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Selegiline run out
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
Ardbeg28
in
Cure Parkinson's
10 months ago
**TW** TFMR Trisomy 18 help needed
Hi,Not the update I wanted to post. A very detailed anatomy scan today showed positive signs for Trisomy 18. The consultant said he was sorry and gave me my options. I've chosed to terminate the pregnancy for medical reasons as this abnormality isn't compatible with life. I'm absolutely heartbroken
Hi,Not the update I wanted to post. A very detailed anatomy scan today showed positive signs for Trisomy 18. The consultant said he was sorry and gave me my options. I've chosed to terminate the pregnancy for medical reasons as this abnormality isn't compatible with life. I'm absolutely heartbroken
Molliemoo85
in
Fertility Network UK
10 months ago
20 July 2023 Every little bit helps
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
RoyceNewton
in
My MSAA Community
10 months ago
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Advice desperately needed please
Has anybody who can only take Zentiva hydroxychloroquine been offered IPCA Hydroxychloroquine? Has it same make up as Quinoric or bristol laborotories? If you have did you tolerate it ok please. As yet again cannot get Zentiva!! I find it so frustrating, that I am now in tears over it, any info very
Has anybody who can only take Zentiva hydroxychloroquine been offered IPCA Hydroxychloroquine? Has it same make up as Quinoric or bristol laborotories? If you have did you tolerate it ok please. As yet again cannot get Zentiva!! I find it so frustrating, that I am now in tears over it, any info very
Poshcards
in
LUpus Patients Understanding and Support
10 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
3 months ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
10 months ago
Good resources regarding vagal AFIB?
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
Does anyone have any good resources (articles, YouTube videos) directed to vagally-mediated AFIB (the type that occurs after a large meal or while sleeping)? I believe my AFIB was triggered by endurance athletics (I used to do long bike rides and probably overdid it and stressed my body too much).
dw98611
in
AF Association
10 months ago
fatigue
Hello I’m ET jak2 positive and suffer from extreme fatigue. I am currently off work and eager to return, I have been reading an article about MPN and the use of antidepressants to combat the fatigue Some antidepressants may help combat fatigue. Additionally, several small trials have found an increase
Hello I’m ET jak2 positive and suffer from extreme fatigue. I am currently off work and eager to return, I have been reading an article about MPN and the use of antidepressants to combat the fatigue Some antidepressants may help combat fatigue. Additionally, several small trials have found an increase
YBSx
in
MPN Voice
10 months ago
PERIODIC LIMB MOVEMENT DISORDER
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
Maximus01
in
Restless Legs Syndrome
11 months ago
Members' Day talk on steroid side-effects in PMR and GCA: the lived experience day to day
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Fran_Benson
Partner
in
PMRGCAuk
11 months ago
Virtual Reality Therapy Anyone?
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
Wtfisup
in
My MSAA Community
11 months ago
Value of LDH
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
fourputt
in
Advanced Prostate Cancer
11 months ago
Learn CPR and Defibrillator training
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
More people need CPR training. Not enough people do. I am an ex Nurse and Firefighter and seen first hand the benefits of learning CPR ect. I now have my First Aid Instructor qualification and teach Basic Life Support-CPR-Defibrillator training. My own training has helped me in 2 different situations
Nevharris
in
British Heart Foundation
15 days ago
Femara success?
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Mrsjaytee
in
Fertility Network UK
11 months ago
I am a vitamin pill junkie
The only recent thing that seems to work is Valerian Root as an
aid
to
sleep
, it really has made a difference. But of course with taking so many supplements its impossible to know what's good and what's rubbish.
The only recent thing that seems to work is Valerian Root as an
aid
to
sleep
, it really has made a difference. But of course with taking so many supplements its impossible to know what's good and what's rubbish.
secrets22
in
Anxiety and Depression Support
1 month ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
2 months ago
Another trigger?
Twenty days on from my last PAF, thinking will probably clear another 40 days to the next as per usual pattern. Great day, trip to the seaside, lunch with old friends, home to relaxing small dinner, feet up. Had slight constipation last few days, thought I would give a try to a new version of Fybogel
Twenty days on from my last PAF, thinking will probably clear another 40 days to the next as per usual pattern. Great day, trip to the seaside, lunch with old friends, home to relaxing small dinner, feet up. Had slight constipation last few days, thought I would give a try to a new version of Fybogel
50568789
in
Atrial Fibrillation Support
11 months ago
Sleep Depravation
My question is has anybody got any advice regarding medication that can
aid
his
sleep
? thank you
My question is has anybody got any advice regarding medication that can
aid
his
sleep
? thank you
Northants1
in
PSP Association
9 months ago
APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
11 months ago
progynova prior IVF
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
Silvi23
in
Fertility Network UK
11 months ago
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