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Actemra twist
Just saw my rheumatologist today. I’m having some trouble with the veins on my right arm during my monthly IV treatments of Actemra. I had a left side mastectomy so I can only use my right arm for blood pressures, injections, blood draws and IVs. Veins are not holding up too well after all that’s been
Just saw my rheumatologist today. I’m having some trouble with the veins on my right arm during my monthly IV treatments of Actemra. I had a left side mastectomy so I can only use my right arm for blood pressures, injections, blood draws and IVs. Veins are not holding up too well after all that’s been
Blackcatlover
in
PMRGCAuk
4 years ago
Medication advice
This is my first post here (34 F) My doctor diagnosed me with fibro a few months ago and I have a long history of anxiety/depression/IBS. I work 29 hours a week (pretty physical work, heavy lifting, standing all day) and I am really not coping. My body is so sore and stiff all the time. I have no energy
This is my first post here (34 F) My doctor diagnosed me with fibro a few months ago and I have a long history of anxiety/depression/IBS. I work 29 hours a week (pretty physical work, heavy lifting, standing all day) and I am really not coping. My body is so sore and stiff all the time. I have no energy
DivingBell
in
Fibromyalgia Action UK
4 years ago
Provenge
Thursday I will be getting my venous access so I can start Provenge. Have been on Zytiga and a clinical trial with Xtandi. PSA is up to 18 Does anyone have any details of their experience with Provenge to share with me? I’m nervous
Thursday I will be getting my venous access so I can start Provenge. Have been on Zytiga and a clinical trial with Xtandi. PSA is up to 18 Does anyone have any details of their experience with Provenge to share with me? I’m nervous
Peterd110
in
Advanced Prostate Cancer
4 years ago
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DULOXETINE 30mg.
My doc has just prescribed DULOXETINE he says it's new . Has anybody else been prescribed this is for Fibromyalgia pain. I would be interested to see how you got on with them.
My doc has just prescribed DULOXETINE he says it's new . Has anybody else been prescribed this is for Fibromyalgia pain. I would be interested to see how you got on with them.
Sore-feet2019
in
Fibromyalgia Action UK
4 years ago
Normal Sperm Analysis - possible varicocele?
Hi everyone. I’ve done so much research the last few weeks and the OH and I have spoken to a few doctors. My OH has a normal sperm analysis so we assumed our issues laid with me and my egg quality. My results are all normal but obviously we can’t really test egg quality. So we’re unexplained. After
Hi everyone. I’ve done so much research the last few weeks and the OH and I have spoken to a few doctors. My OH has a normal sperm analysis so we assumed our issues laid with me and my egg quality. My results are all normal but obviously we can’t really test egg quality. So we’re unexplained. After
TTCWithCHSweetheart
in
Fertility Network UK
4 years ago
Help Staying Asleep!!
I have Parkinson’s and I’m 59. Had it for awhile I guess. I go to bed around 10:00 pm and wake up around 2:00 am. I lay alone on the sofa until morning. I want to sleep so desperately. Falling asleep is easy. Staying asleep is impossible. I’ve tried everything natural there is on the market. I take a
I have Parkinson’s and I’m 59. Had it for awhile I guess. I go to bed around 10:00 pm and wake up around 2:00 am. I lay alone on the sofa until morning. I want to sleep so desperately. Falling asleep is easy. Staying asleep is impossible. I’ve tried everything natural there is on the market. I take a
Kevinbg
in
Cure Parkinson's
4 years ago
SENSITIVE BFP 11dpt
Hi ladies, just wanted to give you an update. After saying that I wasn't going to do a home pregnancy test due to previous chemical pregnancies I caved yesterday and got a BFP (also tested this morning which is still showing a strong line). I'm having a blood test tomorrow so just praying that this
Hi ladies, just wanted to give you an update. After saying that I wasn't going to do a home pregnancy test due to previous chemical pregnancies I caved yesterday and got a BFP (also tested this morning which is still showing a strong line). I'm having a blood test tomorrow so just praying that this
Hidden
in
Fertility Network UK
4 years ago
Employment support allowance
Good Morning, I have tried searching the previous posts but I'm perhaps doing something wrong. I lost my job in April and no longer feel that I can work full time due to health conditions, Hypothyroidism due to TT Hypoparathyroidism due to damage/removal which presents as Hypocalcemia along with other
Good Morning, I have tried searching the previous posts but I'm perhaps doing something wrong. I lost my job in April and no longer feel that I can work full time due to health conditions, Hypothyroidism due to TT Hypoparathyroidism due to damage/removal which presents as Hypocalcemia along with other
2020kel
in
Thyroid UK
4 years ago
Chronic fatigue
Hi everyone. I am diagnosed with non epileptic seizures and wasn’t aware this was a sign of FND, my neurologist discharged me as soon as he found out it wasn’t epilepsy so I’ve just been left to get on with it since 2017. I have seizures at least twice a month and occasionally clusters where I will have
Hi everyone. I am diagnosed with non epileptic seizures and wasn’t aware this was a sign of FND, my neurologist discharged me as soon as he found out it wasn’t epilepsy so I’ve just been left to get on with it since 2017. I have seizures at least twice a month and occasionally clusters where I will have
Hidden
in
Functional Neurological Disorder - FND Hope
4 years ago
Lymphedema Treatment Act needs support
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
April4ChristPlexus
in
LSN
4 years ago
2nd Ocrevus done!
Hi Everyone, I hope your having a good day. Just a quick update. I had my 2nd dose of Ocrevus on Monday. This time they gave me lots of pre meds iv( Benadryl, Zofran, Pepcid, Steroids and then 2 Tylenol by mouth. That was a sleepy day from the beginning. At least no reactions this time. Now it will be
Hi Everyone, I hope your having a good day. Just a quick update. I had my 2nd dose of Ocrevus on Monday. This time they gave me lots of pre meds iv( Benadryl, Zofran, Pepcid, Steroids and then 2 Tylenol by mouth. That was a sleepy day from the beginning. At least no reactions this time. Now it will be
Ladybriars
in
My MSAA Community
4 years ago
Myo-Inositol
Hi everyone, I’ve know lots of people take Myo-inositol for PCOS but has anyone used it to improve their fertility in general? I’ve just got a supplement catalog through with my ubiquinol order and it mentions it’s good as a fertility supplement. Just wondered if it’s worth trying? I currently take
Hi everyone, I’ve know lots of people take Myo-inositol for PCOS but has anyone used it to improve their fertility in general? I’ve just got a supplement catalog through with my ubiquinol order and it mentions it’s good as a fertility supplement. Just wondered if it’s worth trying? I currently take
Ropa19
in
Fertility Network UK
4 years ago
Virtual support from Ovacome this week
Hello This is to let you know about the online events on our programme this week. Mastectomy Chatter with Ovarian Cancer Action - Monday 20 July 7-8pm https://www.ovacome.org.uk/Event/mastectomy-chatter Gentle home exercise class with cancer exercise specialist Lizzy Davis - Tuesday 21 July, 2-2.45pm
Hello This is to let you know about the online events on our programme this week. Mastectomy Chatter with Ovarian Cancer Action - Monday 20 July 7-8pm https://www.ovacome.org.uk/Event/mastectomy-chatter Gentle home exercise class with cancer exercise specialist Lizzy Davis - Tuesday 21 July, 2-2.45pm
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
College is worse than hell.. but a bit hopeful
I'm currently in my Second Year and (was) thinking of focusing on English Literature as my main subject. But now I'm regretting it. None of the other subjects interest me . Economics is one of my subjects which I can study well and I always tend to score the highest scores in it. But I'm not that interested
I'm currently in my Second Year and (was) thinking of focusing on English Literature as my main subject. But now I'm regretting it. None of the other subjects interest me . Economics is one of my subjects which I can study well and I always tend to score the highest scores in it. But I'm not that interested
Ivy_chan5
in
Anxiety and Depression Support
4 years ago
Elavil causing brain fog ? Treatment for fibromyalgia needed
My fibromyalgia started after a viral infection (viral labyrinthitis- an inner ear infection). My head felt very heavy and then my generalized muscle aches started. 30 years later my body is very stiff and sore all over which causes me difficulty sleeping. I have found no medication that helps- Elavil
My fibromyalgia started after a viral infection (viral labyrinthitis- an inner ear infection). My head felt very heavy and then my generalized muscle aches started. 30 years later my body is very stiff and sore all over which causes me difficulty sleeping. I have found no medication that helps- Elavil
Stimmy
in
Fibromyalgia Action UK
4 years ago
Synarel and very late cycle, help please!
We started a cycle last month but it was cut short just before my first scan (sperm issues). We were on long protocol and taking Synarel. My period was late last month by 6 days and I felt all the side effects of feeling moody, heavy, bloated from using Synarel. This month I started Synarel again.
We started a cycle last month but it was cut short just before my first scan (sperm issues). We were on long protocol and taking Synarel. My period was late last month by 6 days and I felt all the side effects of feeling moody, heavy, bloated from using Synarel. This month I started Synarel again.
BettyBe
in
Fertility Network UK
4 years ago
Aleve & Advil cause NAFLD?
Does using Aleve or Advil for lower back pain have anything to do with having NAFLD?
Does using Aleve or Advil for lower back pain have anything to do with having NAFLD?
DPALLEN1954
in
Living with Fatty Liver and NASH
4 years ago
Can Ubiquinol and other muscle supplements CAUSE muscle aches?
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hidden
in
Fibromyalgia Action UK
4 years ago
Glad to be part of an understanding group
Hi there I feel that this path is so long. Began in 2004 with bilateral mastectomy and TAC chemo. Then in 2014 tumor markers high pet scan showed bone meets. Faslodex added to Arimidex and now Ibrance is replacing Arimidex. Sometimes I feel that instead of the side effects I'd rather live my life free
Hi there I feel that this path is so long. Began in 2004 with bilateral mastectomy and TAC chemo. Then in 2014 tumor markers high pet scan showed bone meets. Faslodex added to Arimidex and now Ibrance is replacing Arimidex. Sometimes I feel that instead of the side effects I'd rather live my life free
Layla818
in
SHARE Metastatic Breast Cancer
4 years ago
Anyone had this?
My recent FET ended in a chemical pregnancy and I stopped Cyclogest and Progynova on Tuesday evening. However, my boobs are still so sore and seem to be getting worse everyday. I can't even walk at the moment they are so sore! Has this happened to anyone and if so how long did it take for them to ease
My recent FET ended in a chemical pregnancy and I stopped Cyclogest and Progynova on Tuesday evening. However, my boobs are still so sore and seem to be getting worse everyday. I can't even walk at the moment they are so sore! Has this happened to anyone and if so how long did it take for them to ease
Sas1101
in
Fertility Network UK
4 years ago
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