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COPD and Radiation for Breast Cancer
I am trying to find information on the potential effects on my existing COPD if I have radiation therapy for breast cancer. I am being treated at a top cancer center in the US and they definitely promote lumpectomy plus radiation over mastectomy. I am almost 70 years old and a widow, and I really don't
I am trying to find information on the potential effects on my existing COPD if I have radiation therapy for breast cancer. I am being treated at a top cancer center in the US and they definitely promote lumpectomy plus radiation over mastectomy. I am almost 70 years old and a widow, and I really don't
kathleen123
in
Lung Conditions Community Forum
1 year ago
Gastrostomy
My mother is suffering from PSP for last 6 years. She has already lost most of her abilities due to disease. Last October, her doctor prescribed to instal gastrostomy. It was great idea, since she has been loosing ability to be eat via mouth. We installed one type of gastrostoma, then another, after
My mother is suffering from PSP for last 6 years. She has already lost most of her abilities due to disease. Last October, her doctor prescribed to instal gastrostomy. It was great idea, since she has been loosing ability to be eat via mouth. We installed one type of gastrostoma, then another, after
Dend88
in
PSP Association
1 year ago
Anyone tried Sulbutiamine to help with fatigue etc?? If so how did you get on??
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Quasarlis
in
Thyroid UK
1 year ago
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New pain, flare or new issues?
I recently posted about new severe pain in my back, left hip, and right ankle, affecting my sleep and walking. I was diagnosed 3 years ago with PMR and GCA. I’ve been stuck at 9 mg pred since last summer. Last week I saw my primary care doctor’s Nurse Practitioner who said the back
I recently posted about new severe pain in my back, left hip, and right ankle, affecting my sleep and walking. I was diagnosed 3 years ago with PMR and GCA. I’ve been stuck at 9 mg pred since last summer. Last week I saw my primary care doctor’s Nurse Practitioner who said the back
Mstiles
in
PMRGCAuk
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Stiffness when tapering
Well I have already posted my history, although I should maybe update my profile to date, but now I have decreased fairly quickly, as per rheumy,s instructions, since Dec at 40 mgs, (due to suspected GCA), which apparently did not show in temporal ultrasound, at any rate, now down to 10 mgs, for this
Well I have already posted my history, although I should maybe update my profile to date, but now I have decreased fairly quickly, as per rheumy,s instructions, since Dec at 40 mgs, (due to suspected GCA), which apparently did not show in temporal ultrasound, at any rate, now down to 10 mgs, for this
arvine
in
PMRGCAuk
1 year ago
Not Tolerating Xtandi
I started Xtandi 11/30/22 on top of Orgovix when PSA was 29 . Late January23 PSA was down to 4.1 and i was tolerating it well i thought. I dont want to let the beast loose but dont want to kill myself either. Recently 4/7/23 had an issue with my neck and shoulder causing so much pain I could not turn
I started Xtandi 11/30/22 on top of Orgovix when PSA was 29 . Late January23 PSA was down to 4.1 and i was tolerating it well i thought. I dont want to let the beast loose but dont want to kill myself either. Recently 4/7/23 had an issue with my neck and shoulder causing so much pain I could not turn
rick8637
in
Advanced Prostate Cancer
1 year ago
tirosint 50
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
jand123
in
Thyroid UK
1 year ago
Guidelines
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Linac
in
Thyroid UK
1 year ago
Periodic Limb Movement Disorder
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Theonlypetied
in
Restless Legs Syndrome
1 year ago
Researchers discover a potential cause of Parkinson's disease
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
Farooqji
in
Cure Parkinson's
1 year ago
Daily consumption of methylene blue reduces attentional deficits and dopamine reduction in a 6-OHDA model of Parkinson’s disease
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
PDWarrior1900
in
Cure Parkinson's
1 year ago
Sleep problems
I have been an insomniac for years but since being diagnosed with PD my problems with sleep have increased to the point I rarely get as much as 2 hours of sleep per night. I have tried so many alternative therapies as well as sleeping pills from the GP but found little aid. There is a possibility there
I have been an insomniac for years but since being diagnosed with PD my problems with sleep have increased to the point I rarely get as much as 2 hours of sleep per night. I have tried so many alternative therapies as well as sleeping pills from the GP but found little aid. There is a possibility there
b5p10
in
Cure Parkinson's
1 year ago
Ichthyosis
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
Rando21
in
CLL Support
1 year ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
heat or baclofen?
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
irhunter
in
My MSAA Community
1 year ago
Multi Vitamins
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
Molly100
in
Hughes Syndrome APS Forum
2 years ago
Ibrance plus letrozole working
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
myrtice
in
SHARE Metastatic Breast Cancer
2 years ago
Weight Gain, Duloxetine & Fibromyalgia
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
nellie_deany
in
Fibromyalgia Action UK
1 year ago
Chorea and PV
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
PFR1937
in
MPN Voice
1 year ago
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