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NEED A LITTLE HELP FROM MY FRIENDS
I'm a 68yo disabled Vietnam vet and how lucky I have the VA they've been good to me. Now if I could stop falling with my CEREBRAL ATAXIA. I been doing some studian on RITALIN for different reasons 1. I keep falling asleep no matter the time of day. 2. I have had ADH D before they knew what it was.
I'm a 68yo disabled Vietnam vet and how lucky I have the VA they've been good to me. Now if I could stop falling with my CEREBRAL ATAXIA. I been doing some studian on RITALIN for different reasons 1. I keep falling asleep no matter the time of day. 2. I have had ADH D before they knew what it was.
Skiing77
in
Ataxia UK
4 years ago
Anyone else cut out/down on caffeine? Did it help your sleeping pattern at all?
Hi all! So basically when i got diagnosed with fibromyalgia my dr told me i should try to cut out/avoid caffeine as much as possible to help with sleeping. Now I never really had much caffeine drinks in the first place (tea in the morning some days was my regular intake) so it wasn’t a huge deal to
Hi all! So basically when i got diagnosed with fibromyalgia my dr told me i should try to cut out/avoid caffeine as much as possible to help with sleeping. Now I never really had much caffeine drinks in the first place (tea in the morning some days was my regular intake) so it wasn’t a huge deal to
Sandy1212
in
Fibromyalgia Action UK
4 years ago
Low Fetal heart rate at 6+6 *sensitive*
After a week of nerves and not finding any positive stories of a low Fetal heart rate and a successful pregnancy. I have drove myself nuts with being online and reading negative stuff regarding this. At 6+6 the Fetus was growing but the heart rate was low at 85 so they said to keep eye out for miscarriage
After a week of nerves and not finding any positive stories of a low Fetal heart rate and a successful pregnancy. I have drove myself nuts with being online and reading negative stuff regarding this. At 6+6 the Fetus was growing but the heart rate was low at 85 so they said to keep eye out for miscarriage
missyb88
in
Fertility Network UK
4 years ago
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Central Hypothroyid & Sleep Apnea
My thyroid tests typically show normal T3/T4 and suppressed TSH, my latest tests: T3: 4.95 (2.63-5.69) T4: 14.65 (9-19) TSH*: 0.05 (0.27-4.2) * Note: my TSH is typically at this level but I have seen it get to normal level ~1 when T4/T3 drop close to lower range. I was also diagnosed with moderate sleep
My thyroid tests typically show normal T3/T4 and suppressed TSH, my latest tests: T3: 4.95 (2.63-5.69) T4: 14.65 (9-19) TSH*: 0.05 (0.27-4.2) * Note: my TSH is typically at this level but I have seen it get to normal level ~1 when T4/T3 drop close to lower range. I was also diagnosed with moderate sleep
Ali1101
in
Thyroid UK
4 years ago
Langerhans cell histiocytosis
I was diagnosed last year and would like to hear from anyone else diagnosed with lch
I was diagnosed last year and would like to hear from anyone else diagnosed with lch
Mrsclh
in
Lung Conditions Community Forum
4 years ago
Virtual support from Ovacome this week
Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help support our community at this time. This week’s sessions will be: BRCA: Risk-reducing mastectomy chatter - Monday 8 June 2-3pm https://www.ovacome.org.uk
Hello everyone Since the beginning of lockdown we have been running a number of online support and information sessions around different topics, to help support our community at this time. This week’s sessions will be: BRCA: Risk-reducing mastectomy chatter - Monday 8 June 2-3pm https://www.ovacome.org.uk
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Chemo port leading to emergency. Can we remove it during severe anemia?
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
My mother in law is 60year old and was diagnosed with a stage1- 1inch malignant lump with h1+ in her right breast. We moved forward and had her right mastectomy done within 2weeks of detection. After one month we started chemo with docetaxel, carboplatin and trastuzumab as suggested by medical oncologist
Saipb
in
Breast Cancer India
4 years ago
Has anyone had their Breast Cancer metastasized to the breast skin (aka Skin Mets)?
Diagnosed with invasive lobular breast cancer in my right breast in 2015, estrogen and progesterone positive. I subsequently had a mastectomy followed by radiation with clean margins and with no evidence of disease. A couple years later, I had breast reconstruction and it was discovered that my breast
Diagnosed with invasive lobular breast cancer in my right breast in 2015, estrogen and progesterone positive. I subsequently had a mastectomy followed by radiation with clean margins and with no evidence of disease. A couple years later, I had breast reconstruction and it was discovered that my breast
gindifox
in
SHARE Metastatic Breast Cancer
4 years ago
Never give up hope !
Hello ladies. I am new and just got my results. I am soon to be 53 years old next month. I was told today I have Invasive Cancer stage II and Grade 3. It's right on the Nipple area so I chosen to go with Mastectomy of my left breast and get reconstructed later. Good news due to a cancellation my surgery
Hello ladies. I am new and just got my results. I am soon to be 53 years old next month. I was told today I have Invasive Cancer stage II and Grade 3. It's right on the Nipple area so I chosen to go with Mastectomy of my left breast and get reconstructed later. Good news due to a cancellation my surgery
Hidden
in
SHARE Breast Cancer Support
4 years ago
PART 2. NO to radiation treament
After being very stressed about her telling me someone would call and it would be about more than likely getting radiation FIVE DAYS a week from 3 to 6 weeks. I know from a friend that had stage 2 and had chemo, mastectomy, radiation and that the radiation for her was the worse part of it. She said
After being very stressed about her telling me someone would call and it would be about more than likely getting radiation FIVE DAYS a week from 3 to 6 weeks. I know from a friend that had stage 2 and had chemo, mastectomy, radiation and that the radiation for her was the worse part of it. She said
kearnan
in
SHARE Metastatic Breast Cancer
4 years ago
Can anyone relate ?
So ever since we have got the ball rolling again for our next cycle am overthinking everything. Anxiety has kicked in am piling loads of pressure on myself and worried to death. Not to mention explosive arguments with my DF ....I know I have PMT as due within next few days. What is really worrying
So ever since we have got the ball rolling again for our next cycle am overthinking everything. Anxiety has kicked in am piling loads of pressure on myself and worried to death. Not to mention explosive arguments with my DF ....I know I have PMT as due within next few days. What is really worrying
Hope76
in
Fertility Network UK
4 years ago
Starting Afresh
Hi I am Debbie and I am from Belfast. Mentally and physically I have been turned inside out with my diagnosis and treatment. I need to take back control of something in my life and am Hoping that by completing the C25K I can do this. I had completed 4 park runs before my diagnosis and I would absolutely
Hi I am Debbie and I am from Belfast. Mentally and physically I have been turned inside out with my diagnosis and treatment. I need to take back control of something in my life and am Hoping that by completing the C25K I can do this. I had completed 4 park runs before my diagnosis and I would absolutely
Hidden
in
My Breast Cancer Community
4 years ago
9 days with negative home pregnancy test yesterday...
Hello beautiful ladies! Ok so I’m 9 days post 5 day transfer. I’m 31 and this is our first time. Im astonishingly healthy but my husband has like less than 100 sperm in each specimen so icsi/IVF is our only shot. I was silly and took a test yesterday am around 9am. Deff no where close to my first pee
Hello beautiful ladies! Ok so I’m 9 days post 5 day transfer. I’m 31 and this is our first time. Im astonishingly healthy but my husband has like less than 100 sperm in each specimen so icsi/IVF is our only shot. I was silly and took a test yesterday am around 9am. Deff no where close to my first pee
Ivferrr
in
Fertility Network UK
4 years ago
Success with Suboxone?
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
erinjee
in
Restless Legs Syndrome
4 years ago
37yrs old- newly diagnosed with invasive lobular in the right breast. Debating double or single mastectomy. Advice?
Hi, I’m 37 and a mother of 2 boys, the youngest is 19months. I was diagnosed with multifocal invasive lobular carcinoma in my right breast 13 days ago and am a little shaken! So far my doctors don’t suspect any lymph node involvement and the tumor is ER+ PR+ and HER2- which is leading to an excellent
Hi, I’m 37 and a mother of 2 boys, the youngest is 19months. I was diagnosed with multifocal invasive lobular carcinoma in my right breast 13 days ago and am a little shaken! So far my doctors don’t suspect any lymph node involvement and the tumor is ER+ PR+ and HER2- which is leading to an excellent
BackpackingMama
in
SHARE Breast Cancer Support
4 years ago
MS diagnosis vs CIS Diagnosis
Hey guys....my neurologist diagnosed me with RRMS a few weeks ago... i have been waiting on my rebif... the doctor put on the paper work CIS... probably because I’ve only had one episode... so lifeline assistance said RRMS is a requirement for them... my doctor never told me he changed my diagnosis.
Hey guys....my neurologist diagnosed me with RRMS a few weeks ago... i have been waiting on my rebif... the doctor put on the paper work CIS... probably because I’ve only had one episode... so lifeline assistance said RRMS is a requirement for them... my doctor never told me he changed my diagnosis.
Newlyfe
in
My MSAA Community
4 years ago
Secondary Breast cancer in men
After having Mastectomy and Chemo (2018) and 18 months of tamoxifen I have now been diagnosed with secondary breast cancer of the bones (spine and ribs). Any other gents in same situation ? Glenn
After having Mastectomy and Chemo (2018) and 18 months of tamoxifen I have now been diagnosed with secondary breast cancer of the bones (spine and ribs). Any other gents in same situation ? Glenn
GlennCooperUk
in
Male Breast Cancer
4 years ago
Another Taurine Question - Is it a stimulant?
The amino acid Taurine is promoted as a useful supplement for heart rhythm problems. Many sources also state that Taurine is a relaxant, and can even be used as sleep aid before bed because it increases GABA in the brain. Yet it is also included in energy drinks like Red Bull, which does not make sense
The amino acid Taurine is promoted as a useful supplement for heart rhythm problems. Many sources also state that Taurine is a relaxant, and can even be used as sleep aid before bed because it increases GABA in the brain. Yet it is also included in energy drinks like Red Bull, which does not make sense
PlanetaryKim
in
AF Association
4 years ago
Bad heads
Hi just asking if any one else gets bad heads with this or though mine seems to be on one side every time . And also do you get sleep problems as well I do some times I go to bed about 10.00 pm because I’m so tired but them I’m up again by 10.30 pm because I just can’t sleep as I’ve got so much pain
Hi just asking if any one else gets bad heads with this or though mine seems to be on one side every time . And also do you get sleep problems as well I do some times I go to bed about 10.00 pm because I’m so tired but them I’m up again by 10.30 pm because I just can’t sleep as I’ve got so much pain
hitman57
in
Fibromyalgia Action UK
4 years ago
Introducing myself
I am 66, living in MA, USA. I have had a double mastectomy in 2012. In 2019, they discovered some mets in my spine. I am taking Letrazole and Ibrance 75 mg.
I am 66, living in MA, USA. I have had a double mastectomy in 2012. In 2019, they discovered some mets in my spine. I am taking Letrazole and Ibrance 75 mg.
SMPG
in
SHARE Metastatic Breast Cancer
4 years ago
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