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A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
21 hours ago
Strontium citrate results in regaining bone
For those who ask if bone can be regained without pharmaceuticals – you may be interested in this. I am 73 and was diagnosed with osteoporosis more than a decade ago. My bone density tests have shown continual decline. My doctor urged me to take Prolia but I declined. I researched strontium citrate,
For those who ask if bone can be regained without pharmaceuticals – you may be interested in this. I am 73 and was diagnosed with osteoporosis more than a decade ago. My bone density tests have shown continual decline. My doctor urged me to take Prolia but I declined. I researched strontium citrate,
Frida22
in
Osteoporosis Support
27 days ago
Is it harmful to take Vitamin D & not Vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
gazaeee
in
Anticoagulation Support
1 month ago
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Nattokinase
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Zabb
in
CLL Support
2 months ago
Sleeping w/out THC for the first time in 5 years
I'm still trying to figure out several PD issues that I think are related to the estrogen patch I started about a year ago, and I intend to post about that eventually, but I wanted to give a quick update because my severe insomnia seems to be resolved. The last time I tried sleeping without THC was
I'm still trying to figure out several PD issues that I think are related to the estrogen patch I started about a year ago, and I intend to post about that eventually, but I wanted to give a quick update because my severe insomnia seems to be resolved. The last time I tried sleeping without THC was
1LittleWillow
in
Cure Parkinson's
3 months ago
Have taken the plunge full Thyroid test!
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Ontherun81
in
Thyroid UK
3 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
Fosteum Plus
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
intexasnloveit
in
Osteoporosis Support
4 months ago
Help with Vitamin K foods
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
13131958
in
Hughes Syndrome APS Forum
5 months ago
thyroid and high blood pressure
Hi all So have been struggling to get a GP appointment to discuss my Thyroid meds. After MUCH sulking from me my medication was reduced to 75mcg from 100. Although I managed to hold out for 100 whilst I was on holiday- feel not so good so have been trying to get my meds reinstated. This since end
Hi all So have been struggling to get a GP appointment to discuss my Thyroid meds. After MUCH sulking from me my medication was reduced to 75mcg from 100. Although I managed to hold out for 100 whilst I was on holiday- feel not so good so have been trying to get my meds reinstated. This since end
Jillyb15
in
Thyroid UK
5 months ago
Strontium citrate
I was diagnosed with osteoporosis 10 years ago. I am now 73. I have been taking v D and calcium/magnesium and walking and gardening. But I have continued to loose BMD. I have not gone on any medication because I am reluctant to take a drug that interferes with the body's natural bone remodelling process
I was diagnosed with osteoporosis 10 years ago. I am now 73. I have been taking v D and calcium/magnesium and walking and gardening. But I have continued to loose BMD. I have not gone on any medication because I am reluctant to take a drug that interferes with the body's natural bone remodelling process
Frida22
in
Osteoporosis Support
5 months ago
post embryo transfer bleeding
hi, I'm just wondering if this is normal and has happened to anyone else? im 9dp5dt and ive been getting super strong positives on at home pregnancy tests for the past few days. I had severe abdominal cramping about 2 days ago, it wasn't like period cramps but rather like I had food poisoning. yesterday
hi, I'm just wondering if this is normal and has happened to anyone else? im 9dp5dt and ive been getting super strong positives on at home pregnancy tests for the past few days. I had severe abdominal cramping about 2 days ago, it wasn't like period cramps but rather like I had food poisoning. yesterday
rmsa
in
Fertility Network UK
5 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
5 months ago
When you can't run, walk.....
Got back before the rain, just over 3
k
,
slow
but great to be out.Happy New Year all.
Got back before the rain, just over 3
k
,
slow
but great to be out.Happy New Year all.
SueAppleRun
in
Active 10
6 months ago
Fighting for corrections is so hard.
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
ceward204
in
British Liver Trust
5 months ago
Endo appt tomorrow
Hi all, I don't really expect an answer but I have endo follow up tomorrow at the QE and I wondered if you could give me your views on my blood results from last week please? I know she won't endorse an increase in either my levo 75mcg or lio 10mcg per day as she said so last October when my private
Hi all, I don't really expect an answer but I have endo follow up tomorrow at the QE and I wondered if you could give me your views on my blood results from last week please? I know she won't endorse an increase in either my levo 75mcg or lio 10mcg per day as she said so last October when my private
Baggiesfan
in
Thyroid UK
5 months ago
Test results - please advise
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Dandelions
in
Thyroid UK
6 months ago
Vitamin D and Vitamin K Absorption Advice for the Community
Hi Everyone, I was curious about how much fat exactly we need at a meal when taking the fat soluble vitamins D and K so I looked it up. I wanted to share here in case it is helpful to anyone. Research suggests that 11g of fat at a meal is what is needed for optimal absorption of these vitamins. Some
Hi Everyone, I was curious about how much fat exactly we need at a meal when taking the fat soluble vitamins D and K so I looked it up. I wanted to share here in case it is helpful to anyone. Research suggests that 11g of fat at a meal is what is needed for optimal absorption of these vitamins. Some
Houseelf
in
Bone Health and Osteoporosis UK
6 months ago
Rivaoxiban
Hi, I'm new this site.I've been on Rivaoxiban for about 10 years. I always get a really bad headache or a bad nosebleed, I have been told from the hospital to take it after breakfast with water. If I take it on an empty stomach I'm bad with my headaches they can last most of the day,so I take paracetamol
Hi, I'm new this site.I've been on Rivaoxiban for about 10 years. I always get a really bad headache or a bad nosebleed, I have been told from the hospital to take it after breakfast with water. If I take it on an empty stomach I'm bad with my headaches they can last most of the day,so I take paracetamol
Seahorse1a
in
Lung Conditions Community Forum
6 months ago
bruising from coughing
since Christmas I have been suffering from a heavy cold with lots of catargh and coughing Because of this I have developed a lot of bruises around my midriff I have been told to stop taking Dabigatran and take vitamin K tablets until Tuesday I am concerned about having a stroke during this period
since Christmas I have been suffering from a heavy cold with lots of catargh and coughing Because of this I have developed a lot of bruises around my midriff I have been told to stop taking Dabigatran and take vitamin K tablets until Tuesday I am concerned about having a stroke during this period
Teignfisher2426
in
AF Association
6 months ago
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