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Happy to be here!
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
New, targeted therapy inhibits specific immune cells associated with lupus nephritis
'Intervention targets T cells rather than multiple immune cell types," Prof. Chaim Putterman says. Lupus (systemic lupus erythematosus), an autoimmune disease in which the body recognizes and attacks its own tissues, can affect many organs, including the kidneys. About fifty percent of patients diagnosed
'Intervention targets T cells rather than multiple immune cell types," Prof. Chaim Putterman says. Lupus (systemic lupus erythematosus), an autoimmune disease in which the body recognizes and attacks its own tissues, can affect many organs, including the kidneys. About fifty percent of patients diagnosed
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Did any kidney transplant people have high antibodies
Hello I’m on the transplant list I was hoping to get a transplant before dialysis but don’t know if it will happen . I had one offer that didn’t work out I found out then I am going to be hard to match cause I have high antibodies. I wasn’t even aware there was such a thing. How long did you wait before
Hello I’m on the transplant list I was hoping to get a transplant before dialysis but don’t know if it will happen . I had one offer that didn’t work out I found out then I am going to be hard to match cause I have high antibodies. I wasn’t even aware there was such a thing. How long did you wait before
Beachgirl32
in
Kidney Transplant
3 years ago
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Shaking
I received a kidney transplant in 2008. For the last few months I have been shaking a lot especially my hands. Taking 4 mg. of Prograf. Doctor increased it because level was low on blood test. Has anyone experienced this kind of shaking? Thanks
I received a kidney transplant in 2008. For the last few months I have been shaking a lot especially my hands. Taking 4 mg. of Prograf. Doctor increased it because level was low on blood test. Has anyone experienced this kind of shaking? Thanks
buddy3love
in
Kidney Transplant
3 years ago
New Year, new lungs?
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
Liver cancer support suggestion for my brother
Hello all. One of my older brothers was diagnosed with liver cancer summer 2021. Unbeknownst to his siblings, he was drinking heavily the past few years. It caught up to him with this diagnosis. He lives in Brooklyn several hundred miles from us. We didn’t see him during covid so the alcohol abuse
Hello all. One of my older brothers was diagnosed with liver cancer summer 2021. Unbeknownst to his siblings, he was drinking heavily the past few years. It caught up to him with this diagnosis. He lives in Brooklyn several hundred miles from us. We didn’t see him during covid so the alcohol abuse
Hidden
in
SHARE Metastatic Breast Cancer
3 years ago
Molnupiravir
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hidden
in
Lung Conditions Community Forum
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
Fibroscan request 4 years after transplant
Good Morning My husband had a liver transplant in 2017 due to NASH cirrhosis. He recently had a diagnosis of asbestosis and emphysema. He is a type 2 diabetic and this seems to be causing him problems and is out of control. He recently had an ultrasound scan of his liver which seems to be causing
Good Morning My husband had a liver transplant in 2017 due to NASH cirrhosis. He recently had a diagnosis of asbestosis and emphysema. He is a type 2 diabetic and this seems to be causing him problems and is out of control. He recently had an ultrasound scan of his liver which seems to be causing
Kimlescam
in
British Liver Trust
3 years ago
Bloating after transplant
Hi, I had 2nd kidney transplant 2017 after 14 years dialysis. I have trouble with stomach bloating , if it's hot at work and I swear I feel better otherwise after every meal always feel bloated for hours. 10mg pred still Tacrolimus Mycophenalte Warfarin for heart
Hi, I had 2nd kidney transplant 2017 after 14 years dialysis. I have trouble with stomach bloating , if it's hot at work and I swear I feel better otherwise after every meal always feel bloated for hours. 10mg pred still Tacrolimus Mycophenalte Warfarin for heart
Kompai
in
Kidney Transplant
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
3 years ago
Had my third kidney transplant
Hello everyone:) Happy Holidays! 2 weeks ago I received the phone call that they had a kidney for me ..this was very unexpected because I had been told throughout the whole pre transplant process that I would have a living donor through the paired exchange program. My husband would donate to someone
Hello everyone:) Happy Holidays! 2 weeks ago I received the phone call that they had a kidney for me ..this was very unexpected because I had been told throughout the whole pre transplant process that I would have a living donor through the paired exchange program. My husband would donate to someone
Calebzztop
in
Kidney Transplant
3 years ago
Worried and
Hello all. I am wondering what are criteria for liver transplant? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big. Also he informed me that 25% of people with my disease could have reverse of damage and MAYBE I HAVE THAT LUCK THAT
Hello all. I am wondering what are criteria for liver transplant? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big. Also he informed me that 25% of people with my disease could have reverse of damage and MAYBE I HAVE THAT LUCK THAT
Bazinga89
in
British Liver Trust
3 years ago
Cold medicine
I’m a kidney transplant recipient. I received my kidney 16 months ago. What OTC meds can we take for a head cold?
I’m a kidney transplant recipient. I received my kidney 16 months ago. What OTC meds can we take for a head cold?
Charly1429
in
Kidney Transplant
3 years ago
Colon Cancer scare, please respond
Hello I’m a 27 year old male. My symptoms have been present for 2 weeks, this occurred after night of eating and drinking, and ever since the next morning that’s when all this occurred. I have been having some, well let’s say discomfort in my abdomen. It feels almost as if I have a dull pressure feeling
Hello I’m a 27 year old male. My symptoms have been present for 2 weeks, this occurred after night of eating and drinking, and ever since the next morning that’s when all this occurred. I have been having some, well let’s say discomfort in my abdomen. It feels almost as if I have a dull pressure feeling
bran_sun
in
Colon Cancer Connected
3 years ago
Yesterday afternoon had little Nuggets of poo came out of my bum and I wiped 8 times and bright red blood came out every time with some clot
Yesterday afternoon had little Nuggets of poo came out of my bum and I wiped 8 times and bright red blood came out every time with some clots of blood it looked like I was on my period but it was from my bum, last nite I had Severe diarrhoea, been having tummy aches and some abdominal pain but also have
Yesterday afternoon had little Nuggets of poo came out of my bum and I wiped 8 times and bright red blood came out every time with some clots of blood it looked like I was on my period but it was from my bum, last nite I had Severe diarrhoea, been having tummy aches and some abdominal pain but also have
EEBV12
in
Colon Cancer Connected
3 years ago
I have metastatic endometrial cancer. Tried carbo/taxol and Keytruda, just had surgery again to remove tumor - what’s next? Anyone out there
Just wondering who else is dealing with this.
Just wondering who else is dealing with this.
Miriamn57
in
My Ovacome
3 years ago
Colonoscopy at 19
Hi everyone. I’m 19. I’m getting a Colonoscopy tomorrow but I’m freaking out. Not exactly over the procedure itself but more so for the results. I’m scared of getting diagnosed with Colon Cancer. I know my demographic for it is very low. Honestly I wasn’t even the one who asked for the procedure. I guess
Hi everyone. I’m 19. I’m getting a Colonoscopy tomorrow but I’m freaking out. Not exactly over the procedure itself but more so for the results. I’m scared of getting diagnosed with Colon Cancer. I know my demographic for it is very low. Honestly I wasn’t even the one who asked for the procedure. I guess
Anxiouskid
in
Colon Cancer Connected
3 years ago
I have had enough
This is Randy I had my Mohs procedure Thursday. 60 stitches in my temple, 30 stitches in my arm. Squamous carcinoma cancer from the Sun. Doctor told me cancer on my temple is very aggressive may come back. That really bothers me. I hope that no one has to go through this. So far this year I have had
This is Randy I had my Mohs procedure Thursday. 60 stitches in my temple, 30 stitches in my arm. Squamous carcinoma cancer from the Sun. Doctor told me cancer on my temple is very aggressive may come back. That really bothers me. I hope that no one has to go through this. So far this year I have had
Randy1805
in
Kidney Transplant
3 years ago
The Melody Study
Dear All, have you been asked about The Melody Study, into COVID immunity? If not then Do ask- your Doctors/ Consultants or even your GP. I 'qualify' BOTH as a Vasculitis Patient and a 'Solid' Organ Recipient (I had a Kidney Transplant, in July 2013). The Test is, relatively 'easy' to do, a small Finger
Dear All, have you been asked about The Melody Study, into COVID immunity? If not then Do ask- your Doctors/ Consultants or even your GP. I 'qualify' BOTH as a Vasculitis Patient and a 'Solid' Organ Recipient (I had a Kidney Transplant, in July 2013). The Test is, relatively 'easy' to do, a small Finger
AndrewT
in
Vasculitis UK
3 years ago
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