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Polycythaemia Vera.
I live in Plymouth UK, and have just been diagnosed with Polycycthaemia Vera , and am waiting to hear from my hospital my treatment which I believe will be phlebotomy ie bloods taken to reduce my red blood cell count. I had a liver transplant 12 years ago and have enjoyed good health till now :(. Only
I live in Plymouth UK, and have just been diagnosed with Polycycthaemia Vera , and am waiting to hear from my hospital my treatment which I believe will be phlebotomy ie bloods taken to reduce my red blood cell count. I had a liver transplant 12 years ago and have enjoyed good health till now :(. Only
plym1uk
in
MPN Voice
3 years ago
Transplant assessment delay - thanks for nothing PCR test!
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 years ago
What a week!
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
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Mucus and blood on stool
what are the symptoms to colon cancer ? 🥺 I’ve been struggling for like 2 months thought it was hemorrhoids but took medicine for a month and turns out it’s not. Worried it might be cancer
what are the symptoms to colon cancer ? 🥺 I’ve been struggling for like 2 months thought it was hemorrhoids but took medicine for a month and turns out it’s not. Worried it might be cancer
Velanie
in
Colon Cancer Connected
3 years ago
Question for those who have pkd and had a transplant
Hello I am on the waiting list for a kidney transplant and the meantime trying to do all I can to find a live donor. I get quite a lot of back pain with my polycystic kidney . I was wondering for those who had a transplant did your back pain ease at all. I know a transplant isn’t a cure for the disease
Hello I am on the waiting list for a kidney transplant and the meantime trying to do all I can to find a live donor. I get quite a lot of back pain with my polycystic kidney . I was wondering for those who had a transplant did your back pain ease at all. I know a transplant isn’t a cure for the disease
Beachgirl32
in
Kidney Transplant
3 years ago
My precious baby lost her battle💔😪
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
Kcn3
in
Lung Conditions Community Forum
3 years ago
What’s New in MS Research - March 2022
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
johnMSAA
Partner
in
My MSAA Community
2 years ago
Kidney Transplant News
Something hopeful for the future of kidney patients…https://www.drugs.com/news/doctors-transplant-gene-modified-pig-kidneys-into-brain-dead-patient-103000.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++January+21++2022&utm_content=Doctors+Transplant+Gene+Modified+Pig+Kidneys+Into+Brain
Something hopeful for the future of kidney patients…https://www.drugs.com/news/doctors-transplant-gene-modified-pig-kidneys-into-brain-dead-patient-103000.html?utm_source=ddc&utm_medium=email&utm_campaign=Daily+Mednews+++January+21++2022&utm_content=Doctors+Transplant+Gene+Modified+Pig+Kidneys+Into+Brain
HisLittleOne
in
Kidney Disease
3 years ago
Your body is incredible. How connected to that are you?
Our bodies are incredible. They're always replenishing through a complex interplay of cell death & new cells. For me, having had a total of 10.5 years on dialysis, 7 of those as a teenager & two kidney transplants, there are so many ways to integrate, heal & remember our inner strength. Yoga is one
Our bodies are incredible. They're always replenishing through a complex interplay of cell death & new cells. For me, having had a total of 10.5 years on dialysis, 7 of those as a teenager & two kidney transplants, there are so many ways to integrate, heal & remember our inner strength. Yoga is one
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
Researchers test pig-to-human kidney transplant in donated body
https://www.pbs.org/newshour/health/researchers-test-pig-to-human-kidney-transplant-in-donated-body
https://www.pbs.org/newshour/health/researchers-test-pig-to-human-kidney-transplant-in-donated-body
WinJ3
in
Kidney Disease
3 years ago
Kidney Transplant Recipients Benefit from fourth COVID 19 Vacine Dose
Publish Date January 18, 2022 Kidney Transplant Recipients Benefit From Fourth COVID-19 Vaccine Dose Natasha Persaud Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email Half of kidney transplant recipients achieved neutralizing antibody response after a fourth dose
Publish Date January 18, 2022 Kidney Transplant Recipients Benefit From Fourth COVID-19 Vaccine Dose Natasha Persaud Share on Facebook Share on Twitter Share on LinkedIn Share on Reddit Print Share by Email Half of kidney transplant recipients achieved neutralizing antibody response after a fourth dose
Graham49
in
Kidney Transplant Patient Support
3 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Liver Transplant Recipients
If you're a liver transplant recipient, please consider taking part in a new study by NHS Blood and Transplant and Imperial College. The ‘MELODY’ study is looking into the antibody response to COVID-19 in people who are immunosuppressed and vaccinated. To take part, you'll need to be over 18 years
If you're a liver transplant recipient, please consider taking part in a new study by NHS Blood and Transplant and Imperial College. The ‘MELODY’ study is looking into the antibody response to COVID-19 in people who are immunosuppressed and vaccinated. To take part, you'll need to be over 18 years
Hidden
Partner
in
British Liver Trust
3 years ago
Transplants and Covid
How many with kidney transplants have had Covid?
How many with kidney transplants have had Covid?
OakGrove
in
Kidney Transplant
3 years ago
Kidney Transplants and Covid
Would love to hear more from kidney transplants with direct experience of Covid - including family, friends, healthcare workers. Please share. Thank you.
Would love to hear more from kidney transplants with direct experience of Covid - including family, friends, healthcare workers. Please share. Thank you.
OakGrove
in
Kidney Transplant
3 years ago
Transplant
Im going in to hospital today having my assessment for my liver transplant. I'm a bit worried about the tests, I'm especially worried about the treadmill as i dont walk very well because of nerve pain 🙃
Im going in to hospital today having my assessment for my liver transplant. I'm a bit worried about the tests, I'm especially worried about the treadmill as i dont walk very well because of nerve pain 🙃
Ozzie1961
in
British Liver Trust
3 years ago
Local Anastasia
Finally got my cornea graft date. Going to try local anastethia for the first time after having multiple invasive procedures under general Anastasia. I’m a bit scared. Not too much but would love to hear good experiences of local Anastasia. Thank you
Finally got my cornea graft date. Going to try local anastethia for the first time after having multiple invasive procedures under general Anastasia. I’m a bit scared. Not too much but would love to hear good experiences of local Anastasia. Thank you
SpaceBend
in
Glaucoma UK
3 years ago
Xenotransplantation of pig heart
Hello everyone. I’m sure we have all read about the recent pig kidneys transplanted into humans successfully. Well, it appears it’s been done again but this time it looks like a heart transplant was done. It’s too early to tell, but this case here seems to be more beneficial towards making it a reality
Hello everyone. I’m sure we have all read about the recent pig kidneys transplanted into humans successfully. Well, it appears it’s been done again but this time it looks like a heart transplant was done. It’s too early to tell, but this case here seems to be more beneficial towards making it a reality
FThomp
in
Kidney Disease
3 years ago
Testing for antibodies after 3rd covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Transplant
3 years ago
Antibodies from covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Disease
3 years ago
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