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Mixed up with recent diagnosis
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Emerneurosis
in
Glaucoma UK
2 years ago
Eye side effects on biologics for rheumatoid arthritis
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Cocobean1
in
NRAS
2 years ago
It's too much. All the medical procedures. Homesick. Getting into hospital on Monday
For my nose not mental health. But it's one hell of a time booking it all, going through all kinds of proffesionals. In Bulgaria something hurts you, you go to doc 1 , they send you to doc 2, they send you to doc 3, they send you to tests. You end up either okay or hospitalised or worse from all those
For my nose not mental health. But it's one hell of a time booking it all, going through all kinds of proffesionals. In Bulgaria something hurts you, you go to doc 1 , they send you to doc 2, they send you to doc 3, they send you to tests. You end up either okay or hospitalised or worse from all those
Against_the_current
in
Anxiety and Depression Support
1 year ago
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Got blood resukts from over 30 yrs aho ago. NHS request medical records
Hi, I've often wondered what my kidney function results were off yrs ago. I contacted NHS medical records at local hospital. I have just received them as I wanted to know my kidney function tests over the yrs when I went into hospital for nothing major. I pleased to say they have not altered much over
Hi, I've often wondered what my kidney function results were off yrs ago. I contacted NHS medical records at local hospital. I have just received them as I wanted to know my kidney function tests over the yrs when I went into hospital for nothing major. I pleased to say they have not altered much over
Tempest1
in
Early CKD Support
2 years ago
APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
2 years ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
2 years ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
2 years ago
Fungus used in Chinese medicine improves sleep in rodents (and also impacts glutamine/glutamate)
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
Hidden
in
Restless Legs Syndrome
2 years ago
Hi fellow sufferers.
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
Mando007
in
Macular Society
2 years ago
Ocular hypertension
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
EthelPledge94
in
Macular Society
2 years ago
mtx and adalimumab/ Idacio
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
lindyloo2018
in
NRAS
2 years ago
Amlopidine
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
EthelPledge94
in
Glaucoma UK
2 years ago
Newbie !
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Dasch123
in
Pelvic Radiation Disease Association
2 years ago
Just diagnosed
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
Paula1710
in
Glaucoma UK
2 years ago
Another Diet Question
Thank you all for talking to me about soda, now I have another question. I've looked through various websites about CKD diets, looked at various recipes and the whys and why nots of what you should and shouldn't eat. For those of you who live with other family members, how do you balance your special
Thank you all for talking to me about soda, now I have another question. I've looked through various websites about CKD diets, looked at various recipes and the whys and why nots of what you should and shouldn't eat. For those of you who live with other family members, how do you balance your special
TheSQLGuy
in
Kidney Disease
2 years ago
What Is The Test For Celiacs Please?
Hi! I have recently had some blood tests done at my GP surgery, as requested by my endocrinologist (I have Turner Syndrome and have to have annual blood tests including to monitor my thyroid - no issues or medications needed for that so far although my TSH levels have gone from in the 1s up to nearly
Hi! I have recently had some blood tests done at my GP surgery, as requested by my endocrinologist (I have Turner Syndrome and have to have annual blood tests including to monitor my thyroid - no issues or medications needed for that so far although my TSH levels have gone from in the 1s up to nearly
Hidden
in
Thyroid UK
2 years ago
Yesterday Saw My Nephrologist
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
bbeba103
in
Kidney Disease
2 years ago
Seeing an MPN Specialist tomorrow!
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
Zeppelin11
in
MPN Voice
2 years ago
Vaccine and Prolonged Diarrhea
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
711debbie
in
IBS Network
2 years ago
Levothyroxine for Underactive thyroid
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
Vallinkinpark
in
Thyroid UK
2 years ago
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