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Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Kidney Disease
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
update ct colonoscopy
hi, just had ct virtual colonoscopy done. I was unable to complete colonoscopy recently and my doc referred me to abdo surgeon, he put me in for ct colon scan. Although the prep is just as bad as colonoscopy prep, the actual procedure went well, was able to complete scan. Don’t know the results yet but
hi, just had ct virtual colonoscopy done. I was unable to complete colonoscopy recently and my doc referred me to abdo surgeon, he put me in for ct colon scan. Although the prep is just as bad as colonoscopy prep, the actual procedure went well, was able to complete scan. Don’t know the results yet but
2013mayo
in
IBS Network
10 months ago
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taking collagen
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
Curry55
in
My Ovacome
6 months ago
zookeeper54
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
zookeeper54
in
Kidney Transplant
9 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
9 months ago
Hi... was blessed to have a kidney transplant 6 weeks ago... anyone eve struggle with the meds?
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
Highgfr
in
Kidney Disease
9 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
9 months ago
Blood on toilet paper
hey everyone, So for a while I have been seeing blood on my toilet paper. It doesn’t happen all the time, but it does happen frequent enough that I’m a bit concerned. It usually takes for me to wipe twice to actually see the blood. It’s not much and it is bright red. For what I can tell I don’t think
hey everyone, So for a while I have been seeing blood on my toilet paper. It doesn’t happen all the time, but it does happen frequent enough that I’m a bit concerned. It usually takes for me to wipe twice to actually see the blood. It’s not much and it is bright red. For what I can tell I don’t think
Gyshuo
in
Colon Cancer Connected
10 months ago
COLONOSCOPY
Gooday, I have been short listed for a colonoscopy to exclude bowel cancer. The first step is to speak with the surgical consultant. I believe a local anesthetic may be administered. Currently I am on a low dose of Ibrutinib. What are other peoples experience regarding the stopping and starting
Gooday, I have been short listed for a colonoscopy to exclude bowel cancer. The first step is to speak with the surgical consultant. I believe a local anesthetic may be administered. Currently I am on a low dose of Ibrutinib. What are other peoples experience regarding the stopping and starting
fossicker
in
CLL Support
11 months ago
liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
9 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
9 months ago
Quite a good bit of deep red blood in stool **graphic photo of just blood**(stool is blotted out of picture)
This happened yesterday morning. It also has happened a few times before. It's not continuous but rather comes and goes. It could be months before it happens again. I might add that I'm a diabetic with uncontrolled diabetes currently. I have pcos as well. I'm on anxiety meds along with insulin.
This happened yesterday morning. It also has happened a few times before. It's not continuous but rather comes and goes. It could be months before it happens again. I might add that I'm a diabetic with uncontrolled diabetes currently. I have pcos as well. I'm on anxiety meds along with insulin.
JustMe-2023
in
Colon Cancer Connected
11 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
9 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
9 months ago
Lympahdinitis
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
bal_123
in
Kidney Transplant Patient Support
9 months ago
Does this look like colon cancer!!
had really bad stomach pains for like 2 months now, acid reflux, feeling bloated sometimes nasueous, mind the graphic stool photo but what do you think this is?? terrified i have colon cancer im 23... the red buts are bits of pepper i believe no blood but stools look narrow to me
had really bad stomach pains for like 2 months now, acid reflux, feeling bloated sometimes nasueous, mind the graphic stool photo but what do you think this is?? terrified i have colon cancer im 23... the red buts are bits of pepper i believe no blood but stools look narrow to me
chloe_perrett123
in
Colon Cancer Connected
11 months ago
Should we worry?
mum is on large doses of lactulose and diuretics and has been feeling very unwell all day. She hasn’t been able to open her Bowles at all, and seems very confused. is this an A&E job?
mum is on large doses of lactulose and diuretics and has been feeling very unwell all day. She hasn’t been able to open her Bowles at all, and seems very confused. is this an A&E job?
PerpetuallySad
in
British Liver Trust
7 months ago
Lee75glom
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
Lee75glom
in
Kidney Transplant
9 months ago
October 15, 1999 - 2023
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
WYOAnne
NKF Ambassador
in
Kidney Disease
9 months ago
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