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Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
2 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
2 months ago
Octasa / Mesalazine - Should I be seeing more of a change?
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
VV_1990
in
Crohn's and Colitis Support
6 months ago
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I don't fall into any category not IBS-D or IBS-C...is it still IBS?
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
Catsandsunsets
in
IBS Network
6 months ago
What are "normal" bowel movements?
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
Catsandsunsets
in
IBS Network
6 months ago
Indeterminate liver lesion
I had an MRI 3 months ago that showed a 6cmx5cm lesion. I had a follow up 3 months later with eovist that showed same size, heterogenous "indeterminate lesion, possible adenoma". No one seems to know what this is and I am freaking out. Does anyone have any experience with this? Do I do a biopsy? Straight
I had an MRI 3 months ago that showed a 6cmx5cm lesion. I had a follow up 3 months later with eovist that showed same size, heterogenous "indeterminate lesion, possible adenoma". No one seems to know what this is and I am freaking out. Does anyone have any experience with this? Do I do a biopsy? Straight
kbrink08
in
British Liver Trust
8 months ago
Pred and stomach upsets
I’m just wondering if being on Pred makes my stomach more easily upset? I’ve been on it for 2 years now, but have always taken it with Omeprazole. I’ve noticed that I’ve had frequent bouts of vomiting over the last 2 years, whereas previously I hadn’t been sick for years and it was very rare. As a primary
I’m just wondering if being on Pred makes my stomach more easily upset? I’ve been on it for 2 years now, but have always taken it with Omeprazole. I’ve noticed that I’ve had frequent bouts of vomiting over the last 2 years, whereas previously I hadn’t been sick for years and it was very rare. As a primary
Apple6
in
PMRGCAuk
6 months ago
Polychromasia in peripheral smear?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
Xuzy
in
MPN Voice
8 months ago
Augmenting Standard of Care.
An English woman, Jane McClelland, wrote a book called, "How to Starve Cancer Without Starving Yourself." She was diagnosed with cervical cancer and jumped through all the necessary hoops/procedures but was ultimately sent home to get her affairs in order. She was already working in healthcare so she
An English woman, Jane McClelland, wrote a book called, "How to Starve Cancer Without Starving Yourself." She was diagnosed with cervical cancer and jumped through all the necessary hoops/procedures but was ultimately sent home to get her affairs in order. She was already working in healthcare so she
jtango
in
Advanced Prostate Cancer
8 months ago
Goldpharma not letting me buy B12
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hayley31
in
Pernicious Anaemia Society
6 months ago
nexplanon implant removal
hi ladies, I’ve bled constantly since having my excision surgery in October. Been to my specialist who recommended that I have my implant out and reset my body completely then see about another form of contraceptive control in 3-6 months. Just had my implant removed today. Wondering how long it might
hi ladies, I’ve bled constantly since having my excision surgery in October. Been to my specialist who recommended that I have my implant out and reset my body completely then see about another form of contraceptive control in 3-6 months. Just had my implant removed today. Wondering how long it might
Kieraface
in
Endometriosis UK
6 months ago
Fibocalm
Hi, I have been trying the new Fibocalm for constipation capsules, but they are causing much worse bloating. I assume it’s Xyloglucan ingredient which I think is a FODMAP. It doesn’t matter what I try it’s always worse. Anyone else found this? Ros
Hi, I have been trying the new Fibocalm for constipation capsules, but they are causing much worse bloating. I assume it’s Xyloglucan ingredient which I think is a FODMAP. It doesn’t matter what I try it’s always worse. Anyone else found this? Ros
Gardener
in
IBS Network
6 months ago
Hemorrhoids and ibs
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Jojams
in
IBS Network
6 months ago
Good news
I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes. This week I had a call from oncologist largely because she's liaising with my dentist about dental work. Basically she was telling me it was worth
I said recently in my post that I'm pleased not to dwell on the numbers and keep everything in perspective. But I still appreciate good news when it comes. This week I had a call from oncologist largely because she's liaising with my dentist about dental work. Basically she was telling me it was worth
Beryl71
in
SHARE Metastatic Breast Cancer
8 months ago
foods to eat for longevity
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
LAJ12345
in
Cure Parkinson's
8 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
3 months ago
don’t know what to think anymore.
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked
Kerri1402
in
Colon Cancer Connected
8 months ago
Can’t cope anymore
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
catbones0421
in
Anxiety and Depression Support
3 months ago
Iron supplement recommendations please
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Mummybear0213
in
Thyroid UK
6 months ago
A new immunotherapy trial?
Not really super new...but maybe it could help someone! https://jitc.bmj.com/content/10/Suppl_2/A781 For advanced prostate cancer and other solid tumors
Not really super new...but maybe it could help someone! https://jitc.bmj.com/content/10/Suppl_2/A781 For advanced prostate cancer and other solid tumors
Maxone73
in
Advanced Prostate Cancer
8 months ago
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