Well i have good news to tell you and that is she is HOME. The Drs. couldnt believe how quickly she has recovered from Stem Cell transplant. She has got to take it easy and rest not do anything. I have to take her for blood tests on Monday so fingers crossed nothing goes wrong. That all i have to tell
Well i have good news to tell you and that is she is HOME. The Drs. couldnt believe how quickly she has recovered from Stem Cell transplant. She has got to take it easy and rest not do anything. I have to take her for blood tests on Monday so fingers crossed nothing goes wrong. That all i have to tell
fastball
in
NRAS
9 years ago
Scientists Studying Sickle Cell Trait
Studying Sickle Cell Trait Condition has killed 9 collegiate football players since 2000, researchers say WebMD News from HealthDay By Robert Preidt HealthDay Reporter THURSDAY, Sept. 18, 2014 (HealthDay News) -- Researchers are trying to learn more about a condition called sickle cell trait, which
Studying Sickle Cell Trait Condition has killed 9 collegiate football players since 2000, researchers say WebMD News from HealthDay By Robert Preidt HealthDay Reporter THURSDAY, Sept. 18, 2014 (HealthDay News) -- Researchers are trying to learn more about a condition called sickle cell trait, which
Wanda61
in
Sickle Cell Society
9 years ago
husbands blood results suggestive of PA?
My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem cell transplant and chemo, has underactive thyroid, sarcoidosis of the lungs, heart attack and by pass surgery. Now he is fatigued, depressed, forgetful and his blood results show B12 at 253 (180-1000) Folate at 4.7 (>4)
My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem cell transplant and chemo, has underactive thyroid, sarcoidosis of the lungs, heart attack and by pass surgery. Now he is fatigued, depressed, forgetful and his blood results show B12 at 253 (180-1000) Folate at 4.7 (>4)
gillsie
in
Pernicious Anaemia Society
9 years ago
Hastings Meet up
After a great start in November and December the Hastings group is looking forward to a successful 2016. If you would like to join us at a meeting please let us know. If you know of others in East Sussex or if you are visiting Hastings and would like to meet with others who have polymyalgia rheumatica
After a great start in November and December the Hastings group is looking forward to a successful 2016. If you would like to join us at a meeting please let us know. If you know of others in East Sussex or if you are visiting Hastings and would like to meet with others who have polymyalgia rheumatica
pennyw
Administrator
in
PMRGCAuk
9 years ago
I had a few questions
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
Jasonfaram17
in
Sickle Cell Society
9 years ago
Some Statistics regarding Large Vessel Vasculitis
Some statstics came through to us this morning so thought I would share them, but please do not shoot the messenger, I am just passing them on. There is estimated to be 1 new case of TAK (Takayasu Arteritis ) per million here in Europe per year. Average age of onset is 23 years. 50% of those diagnosed
Some statstics came through to us this morning so thought I would share them, but please do not shoot the messenger, I am just passing them on. There is estimated to be 1 new case of TAK (Takayasu Arteritis ) per million here in Europe per year. Average age of onset is 23 years. 50% of those diagnosed
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
any advice on prednisolone for kids...
My 9 year old has ITP since he was one. So far no medication ,now at count of 7 heamatologist satrted giving predisolone, Im not sure if its helpful. I want to know what side effect it can cause. I've been told that bone marrow transplant is the only solution to this condition. I,m an Asian working
My 9 year old has ITP since he was one. So far no medication ,now at count of 7 heamatologist satrted giving predisolone, Im not sure if its helpful. I want to know what side effect it can cause. I've been told that bone marrow transplant is the only solution to this condition. I,m an Asian working
S38abcd
in
ITP Support Association
9 years ago
Stem cell transplant
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Typicalmommy
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
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