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Pins and needles after b12
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
kel226
in
Pernicious Anaemia Society
8 years ago
Professor Dasgupta on video
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
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No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
POSITIVE Gastric Parietal Cell AB/ Low Methylmalonic acid and Homocysteine.
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
My rheumatologist looked at my b12 levels last year along with some other tests and diagnosed me with PA. My family doctor disagrees because my b12 was at 319 and he says that is within normal ranges. I do test positive for the gastric parietal cell antibody 35.1 but he said my Methylmalonic acid
Tigerlilly81
in
Pernicious Anaemia Society
8 years ago
My Myeloma
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
offthecush
in
Myeloma America Support
8 years ago
End of an Era (July 7, 2016)
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Not understanding
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
I'm 46yrs. Old. I just got a test done for Sickle Cells. The doctor's assistance called to tell me first that I tested positive for Sickle Cell, then called me back to tell I shouldn't worry it's just might be the trait. I've been in pain all my adult life. I have yellow eyes, have chronic pain daily
Maurethiahollins
in
Sickle Cell Society
8 years ago
Need a bit of cheering up
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
knoxie42
in
My Ovacome
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
I’m new here ...just diagnosed with AMN
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
zane_a
in
AMN EASIER
8 years ago
Giant Cell Arteritis and Mycophenolate
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new consultant was keen for me to have a scan to see how the inflammation was behaving however that then really set me back. I had to come off my drugs
Stkeyna
in
PMRGCAuk
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have tocilizumab. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Jane65
in
MPN Voice
8 years ago
Myeloma relapse.
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
MargaretG
in
Myeloma America Support
8 years ago
Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
AussieNeil
Partner
in
CLL Support
8 years ago
MPN Voice Nottingham Support Group - Wednesday 15th June - speaker is the bone marrow transplant nurse specialist
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
Mazcd
MPNVoice
in
MPN Voice
8 years ago
How Often Should I Have Checkups Post-Stem Cell Transplant?
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
mcints
in
Myeloma America Support
8 years ago
Circulating Tumor Cells Linked to Worse Prognosis (BREASTCANCER.ORG)...
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Dil2310
in
Breast Cancer India
8 years ago
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