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Thyroid Eye Disease (TED) talk 13.08.23 (7-8pm)
https://www.eventbrite.co.uk/e/thyroid-eye-disease-ted-talk-by-professor-simon-pearce-registration-681585188647 There is an online talk on TED by Prof Pearce on 13.08.23 if anyone is interested in listening. It is organised by TEDct. Personally, I’ve benefitted from having an enlightened endocrinologist
https://www.eventbrite.co.uk/e/thyroid-eye-disease-ted-talk-by-professor-simon-pearce-registration-681585188647 There is an online talk on TED by Prof Pearce on 13.08.23 if anyone is interested in listening. It is organised by TEDct. Personally, I’ve benefitted from having an enlightened endocrinologist
Buddy195
Administrator
in
Thyroid UK
11 months ago
DRY MOUTH/ HORRIBLE TASTE
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
TGSHJ71
in
LUPUS UK
11 months ago
a poem for light relief
Check up day, and I’m Right on time 10 minutes early for my ten to nine They call me through but false alarm It’s just the nurse, eye test, stay calm My good eye reads nearly all the chart But Glaucoma eye is not so smart Can only get about halfway down through pinholes an extra line can
Check up day, and I’m Right on time 10 minutes early for my ten to nine They call me through but false alarm It’s just the nurse, eye test, stay calm My good eye reads nearly all the chart But Glaucoma eye is not so smart Can only get about halfway down through pinholes an extra line can
Royrace
in
Glaucoma UK
11 months ago
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Midazelam
Hi I am having cataract surgery on Sunday and you are given choice of a sedative or not. The nurse said "they usually " use Midazelam -obviously anything offered if i am unsure I will go without it. Does anyone know if Midazelam is RLS safe ? Don't want legs jumping around and the surgical instruments
Hi I am having cataract surgery on Sunday and you are given choice of a sedative or not. The nurse said "they usually " use Midazelam -obviously anything offered if i am unsure I will go without it. Does anyone know if Midazelam is RLS safe ? Don't want legs jumping around and the surgical instruments
Pippins2
in
Restless Legs Syndrome
11 months ago
Blood Results Advice
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
hi there, please can you help me I had my bloods taken about a month ago as I was having heart palpitations and extreme fatigue. I have also been attending a chiropractor over a year and he discovered I have a intolerance to gluten, grains choc and caffeine. I am off all those things over three months
Soprano67
in
Thyroid UK
1 year ago
Adalimumab serious side effects, any advice?
I had my first injection last Saturday and won’t be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. I’m now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
I had my first injection last Saturday and won’t be having another! Sheer fluke blood tests were booked for Thursday and the GP rang me Thursday evening. Sodium levels had gone very low which could lead to a coma. I’m now taking SIS electrolytes to try and raise them with more blood tests next Tuesday
netballnow
in
NRAS
1 year ago
Olaparib and Radium 223 synergy ?
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any knowledge of this? I'm BRCA2 mutated and currently taking Olaparib, and considering Radium 223. Thanks.
davebliz
in
Advanced Prostate Cancer
9 months ago
Child-Pugh Score for Cirrhosis Mortality
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Under the scoring rate for ascites..Absent Slight Moderate Basically I was extremely bad when diagnosed but now absent but only via sodium and fluid restrictions and diuretics. Which would you count as your score?
Male47
in
British Liver Trust
1 year ago
Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
2 months ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
2 months ago
Touchpoint Solutions for ADHD/Focus
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
Otter1313
in
CHADD's ADHD Parents Together
2 months ago
Zanubrutinib and water intake and sodium level
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
Bethsaida
in
CLL Support
1 year ago
Dry Matter in the corner of eyes.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Tschuggen
in
Glaucoma UK
11 months ago
Dry mouth
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Elizka
in
MPN Voice
11 months ago
warm eye masks
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
swanlady123
in
Glaucoma UK
11 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Hope this helps!
Hi everyone, I do not have CLL but I do have the itchy, pins and needles prickly feeling on my upper arms at night when I cover up. Once it starts it's relentless. I spoke to my Dermatologist about it and she said it sounded like a nerve problem. She prescribed me Fluocinonide cream 0.05 percent. I rub
Hi everyone, I do not have CLL but I do have the itchy, pins and needles prickly feeling on my upper arms at night when I cover up. Once it starts it's relentless. I spoke to my Dermatologist about it and she said it sounded like a nerve problem. She prescribed me Fluocinonide cream 0.05 percent. I rub
MiaRiley21
in
CLL Support
11 months ago
pegasys and migraines
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
Smithjoa
in
MPN Voice
11 months ago
FND SUCKS
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Luv2teezeu
in
Functional Neurological Disorder - FND Hope
3 months ago
Ablate or wait?
About 1 year ago I suffered with recurrent AF episodes usually overnight and they lasted from 1 hour to 5 hours. On two occasions I went to A&E and was kept in A&E overnight. I got a consultant appointment and he prescribed Flecainide 100mg twice per day and a spot on the NHS ablation waiting list.
About 1 year ago I suffered with recurrent AF episodes usually overnight and they lasted from 1 hour to 5 hours. On two occasions I went to A&E and was kept in A&E overnight. I got a consultant appointment and he prescribed Flecainide 100mg twice per day and a spot on the NHS ablation waiting list.
Jazzguitar22
in
AF Association
10 months ago
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