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any info please
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
soupersuzy
in
Restless Legs Syndrome
9 months ago
Methylene Blue: Biohacker's Delight, or Playing With Fire? Chris Masterjohn, PhD is Not Too Keen on MB :( Insanely Detailed Video!
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
Bolt_Upright
in
Cure Parkinson's
9 months ago
THC Gummies
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
tuckerdog109
in
Restless Legs Syndrome
9 months ago
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Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
9 months ago
My updated post…I saw Dr. Davenport head of ABN (Association of British Neurologists) today .
Dear Dr. Davenport , You kindly saw me today so I could get advice for my RLS for now and in the future. I also asked you for general advice for my future treatment in case certain drugs are forbidden to be prescribed. I particularly went to you as you are an eminent neurologist and head of the
Dear Dr. Davenport , You kindly saw me today so I could get advice for my RLS for now and in the future. I also asked you for general advice for my future treatment in case certain drugs are forbidden to be prescribed. I particularly went to you as you are an eminent neurologist and head of the
Kakally
in
Restless Legs Syndrome
9 months ago
Sleep Aid 2
Asked my PCP and Cardiologist for
sleep
aid
recommendations and got these responses: PCP: "I would stick to things like melatonin and antihistamines to avoid complications with your arrythmia as most others are going to be sedatives which can adversely affect those."
Asked my PCP and Cardiologist for
sleep
aid
recommendations and got these responses: PCP: "I would stick to things like melatonin and antihistamines to avoid complications with your arrythmia as most others are going to be sedatives which can adversely affect those."
Jafib
in
Atrial Fibrillation Support
1 year ago
Chronic Endometritis
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Hey lovely ladies! My question today related to endometritis/chronic uterine inflammation. I have done 4 hysteroscopies so far (two in 2021, one in 2022, one in 2023), each time the inflamed endometrium came out, with a "strawberry" appearance. After the tests, I came out positive for Ureaplasma (at
Anita85
in
Fertility Network UK
9 months ago
Psalm 119:143
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
Psalm119143
in
Cure Parkinson's
9 months ago
Parkinson's may progress more overnight - what do you use to help you get a good night sleep?
Interesting article, based in fruit flies but the implications for PwP could be significant:https://neurosciencenews.com/circadian-rhythm-parkinsons-23996/ I'm interested in what the community has found helps
aid
sleep
.
Interesting article, based in fruit flies but the implications for PwP could be significant:https://neurosciencenews.com/circadian-rhythm-parkinsons-23996/ I'm interested in what the community has found helps
aid
sleep
.
MarkPrana
in
Cure Parkinson's
9 months ago
Extremely tired of chemical castration
I'm interested in chatting with those who have had an orchiectomy, guess thats how you spell it. I'm tired of all the side affects of cancer drugs and all the problems they cause to my body so I'm concidering having an orchiectomy. Yes I know all about what happens when you get this but as far as I'm
I'm interested in chatting with those who have had an orchiectomy, guess thats how you spell it. I'm tired of all the side affects of cancer drugs and all the problems they cause to my body so I'm concidering having an orchiectomy. Yes I know all about what happens when you get this but as far as I'm
woppaginny
in
Advanced Prostate Cancer
1 month ago
sleep apnea and afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
Xian1
in
Atrial Fibrillation Support
9 months ago
Horizitom
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
tuckerdog109
in
Restless Legs Syndrome
9 months ago
LDN Dosing for Cancer - General Guide
If the patient has pre-existing insomnia, I would add a natural
sleep
aid
that is also anti-cancer, like melatonin 20 – 60mg at bedtime, or HonoPure 1 – 3 capsules at bedtime. The other option is to use morning LDN dosing.
If the patient has pre-existing insomnia, I would add a natural
sleep
aid
that is also anti-cancer, like melatonin 20 – 60mg at bedtime, or HonoPure 1 – 3 capsules at bedtime. The other option is to use morning LDN dosing.
Shewulf
Administrator
in
LDN Research Trust
1 year ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
9 months ago
Gabapentin
So I did a lot of research, based on a comment from the psychiatrist, about gabapentin being used off label as a mood stabiliser, and also as a
sleep
aid
, and as an aid to reduce heavy drinking.
So I did a lot of research, based on a comment from the psychiatrist, about gabapentin being used off label as a mood stabiliser, and also as a
sleep
aid
, and as an aid to reduce heavy drinking.
patez
in
Mental Health Support
1 year ago
Anyone experience insomnia since starting pirtobrutinib?
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
ReneeSusan
in
CLL Support
10 months ago
Great video on healing a "leaky gut" and I found this probiotic to be the best deal on Amazon!
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
PDWarrior1900
in
Cure Parkinson's
10 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
3 months ago
I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
Mark1499
in
My MSAA Community
10 months ago
Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
10 months ago
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