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High Dose CL ?
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
I am often puzzled by the high dose her neurologist/ movement specialist has her taking. I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a Rytary along with 3mg Melatonin.
Furch
in
Cure Parkinson's
1 year ago
Do you have testicular pain after drinking coffee? What is the reason?
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Have you ever had this experience? Tell you my opinion. Possible reasons include: 1. Caffeine allergy or allergic reaction: Some people may be allergic to caffeine, which can lead to uncomfortable symptoms, including testicular pain. 2. Urinary system issues: Caffeine is a diuretic that may lead to
Henry0831
in
Pain Concern
1 year ago
Learn CPR and Defibrillator training
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
Nevharris
in
British Heart Foundation
5 months ago
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What is the difference in Cartizem verses Metopropol for tachy and afib?
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
I just stopped all cardizem a month ago, Dr. agreed . I got 115 beats per. minuts yesterday at 4:00pm, got scared as I am alone, and did NOT want to to hospital ER.. Kardi mobile said it was Tachycardia. I was to frightened to go through the night like that and I took A Cardizem 180 24 HR ER. took
scardycat
in
Arrhythmia Alliance
1 year ago
trying to come off ropinole
would an over the counter
sleep
aid
help …
would an over the counter
sleep
aid
help …
Myteamo
in
Restless Legs Syndrome
1 year ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
1 year ago
Bunion operation
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Hi, I am having a bunion operation and hammer toe correction next week (minimal invasive surgery). I'm currently on 3.75mg prednisone. Should I follow sick day rules, maybe increase to 5mg, or first discuss with surgeon and anaesthetist? Thank for this very helpful forum.
Nolsie
in
PMRGCAuk
1 year ago
No more spaghetti or jelly legs!
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
Mark1499
in
My MSAA Community
1 year ago
3rd and final chance of cardioversion
Hi Im now at the anniversary of 4 years of persistent af, yesterday I was at a checkup and it’s been decided I’m going to have a cardio version think this will be the last go as last two didn’t work. I’ve worked hard this time and lost 4 stone much more active , and now have a cpap machine which I
Hi Im now at the anniversary of 4 years of persistent af, yesterday I was at a checkup and it’s been decided I’m going to have a cardio version think this will be the last go as last two didn’t work. I’ve worked hard this time and lost 4 stone much more active , and now have a cpap machine which I
Janelr
in
Atrial Fibrillation Support
1 year ago
MSA or PSP - Parkinson's Plus
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Hello,My brother is in mid 40s , diagnosed with Parkinson in 2020 after getting COVID-19. Since then, he has detoriated very rapidly. He has had MIBG scan recently which reveals he has PSP or MSA. We are very worried for him, at his age we weren't expecting this. Anyone in similar situation? What's the
Sarah106
in
Cure Parkinson's
1 year ago
I am a vitamin pill junkie
The only recent thing that seems to work is Valerian Root as an
aid
to
sleep
, it really has made a difference. But of course with taking so many supplements its impossible to know what's good and what's rubbish.
The only recent thing that seems to work is Valerian Root as an
aid
to
sleep
, it really has made a difference. But of course with taking so many supplements its impossible to know what's good and what's rubbish.
secrets22
in
Anxiety and Depression Support
6 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
8 months ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
1 year ago
any info please
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
My consultant has suggested I try Valproate or Levetiracetam for my RLS/PLMD. Has anybody tried either of these and had any success or otherwise?
soupersuzy
in
Restless Legs Syndrome
1 year ago
Methylene Blue: Biohacker's Delight, or Playing With Fire? Chris Masterjohn, PhD is Not Too Keen on MB :( Insanely Detailed Video!
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
I take a small amount of MB twice a day. As close as I can tell from this insanely detailed video, this PhD probably thinks I am making a mistake :(
Methylene Blue: Biohacker's Delight, or Playing With Fire:
https://www.youtube.com/watch?v=XhgGGbdw4zE
This is a 51-page guide in which you
Bolt_Upright
in
Cure Parkinson's
1 year ago
THC Gummies
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
THC gummies worked for the first couple of times but, last time I took it I was super paranoid and definitely not sleeping. It’s not for me . To date, I’m taking one Pramipexole and one 12.5 ambien day night and sleep 4-5 hours and experience mild to no symptoms the following day. So far so good
tuckerdog109
in
Restless Legs Syndrome
1 year ago
Success with clonidine as a supplementary medication
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Sharing some recent success. I have taken pregabalin 300mg for a number of years but have also supplemented it with a very small dose of clonazepam (between 0.125 and 0.5m) I started weaning off clonazepam approx 3 months ago because it's not desirable to take benzodiazepines long term (i'm weaning
Hidden
in
Restless Legs Syndrome
1 year ago
Parkinson's may progress more overnight - what do you use to help you get a good night sleep?
Interesting article, based in fruit flies but the implications for PwP could be significant:https://neurosciencenews.com/circadian-rhythm-parkinsons-23996/ I'm interested in what the community has found helps
aid
sleep
.
Interesting article, based in fruit flies but the implications for PwP could be significant:https://neurosciencenews.com/circadian-rhythm-parkinsons-23996/ I'm interested in what the community has found helps
aid
sleep
.
MarkPrana
in
Cure Parkinson's
1 year ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
7 months ago
Sleep
Hi, I vaguely recall someone discussing Nytol herbal
sleep
aid
tablets a while ago, there are green boxes & blue boxes & someone recommended one of these but I can't remember which one was considered more useful when suffering with Tinnutis & poor sleep???Any help much appreciated
Hi, I vaguely recall someone discussing Nytol herbal
sleep
aid
tablets a while ago, there are green boxes & blue boxes & someone recommended one of these but I can't remember which one was considered more useful when suffering with Tinnutis & poor sleep???Any help much appreciated
Tia4
in
Tinnitus UK
2 years ago
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