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Altruist
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
Altruist
in
Restless Legs Syndrome
1 year ago
Coordinating pill times help please
my list is: Thyroxine Vit D +Vit K2 (usually take this with a meal)
Solgar
Gentle
Iron
20mg Bioselenium (I think this contains zinc) recommended by Dr. Thorne B complex Probiotic.
my list is: Thyroxine Vit D +Vit K2 (usually take this with a meal)
Solgar
Gentle
Iron
20mg Bioselenium (I think this contains zinc) recommended by Dr. Thorne B complex Probiotic.
Joant24
in
Thyroid UK
2 years ago
Desperate.
Hi,I've stopped Pramipexole in the last few months which I'm happy about but and this is a BIG but,I've been taking Pregabalin without any ease at all,I'm at my wit's end,what do I do now and what do I take.my RLS is never ending, every night and sometimes during the day,really not sure if I can continue
Hi,I've stopped Pramipexole in the last few months which I'm happy about but and this is a BIG but,I've been taking Pregabalin without any ease at all,I'm at my wit's end,what do I do now and what do I take.my RLS is never ending, every night and sometimes during the day,really not sure if I can continue
Whymelord
in
Restless Legs Syndrome
1 year ago
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My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
chilblanes in summer? Help
hi everyone I have autoimmune thyroid disorder and receive t3 from my doc for it. It is well managed and I’m about 85% through the range for free t3. My t4 is none existent and so is tsh. I’ve been managing my levels well for a few years now. I’ve been getting bad chilblanes for the past few months
hi everyone I have autoimmune thyroid disorder and receive t3 from my doc for it. It is well managed and I’m about 85% through the range for free t3. My t4 is none existent and so is tsh. I’ve been managing my levels well for a few years now. I’ve been getting bad chilblanes for the past few months
Frances0008
in
Thyroid UK
1 year ago
New blood results - advice on whether to speak to GP?
Good afternoon everyone, I posted back in November (https://healthunlocked.com/thyroiduk/posts/150229278/blood-results-low-ft4-normal-tsh-warrants-gp-review) and received some really helpful advice, so I thought I’d post again for your opinions with some new blood results. Blood test taken at 08:50
Good afternoon everyone, I posted back in November (https://healthunlocked.com/thyroiduk/posts/150229278/blood-results-low-ft4-normal-tsh-warrants-gp-review) and received some really helpful advice, so I thought I’d post again for your opinions with some new blood results. Blood test taken at 08:50
BeeHappi23
in
Thyroid UK
7 months ago
Ferrous Fumerate and pre-existing Reflux
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Hellio
in
Restless Legs Syndrome
1 year ago
'Interim' GP blood results and trying to draw conclusions
Hello, A GP I saw recently (long story but not same one who gave me increase in Levo) ordered bloods. I have been on 100 mcg of Accord for 4 weeks, so wasn't planning to test for another month. The following were tested, I've included the same NHS results for comparison earlier this year.: NHS
Hello, A GP I saw recently (long story but not same one who gave me increase in Levo) ordered bloods. I have been on 100 mcg of Accord for 4 weeks, so wasn't planning to test for another month. The following were tested, I've included the same NHS results for comparison earlier this year.: NHS
Sneedle
in
Thyroid UK
1 year ago
Milestones.
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
crying out loud for help..
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
Divii
in
Cure Parkinson's
1 year ago
it’s me again kowbie
just been trying to talk about vitamins to the dr , but they don’t listen , she said all my vitamins were fine so I said that the folic had gone down again serum iron was quite low and before I could say much more, she said all were fine then wanted me to come down on thyroxine because of the tsh ,
just been trying to talk about vitamins to the dr , but they don’t listen , she said all my vitamins were fine so I said that the folic had gone down again serum iron was quite low and before I could say much more, she said all were fine then wanted me to come down on thyroxine because of the tsh ,
Kowbie
in
Thyroid UK
1 year ago
22 year old Female, Low Oestrogen, PCOS? Low T4
Hi everyone, I would like your advice over my daughters blood tests please. She has an appointment with a Hormone Specialist in 10 days. Is there any specific information she needs to bring to show the specialist? She has very thin hair on the top of her head and still losing it. Excess hair
Hi everyone, I would like your advice over my daughters blood tests please. She has an appointment with a Hormone Specialist in 10 days. Is there any specific information she needs to bring to show the specialist? She has very thin hair on the top of her head and still losing it. Excess hair
Bubydizer
in
Thyroid UK
1 year ago
Low ferritin
Hello everyone , wondered if anybody could shed any light? I have had low ferritin levels for the last couple of blood tests and I'm due to speak to my GP on Wednesday next week. I am taking liquid iron as a supplement and have sle hypermobility and suffer with gastro issues... Has anyone been able
Hello everyone , wondered if anybody could shed any light? I have had low ferritin levels for the last couple of blood tests and I'm due to speak to my GP on Wednesday next week. I am taking liquid iron as a supplement and have sle hypermobility and suffer with gastro issues... Has anyone been able
sunshine16
in
LUPUS UK
1 year ago
Gentle iron
Hi everone,Following on from my recent posts regarding iron supplements, I would like to let you know that I have doubled my iron intake in the last couple of days and it has helped my RLS . It broke through at 5am, but from 9pm until the breakthrough at 5am, I was mostly free from symptoms. I know I
Hi everone,Following on from my recent posts regarding iron supplements, I would like to let you know that I have doubled my iron intake in the last couple of days and it has helped my RLS . It broke through at 5am, but from 9pm until the breakthrough at 5am, I was mostly free from symptoms. I know I
pennygates
in
Restless Legs Syndrome
1 year ago
Melatonin
I started taking melatonin a month ago to try and improve my sleep. At the time my rls symptoms had totally stopped following an iron infusion. However, prior to actually starting the melatonin, they came back mildly. Having been on the melatonin for a month, they seem worse and rls is listed as a
I started taking melatonin a month ago to try and improve my sleep. At the time my rls symptoms had totally stopped following an iron infusion. However, prior to actually starting the melatonin, they came back mildly. Having been on the melatonin for a month, they seem worse and rls is listed as a
Edengirl58
in
Restless Legs Syndrome
1 year ago
High Ferritin & more weird symptoms
Hello dear people, A month ago I was having weird heart-ish chest pain, but the EKGs and ER bloodwork did not indicate heart problems, so I've been trying to figure out what's going on. I got two rounds of blood work. Almost everything is in range, but notably, my ferritin was high! 409 (range 15
Hello dear people, A month ago I was having weird heart-ish chest pain, but the EKGs and ER bloodwork did not indicate heart problems, so I've been trying to figure out what's going on. I got two rounds of blood work. Almost everything is in range, but notably, my ferritin was high! 409 (range 15
LostinHeadSpace
in
Thyroid UK
1 year ago
Ferratin level
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
fiftyone
in
Thyroid UK
1 year ago
can anyone PM me a lovely thyroid specialist that will look at the whole picture - bucks/london/online
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low iron
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low iron
Laundry
in
Thyroid UK
1 year ago
can anyone recommend lovely thyroid specialist bucks/hearts/London area/zoom
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low
after my third horrible gp appointment I need help. Here is the full story… been exhausted for over a decade, cold, tinnitus, tennis elbow, nerve pain, back ache, low, down, dry skin, upper arm swelling etc etc. gps always said iron fine, TSH fine not much else. Private well woman test showed low
Laundry
in
Thyroid UK
1 year ago
Clonazepam instead of Pregabalin?
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
I have just had a telephone appointment with a Neurologist which lasted all of 90 seconds, part of which he spent looking through my notes and came to the conclusion that I should try Clonazepam instead of Pregabalin for 6 months. He wasn't interested in listening to anything I had to say about iron
oldfidgetlegs
in
Restless Legs Syndrome
1 year ago
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