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Sodium hyaluronate eye drops
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Improvement seen after giving Vitamin B2 (Riboflavin)
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
John_morris71
in
Cure Parkinson's
3 years ago
IBS-C & Sibo
I’ve got IBS-C and have recently been diagnosed with Sibo , I’ve had a 2 week course of antibiotics, Rifaximin, but they’ve done nothing , in fact I feel worse now , my stomach is in turmoil, so I’m assuming I still have it , but I haven’t been re tested yet , so I can’t be sure . I gather from my consultant
I’ve got IBS-C and have recently been diagnosed with Sibo , I’ve had a 2 week course of antibiotics, Rifaximin, but they’ve done nothing , in fact I feel worse now , my stomach is in turmoil, so I’m assuming I still have it , but I haven’t been re tested yet , so I can’t be sure . I gather from my consultant
Gardenlover2020
in
IBS Network
3 years ago
Down to 6mg but feeling it! Shall I persevere?
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then I’ve gone down to 6mg which I’ve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
MiloCollie
in
PMRGCAuk
3 years ago
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Radium 223
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Omc64
in
Advanced Prostate Cancer
3 years ago
Second ablation
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
N400033
in
AF Association
3 years ago
Doctor re sodium.
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
prunus
in
PMRGCAuk
3 years ago
Thyroid and Breast implant illness
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
abartme
in
Thyroid UK
3 years ago
Does Glaucoma always spread to other eye?
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
t55ddy
in
Glaucoma UK
3 years ago
Does anyone have a Low sodium level?
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
3WheelWonder
in
AMN EASIER
3 years ago
Will this interfere with my underactive thyroid?
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
TrishG67
in
Thyroid UK
3 years ago
Rapid decline in GFR, getting no answers.
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
MSWwv
in
Kidney Disease
3 years ago
Anyone had RAI or thyroidectomy for recurrent chronic thyroiditis?
Hello all and happy holidays. I don’t expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (don’t I know it- 2 months off work and still waiting for my body
Hello all and happy holidays. I don’t expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (don’t I know it- 2 months off work and still waiting for my body
Hidden
in
Thyroid UK
3 years ago
Sodium levels
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Gcart
in
Thyroid UK
3 years ago
New lens in my glasses when they come. xx
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
sylvi
in
NRAS
3 years ago
JAK2 and TET2
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Does anyone else here have this double mutation? After nearly three years of Pegasys my JAK2 has dropped from over 80% to c. 14% but my TET2 has only dropped from 55% to 40%. Got results of my recent BMB and no change in fibrosis, still ‘an increase in thin reticulin, especially in areas of focal clustering
Paul123456
in
MPN Voice
3 years ago
Abatacept swap from pens to syringes.
Has anyone been told their abatacept pen will be changed to an injection syringe? The rheumatology nurse rang today to inform me that due to a world shortage of abatacept pens the providers, forgotten the new name but they were Health care at Home, will be moving people into normal prefilled syringes
Has anyone been told their abatacept pen will be changed to an injection syringe? The rheumatology nurse rang today to inform me that due to a world shortage of abatacept pens the providers, forgotten the new name but they were Health care at Home, will be moving people into normal prefilled syringes
rounder
in
NRAS
3 years ago
Eye infection every 3-4 Weeks - PA link?
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
I am now having my 4th eye (both eyes) infection in 5 months. I have been using Chloramphenical 0.5% eye drops for 5 days (4 times a day) it gets rid of it but it recurs approx every 3-4 weeks. Contacted the Drs today who arranged for both eyes to be swapped this afternoon. Could this be linked to PA
LJH50
in
Pernicious Anaemia Society
3 years ago
What are your opinions on the case of George Lopez from 2020?
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Could the PD community benefit from such cases? I liked the fact that they used a new type of syringe. "“You can’t teleport cells into a brain,” Schweitzer said. You need a needle that delivers the cells to a precise spot and does so without squeezing them. Yet in some previous cell therapies, “more
Hidden
in
Cure Parkinson's
3 years ago
4th Transfer BFN 💔
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Absolutely broken today after our 4th transfer result. It's also 4 months to the day from our surgery for our MMC in August (transfer #3) 😔 That bright white FRER stick is quite terrifying. I think the next step is to take a look at immunes. I assume I don't need an ERA as we did achieve implantation
Hoop123
in
Fertility Network UK
3 years ago
Can’t figure it all out
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
42108
in
Kidney Disease
3 years ago
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