Experiences with

Soliris

Hi my GP awhile ago prescribed Buscopan or Mebeveribe to take for bloating I’m waiting for a colonoscopy as I’ve got suspected IBD. I wondered do either of these drugs make Chrons or Colitis worse at all? I noticed sometimes they make me feel abit worse. Thanks

We all know of the problems stress can cause for ibs. I have also noticed when ever I do any gardening,moving pots of plants or bending over to weed. Results in spasm pain for 2-3 days.Wonder if others have found the same. Thankfully buscopan helps.

Hi fibbers. We all know smoking cigarettes is bad for your health - certainly for your heart health and Afib. I'm sure you'll agree. I quit smoking by using a vape which is said to be 95% safer than smoking. However, I have found a better option which means I can quit vaping - airplane mode patches

Hi, has anyone been prescribed Budenofalk 2mg rectal foam for Ulcerative colitis? I have been given this at my hospital appt to help with the inflammation/ diarrhoea/ bleeding. Just wondering if it caused anyone any side effects or if it helped in anyway? I have a 4 week supply but I have concerns with

Hi, I am still learning about bronchiectasis and how to treat and manage it to minimise deterioration. My gp was happy to prescribe carbocysteine and Mucoclear and I have found this helps loosen the phlegm in my lungs so I can clear them to some extent. I am current taking just 4 carbocysteine per day

when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with

I have a severe proctitis. The Dr. prescribed me with a Prednisolone suppositories 5mg twice daily plus started oral Mesalazine as Octasa 2.4g/day. I’m on my 3rd week of the medication. But is not working properly. I’m taking Octasa in the morning before breakfast (I tried to take it before dinner

Hi everyone. This is the first time asking a question on here so forgive me if I ramble a bit. I had my first injection of adalimumab for my R.A on Tuesday and it has really knocked me. I feel so tired and queasy and slept most of yesterday and all last night till 10 this morning. Still not feeling

Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?

Does anyone know an alternative medication for Questran as there is now unavailability due to supply problems? I am having a bad attack of Bile Acid Malabsorption at the moment and am virtually housebound by it! Any help would be much appreciated 🙏

Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5

Anyone out there struggling with tenesmus? Been experiencing urgency for 3 months virtually nonstop. Only a couple of days relief here and there. Also it gets worse whenever I walk or stand, if I sit all day I am usually fine. Also seems to get worse after a shower or after bm. Tried everything from

Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,

Hello all, I'm wondering if anyone here has used Predsol 5mg suppositories for 3 months? My Gastro said it was ok to use them that long . . . I'm wondering if I need to taper off (for eg, use every second day for a few weeks?) The gastro was not happy with me last visit as my bleeding had come back

Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help

Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great

It’s been 16 months since my cryoablation and my FitBit has logged a few incidences of bradypnea and tachypnea. The charts also show pauses like I didn’t take a breath at all overnight. I am still being monitored by an implantable loop monitor but just wondering if anyone is familiar with this and is

Yep it's colitis following colonoscopy biopsy results. They are of the impression it is microscopic colitis (associated to auto immune diseases) but not 100% sure. So the handle is unspecified colitis which is a common saying. Treatment is steroids. It's been a long journey after being told for years

Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....

Hi there, can anyone tell me if it's ok to take colpermin and buscopan together? I am already taking colpermin which I think is helping a bit, but still getting cramps and bloating although maybe not as often as I was Thankyou for any helpful ifo.