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Iron Deficiency Without Anemia (IDWA)
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
Rexz
in
Pernicious Anaemia Society
1 year ago
Yawning so much! 🥱
Hello all, Quick question for you to help with if possible. Why, oh why do I yawn 🥱 upon doing any exercise? My Wk 1 R2 run was interspersed with so many yawns! But then I remembered I yawn if I ever go for a walk with steep inclines and yawn when I climb the hospital stairs at work. I do
Hello all, Quick question for you to help with if possible. Why, oh why do I yawn 🥱 upon doing any exercise? My Wk 1 R2 run was interspersed with so many yawns! But then I remembered I yawn if I ever go for a walk with steep inclines and yawn when I climb the hospital stairs at work. I do
Wonderland1
in
Couch to 5K
1 year ago
Any thought as to why ? ? ?
I have just received my blood results taken last week when I saw the endocrinologist..... Mean cell heamoglobin conc, blood 313 g/L Low 😗 I cant help but wonder why considering I am prescribed folic acid plus I take gentle iron. I had a full blood count done when I saw the reumatologist but as
I have just received my blood results taken last week when I saw the endocrinologist..... Mean cell heamoglobin conc, blood 313 g/L Low 😗 I cant help but wonder why considering I am prescribed folic acid plus I take gentle iron. I had a full blood count done when I saw the reumatologist but as
Jillymo
in
Pernicious Anaemia Society
1 year ago
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Could I have Bowel Endometriosis?
Hello,I’m wondering if I have endometriosis but just not sure! I’ve been looking at past discussions here and a lot of the comments around bowel endometriosis are really relatable.After struggling with feeling really tired, light headed and often nauseous/ breathless plus increased period pain (mainly
Hello,I’m wondering if I have endometriosis but just not sure! I’ve been looking at past discussions here and a lot of the comments around bowel endometriosis are really relatable.After struggling with feeling really tired, light headed and often nauseous/ breathless plus increased period pain (mainly
Rachou
in
Endometriosis UK
1 year ago
New blood tests - advice welcome
I have just re-tested after 9 weeks of 69mg ferrous fumarate, 1 taken alternate days as suggested here, Thorne Basic B & Magnesium supplementation in hope of improving T4/T3 conversion. I'm on 125g Levothyroxine. I also take Vit D3 w K2 7000, Thorne Basic B, Magnesium 400mg/day, Zinc, Copper. Selenium
I have just re-tested after 9 weeks of 69mg ferrous fumarate, 1 taken alternate days as suggested here, Thorne Basic B & Magnesium supplementation in hope of improving T4/T3 conversion. I'm on 125g Levothyroxine. I also take Vit D3 w K2 7000, Thorne Basic B, Magnesium 400mg/day, Zinc, Copper. Selenium
HotelHurricaine
in
Thyroid UK
1 year ago
What do these lab results suggest to you please
Later today husband will be speaking to GP regarding latest TFTs which have been erratic this past 3 years. He’s not taking any thyroid replacement yet but I’m expecting - or should I say hoping - GP is going to prescribe something based on over range TSH, although I know they often wait for it to climb
Later today husband will be speaking to GP regarding latest TFTs which have been erratic this past 3 years. He’s not taking any thyroid replacement yet but I’m expecting - or should I say hoping - GP is going to prescribe something based on over range TSH, although I know they often wait for it to climb
Noelnoel
in
Thyroid UK
1 year ago
Cerelle for Adenomyesis?
Hi, I’ve recently been diagnosed with adenomyeosis, I was misdiagnosed with a fibroid but they’re pretty sure it’s adenomyeosis now. My main symptom is unmanageable periods getting worse and worse, they are so heavy that I tend not to leave the house during this time but of course some days I have to
Hi, I’ve recently been diagnosed with adenomyeosis, I was misdiagnosed with a fibroid but they’re pretty sure it’s adenomyeosis now. My main symptom is unmanageable periods getting worse and worse, they are so heavy that I tend not to leave the house during this time but of course some days I have to
Rainarosemary
in
Endometriosis UK
1 year ago
Sobriety and preparing withdrawal from Pramipexole
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
sigurdur
in
Restless Legs Syndrome
1 year ago
ferritin and Levo dose
Guidance please. GP did a blood test including iron as was feeling tired, cold and shaky. Currently on 100 Levo. I never have changed brand and always do a test 9am without medication within 24 hrs beforehand etc. These are results ; no t3 tested for some reason but historically has always been in range
Guidance please. GP did a blood test including iron as was feeling tired, cold and shaky. Currently on 100 Levo. I never have changed brand and always do a test 9am without medication within 24 hrs beforehand etc. These are results ; no t3 tested for some reason but historically has always been in range
Hopeful129
in
Thyroid UK
1 year ago
T3 or Hydrocortisone
I’ve historically had problems raising my levo dose, as soon as I get to 50, I start to feel dreadful. I’ve been experimenting with hydrocortisone at 2.5 and 5mg doses alongside the levo. I stopped the HC for a week to see if it made a difference and re-started again yesterday at 5mg. OH BOY! There’s
I’ve historically had problems raising my levo dose, as soon as I get to 50, I start to feel dreadful. I’ve been experimenting with hydrocortisone at 2.5 and 5mg doses alongside the levo. I stopped the HC for a week to see if it made a difference and re-started again yesterday at 5mg. OH BOY! There’s
Jamima
in
Thyroid UK
1 year ago
Looking for advice
Hello RLS tribe, I'm looking for advice on medication I take for rls, (I've had all the iron blood work done and am currently high in brain iron stores) I take 20mg of iron biglycinate daily to keep it high, along with magnesium malate, omega oils, vit c & b vitamins, currently what gives me a decent
Hello RLS tribe, I'm looking for advice on medication I take for rls, (I've had all the iron blood work done and am currently high in brain iron stores) I take 20mg of iron biglycinate daily to keep it high, along with magnesium malate, omega oils, vit c & b vitamins, currently what gives me a decent
Loopylegs
in
Restless Legs Syndrome
1 year ago
Retested: low D & B12, high ferritin
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
Insomania
in
Thyroid UK
1 year ago
Latest Blood Test Results
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
nimble
in
Thyroid UK
1 year ago
WEEKLY CHAT 24-30 APRIL 🫖☕️💬
Hello runners. How is everyone? Well, we’ve got to kick off with the London Marathon! Did you watch it? I don’t know about you but once that music starts I always a feel a bit emotional. So many inspiring stories of incredible achievement. Some disappointments too of course ☹️ We had three amazing
Hello runners. How is everyone? Well, we’ve got to kick off with the London Marathon! Did you watch it? I don’t know about you but once that music starts I always a feel a bit emotional. So many inspiring stories of incredible achievement. Some disappointments too of course ☹️ We had three amazing
Irishprincess
Administrator
in
Fun Beyond 10K & Race Support
1 year ago
off Pramipexole
It took me 6 months to come off Pramipexole very slowly! Breast cancer interrupted things and I paused my reduction programme whilst I had a mastectomy. After surgery I had some respite from my restless legs as my ferretin levels increased which is normal after surgery. They are dropping back now.
It took me 6 months to come off Pramipexole very slowly! Breast cancer interrupted things and I paused my reduction programme whilst I had a mastectomy. After surgery I had some respite from my restless legs as my ferretin levels increased which is normal after surgery. They are dropping back now.
RestlessMe
in
Restless Legs Syndrome
1 year ago
My Results - Help please! 🤷♀️
Hi Everyone. So here I am on my health journey with some results. These were the Blue Horizon Pernicious Anaemia Profile taken 4 weeks ago. I had no supplements at all for 6 weeks prior. I SI 0.7mg B12 Hydroxy 6 weeks before. My plan, following very frustrating GP appointments has been to have
Hi Everyone. So here I am on my health journey with some results. These were the Blue Horizon Pernicious Anaemia Profile taken 4 weeks ago. I had no supplements at all for 6 weeks prior. I SI 0.7mg B12 Hydroxy 6 weeks before. My plan, following very frustrating GP appointments has been to have
KBird01
in
Pernicious Anaemia Society
1 year ago
8 week bloodtest
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
catpurple7
in
Thyroid UK
1 year ago
Dad's results-help please in interpreting them for me!
My Dad had his TSH done only again on Sunday 2/7/23; his TSH came back over 2.0. He took the meds at 3.30am early saturday Morning and had the test done at 8.30am on Sunday. They were surprisingly lower than he test he had done in April when his TSH was 5.19 after taking his meds! My Dad thinks he
My Dad had his TSH done only again on Sunday 2/7/23; his TSH came back over 2.0. He took the meds at 3.30am early saturday Morning and had the test done at 8.30am on Sunday. They were surprisingly lower than he test he had done in April when his TSH was 5.19 after taking his meds! My Dad thinks he
Lavender-Blue
in
Thyroid UK
1 year ago
RLS and insomnia
so I’ve never found relief from RL despite meds, iron infusion and numerous other interventions including CBD . I take 1800 mg of Gabapentin daily( 800 early evening and 1600 at night) plus Dilaudid 2 mg at night and Trazadone 100 mg at night. I continue to be up at least twice as they over ride whatever
so I’ve never found relief from RL despite meds, iron infusion and numerous other interventions including CBD . I take 1800 mg of Gabapentin daily( 800 early evening and 1600 at night) plus Dilaudid 2 mg at night and Trazadone 100 mg at night. I continue to be up at least twice as they over ride whatever
Muftah36
in
Restless Legs Syndrome
1 year ago
Shot in the Dark
Can anyone advise what these results mean please? I am not on Thyroid meds but feel something is very off, I’m in perimenopause also. These results were 7 months ago. I’m losing hair, shaking inside, cold all the time, weight loss. I’m on HRT. I had iron deficient anaemia in 2020. Feel like I’m going
Can anyone advise what these results mean please? I am not on Thyroid meds but feel something is very off, I’m in perimenopause also. These results were 7 months ago. I’m losing hair, shaking inside, cold all the time, weight loss. I’m on HRT. I had iron deficient anaemia in 2020. Feel like I’m going
marillo
in
Thyroid UK
8 months ago
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