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I’m back
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
Hi everyone, Sorry I’ve not been around for some time, I’ve been feeling very poorly just lately. I’ve now got a condition called uveitis, I’ve been feeling very ill, unable to eat much and generally unwell. Yesterday due to severe eye pain I went to emergency eye hospital and it turns out I’ve got uveitis
2013mayo
in
PMRGCAuk
3 years ago
The strangest place this 5 and 1/2 year journey has taken me to date.
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
Costarica1961
in
Advanced Prostate Cancer
3 years ago
Accessing Neuropsychology and trauma therapy
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
I’m after recommendations please. So we had a neuropsychology report prepared for the criminal case injuries claim which recommends he needs EMDR trauma therapy for PTSD followed by further neuropsychology before he can consider returning to work. He has been on the waiting list for EMDR with a local
Hidden
in
Headway
3 years ago
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Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
CKD minerals and labs?
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Slaxx
in
Kidney Disease
3 years ago
Sore eyes and light sensitivity
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
Hi there, So quick (ish) back story. I have Hashimotos, diagnosed late 2019. Treated with levo slowly increasing to 150mcg daily by March 2021 with various ups and downs in fatigue, dizziness and foot pain in between. Around this time i started experience photosensitivity and sore eyes (my eyes have
pandacat2
in
Thyroid UK
3 years ago
Pegasys and insomnia
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
I’m now on a maintenance dose of pegasys. Started pegasys in 2016. In the Early years within 30mins of injecting I felt very tired and experienced a good deep sleep on my injection nights. Over the last year - not every time - maybe 50% of the injections I have difficulty sleeping. I feel relaxed but
EleanorPV
in
MPN Voice
3 years ago
Raynaudscand swollen Herbens nodes
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
I am 53 years old but started having Raynauds at age 51. My mom has Lupus and systemic vasculitis plus RA. After I have my Raynauds attacks once the. Blood returns my Herbecens nodes on all fingers get really red and swollen. Does this favor scleroderma?
Stormy911
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Salt or no salt
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
TeflonT
in
British Heart Foundation
3 years ago
Imodium IBS relief
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Poorlypatient
in
IBS Network
3 years ago
Update - ADT with Zytiga Failure (Castration Resistant) after 6 Months (PSA 90.3); Firmagon still Working; PSMA PET Scan Ordered
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
diamondrn
in
Advanced Prostate Cancer
3 years ago
Blood test
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Gcart
in
Thyroid UK
3 years ago
Weird symptoms
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
After megaloblastic anemia experience, I started to take B12 pills and three cyanocobalamin injection after sux months my symptoms for megaloblastic anemia improved but since I switched just to cyanocobalamin injection and stopped taking methylcobalamine sublingual and timed release pills I experienced
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
I share concerns, I'm sharing some good news!!
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought we should drop another 10mg....I was nervous and just felt lousy. BUT, the last 3-4 days I have really felt good, I've walked in the house more
Grammy80
in
PMRGCAuk
3 years ago
Spironolactone and sodium
Should doctor monitor kidneys and sodium/potassium levels while taking spironolactone 50mg? If yes how often?
Should doctor monitor kidneys and sodium/potassium levels while taking spironolactone 50mg? If yes how often?
Bazinga89
in
British Liver Trust
3 years ago
Is there anyone that can further educate me on the combination of POTS, FND, and other medical issues one of my best friends is facing?
One of my best friends is struggling with many medical conditions and has been diagnosed with having POTS, a FND, has what we call “episodes” in the middle of classes and at times will run out of rooms to avoid being made a spectacle of in front of others. They shortest amount of time they usually last
One of my best friends is struggling with many medical conditions and has been diagnosed with having POTS, a FND, has what we call “episodes” in the middle of classes and at times will run out of rooms to avoid being made a spectacle of in front of others. They shortest amount of time they usually last
ShallowWater
in
Functional Neurological Disorder - FND Hope
3 years ago
Charles Bonnet .. Has anyone been diagnosed with Charles bonnet syndrome with relatively good eyesight?
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
It all started each time I woke up I would see a huge black blob.. Blind spot in my vision which quickly disappeared upon blinking. This can also be bright white as it fades. Few months later again in the night.. Alongside the usual blob I started to see letters! Numbers! Patterns! I thought I was
Giro26
in
Macular Society
3 years ago
ACR Ratio Confusion
My PCP has issued labs to monitor my kidneys. To date no formal diagnosis. My blood sodium, potassium, creatinine; always in the normal range. My urine pH, Protein, Glucose, Ketones, Erythrocytes, Nitrate, and Leukocytes are also always in the normal range. Two generations of Acute Nephritis in family
My PCP has issued labs to monitor my kidneys. To date no formal diagnosis. My blood sodium, potassium, creatinine; always in the normal range. My urine pH, Protein, Glucose, Ketones, Erythrocytes, Nitrate, and Leukocytes are also always in the normal range. Two generations of Acute Nephritis in family
lakeheadguy
in
Kidney Disease
3 years ago
Has anyone else experienced olfactory hallucinations? Phantosmia?
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
Im wondering if anyone else has experienced this. I’m really struggling to deal with this FND or whatever it is. Tonight I was laying in bed falling asleep to a Netflix show and I kept getting, in my right nostril, a really foul sewage like smell. I obviously got up smelled my bedding smelled my clothes
seamuspg
in
Functional Neurological Disorder - FND Hope
3 years ago
Comments, advice, info, etc
I was dx with CKD, Phase3, in 2018. GRF stayed between 55-60, I spill protein and have since being dx with diabetes in 2003. In the last 8 months or so, protein in urine has gone way up, as has my potassium. Now trying to stay low potassium, cutting sodium. My question is: I rarely salt my food
I was dx with CKD, Phase3, in 2018. GRF stayed between 55-60, I spill protein and have since being dx with diabetes in 2003. In the last 8 months or so, protein in urine has gone way up, as has my potassium. Now trying to stay low potassium, cutting sodium. My question is: I rarely salt my food
jodaer
in
Kidney Disease
3 years ago
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