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advice about intravenous iron
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Cure Parkinson's
12 days ago
advice about iron infusion
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Pernicious Anaemia Society
12 days ago
RLS in legs and arms
RLS in legs and arms for 3 years. Tried Mirapex, Gabapentin, Pregabalin which all made me feel horrible so discontinued. Tried Acupuncture, Homeopathic, Naturopathid remedies. All seemed to work for awhile then not. Yoga helps as does walking at night when I cannot sleep because of the RLS. Only get
RLS in legs and arms for 3 years. Tried Mirapex, Gabapentin, Pregabalin which all made me feel horrible so discontinued. Tried Acupuncture, Homeopathic, Naturopathid remedies. All seemed to work for awhile then not. Yoga helps as does walking at night when I cannot sleep because of the RLS. Only get
Hidden
in
Restless Legs Syndrome
13 days ago
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iv Iron
hey everyone. I’m in Thailand and I agave access to a hospital that can do the IV iron treatment. I’m excited to try. But can someone walk me through the inns and outs of this? I’m not sure how high to set my bar of expectations and I’m also unclear about the guidelines. What levels should I have and
hey everyone. I’m in Thailand and I agave access to a hospital that can do the IV iron treatment. I’m excited to try. But can someone walk me through the inns and outs of this? I’m not sure how high to set my bar of expectations and I’m also unclear about the guidelines. What levels should I have and
Jrskyhook32
in
Restless Legs Syndrome
13 days ago
Horizant and Gabapentin
My doctor just switched me to Horizant after I have been on Gabapentin 1800 mg for over 20 years. I just recently weaned off Requip. My doctor did not give me any instructions on weaning off Gabapentin,, and I cannot find any information regarding
if, or how
I should do this. I feel like I am
My doctor just switched me to Horizant after I have been on Gabapentin 1800 mg for over 20 years. I just recently weaned off Requip. My doctor did not give me any instructions on weaning off Gabapentin,, and I cannot find any information regarding
if, or how
I should do this. I feel like I am
Littlegran
in
Restless Legs Syndrome
13 days ago
hypothyroidism - problems with GP
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Oatlove
in
Thyroid UK
13 days ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
14 days ago
Interested in IBS symptoms
I’m trying to learn more about IBS as my GP has suggested this is the cause of some problems I’ve been having but it doesn’t sound typical to me. I’d love to hear from anyone who has something similar & can set my mind at rest that there’s nothing more sinister going on. It may be that I’ve just misunderstood
I’m trying to learn more about IBS as my GP has suggested this is the cause of some problems I’ve been having but it doesn’t sound typical to me. I’d love to hear from anyone who has something similar & can set my mind at rest that there’s nothing more sinister going on. It may be that I’ve just misunderstood
MidWest104
in
IBS Network
14 days ago
Serum ferritin too high?
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Krysagnes
in
Pernicious Anaemia Society
14 days ago
Face to face consultation
I was diagnosed with PV in Dec 2015. I used to be quite active on this site and received so much reassurance and good advice in those early confusing days. Since my husband's death in Sept 2020, I have not been active on here, however I read posts occasionally. I have not had a face to face consultation
I was diagnosed with PV in Dec 2015. I used to be quite active on this site and received so much reassurance and good advice in those early confusing days. Since my husband's death in Sept 2020, I have not been active on here, however I read posts occasionally. I have not had a face to face consultation
Fionnuaghla
in
MPN Voice
15 days ago
found a good neurologist
Hi all I’m Back again… Just thought I’d let you know I have found an understanding neurologist who doesn’t blame everything on FND. I have fibromyalgia too so he asked me how I was feeling on that day. I said the fatigue took over my life and that I had right side pain often feeling sick and dizzy.
Hi all I’m Back again… Just thought I’d let you know I have found an understanding neurologist who doesn’t blame everything on FND. I have fibromyalgia too so he asked me how I was feeling on that day. I said the fatigue took over my life and that I had right side pain often feeling sick and dizzy.
Loobyloo1966
in
FND Action
15 days ago
Could a member please explain the T3 feedback loop?
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
BlueGreenHealer
in
Thyroid UK
15 days ago
Thoughts on bloods please
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
FoxyTed
in
Thyroid UK
15 days ago
Low haemoglobin/bacteria infection
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Paulo1976
in
The Roy Castle Lung Cancer Foundation
16 days ago
Low haemoglobin/ bacteria infection
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Paulo1976
in
Lung Cancer Support
16 days ago
Low haemoglobin and bacteria infection
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Hey everyone, hope we are all well. I am a regular on here and thank everyone who has took the time to comment on my previous posts. Firstly, my mum has agreed to radiotherapy and is going for the 20 sessions. She is determined to face this head on.... On another note, since chemo, mum has been really
Paulo1976
in
Lung Conditions Community Forum
16 days ago
Starting levothyroxine- which brand?
Hi, I have been asked by the end to start on 75mcg Levothyroxine today. I am gluten free and have reactive hypoglycaemia so avoid sugar/ carbs; is there a particular brand of Levothyroxine that might be good for me? I also take a bunch of supplements; Vit D, B complex, selenium, magnesium, iron;
Hi, I have been asked by the end to start on 75mcg Levothyroxine today. I am gluten free and have reactive hypoglycaemia so avoid sugar/ carbs; is there a particular brand of Levothyroxine that might be good for me? I also take a bunch of supplements; Vit D, B complex, selenium, magnesium, iron;
RuthNelson
in
Thyroid UK
16 days ago
Thyroid Test Results
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
Eccleston
in
Thyroid UK
16 days ago
Sleeplessness
Hi, I posted a while ago and since have been medicated with 200mg Pregabalin and iron ferritin at 134…. it isn’t helping. I thought it would but I am up most nights….. I feel that if Pregabalin isn’t helping me that I should decrease and come off it altogether but I really don’t know what to do? Can
Hi, I posted a while ago and since have been medicated with 200mg Pregabalin and iron ferritin at 134…. it isn’t helping. I thought it would but I am up most nights….. I feel that if Pregabalin isn’t helping me that I should decrease and come off it altogether but I really don’t know what to do? Can
VAF61
in
Restless Legs Syndrome
16 days ago
When to take Medication, Vits and HRT?
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Lavender-Blue
in
Thyroid UK
17 days ago
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