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SPINAL CORD INJURY long term appointments
As someone with multiple disabilities including
Spinal
Cord
Injuries
- I’m a long term patient. As I have got older my condition has become more complicated but the appointments that used to be -in person, hands-on, have now, (despite the NHS is open ) gon online or by phone.
As someone with multiple disabilities including
Spinal
Cord
Injuries
- I’m a long term patient. As I have got older my condition has become more complicated but the appointments that used to be -in person, hands-on, have now, (despite the NHS is open ) gon online or by phone.
MSTKing
in
Pain Concern
9 months ago
Implanted spinal cord stimululator
Has anyone found an implanted spinal cord stimulator helpful for failed back surgery?
Has anyone found an implanted spinal cord stimulator helpful for failed back surgery?
Jeaniem130
in
Pain Concern
26 days ago
Chemotherapy Induced Peripheral Neuropathy
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
Dastardly
in
Advanced Prostate Cancer
1 month ago
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Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
9 months ago
Pain Relief
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Davewm
in
Pain Concern
10 months ago
Spinal Cord Stimulation & PD
Interesting article. https://spectrum.ieee.org/parkinsons-disease
Interesting article. https://spectrum.ieee.org/parkinsons-disease
House2
in
Cure Parkinson's
10 months ago
Spondylolithesis
Does anyone have Spondilolisthesis whats the best medal I've tried loads none work on list for spinal fusion
Does anyone have Spondilolisthesis whats the best medal I've tried loads none work on list for spinal fusion
Djemima
in
Fibromyalgia Action UK
7 days ago
Rise in PSA and extra Eligard Injection
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
Brightman
in
Advanced Prostate Cancer
27 days ago
Spinal Fusion at 9 weeks
This is my scar at the 9 week mark after spinal fusion of 7 vertebrae. There are 2 rods and 12 screws in my back to help stabilise my vertebrae after prostate cancer caused a compression fracture. I have discontinued most of the pain medication. I dropped to a 5 microgram Norspan patch yesterday after
This is my scar at the 9 week mark after spinal fusion of 7 vertebrae. There are 2 rods and 12 screws in my back to help stabilise my vertebrae after prostate cancer caused a compression fracture. I have discontinued most of the pain medication. I dropped to a 5 microgram Norspan patch yesterday after
Brightman
in
Pain Concern
2 months ago
lab work 8 weeks post iron infusion - advice?
I had an infusion of Injectafer 750 mg on April 29 and had labs drawn exactly 8 weeks later per advice or information on this lifeline :) Now I would truly appreciate hearing some fellow RLS sufferers thoughts and advice on iron infusion and medications. I’m currently still symptomatic but much improved
I had an infusion of Injectafer 750 mg on April 29 and had labs drawn exactly 8 weeks later per advice or information on this lifeline :) Now I would truly appreciate hearing some fellow RLS sufferers thoughts and advice on iron infusion and medications. I’m currently still symptomatic but much improved
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
Hi, My names Jim
Hi, My name is Jim, when i was 17 I had a car accident and the result was 2 x spinal fusion, second fusion involved replacing discs , new disc rubbed on aorta causing Aortic aneurism was only 22 at the time now about to turn 42, and PTSD has finally kicked in. Need another fusion as back is buggered
Hi, My name is Jim, when i was 17 I had a car accident and the result was 2 x spinal fusion, second fusion involved replacing discs , new disc rubbed on aorta causing Aortic aneurism was only 22 at the time now about to turn 42, and PTSD has finally kicked in. Need another fusion as back is buggered
Hidden
in
Heart Valve Voice
4 months ago
My Back prproblems starstarted in the Military
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
Xwing
in
Pain Concern
4 months ago
My back
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
Xwing
in
Osteoporosis Support
4 months ago
Post spinal fusion surgery
2 weeks tomorrow after surgery to fuse 7 vertebrae after Prostate Cancer spread to my T 10. Radiation caused a compression fracture and weakness in nearby vertebrae. Just wondering if anyone else has had this done. Pain medication Palexia and Oxyndone have hardly impacted. Spinal surgeon says pain should
2 weeks tomorrow after surgery to fuse 7 vertebrae after Prostate Cancer spread to my T 10. Radiation caused a compression fracture and weakness in nearby vertebrae. Just wondering if anyone else has had this done. Pain medication Palexia and Oxyndone have hardly impacted. Spinal surgeon says pain should
Brightman
in
Pain Concern
4 months ago
Pain Clinics
1. I attended my 1st PC in 2012 (Cambridge) following spinal decompression which was successful but I also had fibromyalgia. 2. Transferred to 2nd Peterborough PC due to travel problems. Sat through excruciatingly painful group sessions relating to the Biopsychosocial Model and Mindfulness. Course
1. I attended my 1st PC in 2012 (Cambridge) following spinal decompression which was successful but I also had fibromyalgia. 2. Transferred to 2nd Peterborough PC due to travel problems. Sat through excruciatingly painful group sessions relating to the Biopsychosocial Model and Mindfulness. Course
Blackwitch
in
Pain Concern
4 months ago
Ribocyclib dose
Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic breast cancer. She was diagnosed this January and had to have a spinal fusion ( spreading there ) to her bone and liver. She is currently on a
Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic breast cancer. She was diagnosed this January and had to have a spinal fusion ( spreading there ) to her bone and liver. She is currently on a
Stefftrees
in
SHARE Metastatic Breast Cancer
5 months ago
Surgery Today!
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
Kati66
in
NRAS
5 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
7 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
7 months ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
7 months ago
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