Ibrance plus letrozole working - SHARE Metastatic ...

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Ibrance plus letrozole working

myrtice profile image
18 Replies

I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did not tell my onc as I didn’t think he would approve. 🥹I eat balanced meals consisting of lots of fruits and vegetables. with very little sugar consumption.

I’m 76 and blessed with energy to travel and keep 4 year old great grands. I enjoy reading and working in my yard. Involved in church, book club and canaster games.

We are all unique and finding the right balance can be exhausting. Keep trying to be positive and seeking the good in all things. Much love to us all in this journey. My prayer is for a cure soon. ❤️

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myrtice profile image
myrtice
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18 Replies
SeattleMom profile image
SeattleMom

God bless you!! 💗💗🙏🏻🙏🏻

Best521 profile image
Best521

The perfect recipe for a Happy MBC Life. 🥰 The 75 mg 2 weeks on 2 weeks off is good information. Thank you for sharing.

Apes63 profile image
Apes63

Good morning! That is so encouraging to read! I completed one month of Ibrance and letrozole and I struggled with nausea, infections and eye trouble. They reduced the dose to 100mg and I feel better at the moment - I will start week 2 of the cycle this evening. I have mets to many bones, liver and bladder neck. I hope my outcome will be as good as yours.

Enjoy your day and great grandchildren. x

myrtice profile image
myrtice in reply to Apes63

it took 6 months to get the Ibrance regulated. My white count stayed too low until we got to the 75mg. Praying this works for you. God bless.

Totheriver profile image
Totheriver in reply to myrtice

that happened to me too.

Khoya95 profile image
Khoya95 in reply to Apes63

Hi, I use drops in eyes to moisten them and it helps to some extent. Do talk to an eye doctor and it might help.

Granny333 profile image
Granny333 in reply to Apes63

I too start on 100.

love2golfwell profile image
love2golfwell

That is so awesome. Hope you continue to be blessed with good results and health.

Dragonfly2 profile image
Dragonfly2

Hello! your post must bring hope and peace to many who are on this journey. Yes, once you find that sweet spot, the balance is indeed precious. IBrance does work but too often it takes a while to get to the dosage that works but doesn’t hurt you…glad the two weeks on/two weeks off is working. I had to find a sweet spot that came to be 5 days on/ 2 days off. 🙏😘 best of luck!

Granny333 profile image
Granny333 in reply to Dragonfly2

I did have powder inserted in right lung. Started back on I brance 100 and I am looking to 2023. Happy New year everyone👍

Cowgirl1951 profile image
Cowgirl1951

Thank you for sharing. I was so fatigue with Ibrance in 2020 that my onc took me off. Here at the end of 2022 I have started Kisqali for cancer of femar, sacrum, and spine. I wished my onc had been creative (or me) before taking me off Ibrance. I would have rather stayed on Ibrance longer. It's good to hear your experience and appreciate you posting.

Aquadog profile image
Aquadog

So glad to see your post! Love your attitude and reading how well you're doing. I've been on Ibrance 100mg/letrozole for almost six years, but haven't been able to get my neutrophils over .8 the last two months. Apparently, my body has now decided the higher dose is too much. My onco decided I'll start 75mg after my current box of 100 mg are gone (he didn't want to waste them!). He modified my schedule using the 100mg to simulate a dosage reduction to 75mg and on Jan 3 I'll see if that helped. I'll admit I've been a little nervous about the switch, but now I'm thinking if it works, it works - the 25mg won't change that - and maybe my numbers will improve and I can stay on Ibrance for a long time to come.

Sending hugs

Susan

myrtice profile image
myrtice in reply to Aquadog

I pray the mg reduction of Ibrancewill do the trick. It took me 6 months to get to the dosage that worked. Keep the faith .

mariootsi profile image
mariootsi

So happy you are doing well! Blessings and continued success in the new year!Marianne

AutumnLove profile image
AutumnLove

Excellent Post! Ty🙏🏼

Chicky05 profile image
Chicky05

good to hear! Been on Ribocyclib & Lesterozole for several yrs & had double mastectomy yrs ago now bone cancer last 4yrs. & using narcotics for pain control but very hard to manage & now loosing hair & have asked oncologist if can change.

penpen18 profile image
penpen18

Thank you for sharing. Happy New Year.

Granny333 profile image
Granny333

I too have to make a decision to go on Ibrance 75 . I have been off because my system don’t tolerate at all

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