Eye side effects on biologics for rheumatoid arthritis - NRAS

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Eye side effects on biologics for rheumatoid arthritis

Cocobean1 profile image
15 Replies

Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore despite using various drops and I don’t know that I can continue to take the medication.

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Cocobean1 profile image
Cocobean1
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15 Replies
helixhelix profile image
helixhelix

Are you/your doctors sure it is the drugs not the disease? I have developed mild Sjorgens which is common with RA, and causes dry eyes which are very itchy. Doesn’t seem to be affected by changing biologics (now on my third).

Luludean profile image
Luludean in reply to helixhelix

Go to an optician and get him to check your eyes. Arthritis can cause some eye problems which are treatable.

helixhelix profile image
helixhelix in reply to Luludean

it’s ok I have been diagnosed with dry eye now - although treatments not that effective!

Luludean profile image
Luludean in reply to helixhelix

Good , keep putting in the drops and wear sunglasses.

helixhelix profile image
helixhelix in reply to Luludean

I’ve had it for a long time, so yes I have sunglasses everywhere - especially as I also have developing cataracts and a retinal membrane. And now live in a sunnier country than the UK..

Al1954 profile image
Al1954 in reply to Luludean

Hello i use drops made from my own blood.Wonderfull!! But expensive

Jackie1947 profile image
Jackie1947

You could be suffering from dry eye and not uncommon if you have RA. I have it too and I'm prescribed eye drops. HyLo Tear preservative free. I had it before biological meds. I would contact your GP or Rhuemy dept.

Madmusiclover profile image
Madmusiclover

my rheumy has just referred me to eye consultant for assessment. He says there are long acting eye drops that can be prescribed.

Kate2628 profile image
Kate2628

yes dry eyes and mouth , skin rashes and fungal infections! Came off after 3 months, back onMTX.

bpeal1 profile image
bpeal1

As others have said I would think it is more likely the disease than the treatment causing the dry eyes. I suggest talking to your rheumatology team about it. I have dry eyes and have been prescribed hylotear. I think you can buy them over the counter but they are very expensive. They last a lot longer than normal eye drops.

Tkat10 profile image
Tkat10

dry sore eyes are a symptom of rheumatoid arthritis and can signify you are not u dear control.

Sheila_G profile image
Sheila_G

I have very dry, sore eyes all the time and I am not on biologics. I have drops, blephasol wipes, heated eye bag and I have a humidifier on in the house when central heating is on. I don't know if this is due to RA but I have always thought so. Keep eyes moisturised to prevent worse problems. Good luck.

Salamanca21 profile image
Salamanca21

Interesting. I thought my eye problems, dry eyes, red eye, were due to Hydroxychloroquine not the Etanercept. Went for an eye test yesterday, and they are considerably worse; I've acquired another cataract. I have stopped Hydroxychloroquine for the moment, and they are better. I'll see what the consultant says

hatshepsut profile image
hatshepsut

You should definitely get this investigated, I have Sjorgrens, with similar symptoms, there is also sicca, both common with RD. It could well be nothing to do with your biologic, and both can be treated. If left untreated, eyes can suffer irreparable damage.

Jackie1947 profile image
Jackie1947

I've had dry eye due to R A not biologics. Been prescribed drops for yearsc

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