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Why don’t doctors read notes properly before calling patients?
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
I have been on immunotherapy for 15 mths to treat 4 HCC tumours . In December 2023 my scan showed some ‘pseudo growth’ and I was given a further 3 mths treatment. Last Monday I was anxiously awaiting my results for the latest scan. The oncologist phoned and reported “no spread but some shadows a little
AthenaJason
in
British Liver Trust
6 months ago
Guts won't restart properly after op
I just had a minor op (Wednesday) when they numbed my bum (and around there, interesting). Now possibly due to painkillers that I tried to avoid I can't get things going -one nurse gave me tramadol assuring me it's fine for constipation (not, I trusted). They gave me a load of dulcolax tablets in the
I just had a minor op (Wednesday) when they numbed my bum (and around there, interesting). Now possibly due to painkillers that I tried to avoid I can't get things going -one nurse gave me tramadol assuring me it's fine for constipation (not, I trusted). They gave me a load of dulcolax tablets in the
XDjames
in
IBS Network
2 months ago
Low Iron
Hi guys! Like suggested lve done my full Iron panel! Could you please recommend the best dietary iron sources, except for liver pâté, which I'm already aware of? Also, if I'm unable to eat enough iron daily, are there any highly absorbable iron supplements you could recommend? I've been taking Spatone
Hi guys! Like suggested lve done my full Iron panel! Could you please recommend the best dietary iron sources, except for liver pâté, which I'm already aware of? Also, if I'm unable to eat enough iron daily, are there any highly absorbable iron supplements you could recommend? I've been taking Spatone
Faith442024
in
Thyroid UK
2 months ago
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Never been this low in 9 and a half years!
Hi It has been a long time since I have posted anything as have been severely ill with my asthma for the past two and a half years so that has taken all my time.To cut a long story short I am now on biological therapy which has so far changed my life!. Anyway I am now doing the dead slow method or whatever
Hi It has been a long time since I have posted anything as have been severely ill with my asthma for the past two and a half years so that has taken all my time.To cut a long story short I am now on biological therapy which has so far changed my life!. Anyway I am now doing the dead slow method or whatever
pmrdec112014
in
PMRGCAuk
2 months ago
IBS - yellowish tint urine/stool while on colpermin?
Hello! I have been suffering from IBS for years with test revealing am also lactose and gluten intolerant. I am currently visiting my sis overseas and had a flare up roughly 5 days ago. I just started taking Colpermin caps and Silicogel sachets and cutting off again any possible food culprits. This is
Hello! I have been suffering from IBS for years with test revealing am also lactose and gluten intolerant. I am currently visiting my sis overseas and had a flare up roughly 5 days ago. I just started taking Colpermin caps and Silicogel sachets and cutting off again any possible food culprits. This is
JaneGPF
in
IBS Network
2 months ago
Protein c protein s
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?
DonnaD123
in
LUPUS UK
2 months ago
Vitamin B12 - Missing piece?
Hello Everyone, I hope you're all enjoying the sunshine! I've recently started taking Vitamin B12 supplements (specifically, https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin ) on weekends before bedtime, and I've noticed some positive effects. The following day
Hello Everyone, I hope you're all enjoying the sunshine! I've recently started taking Vitamin B12 supplements (specifically, https://www.cytoplan.co.uk/vitamin-b12-sublingual-as-methylcobalamin-adenosylcobalamin ) on weekends before bedtime, and I've noticed some positive effects. The following day
BookLover2020
in
Thyroid UK
2 months ago
self inject journey
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Hi all So have ordered B12 from Versandepo.de. (I think - bad brain fog at mo) I need to order needles etc from medisave, as recommended on here, any one advise list of what to order, going to do subcut as not good with needles….🤢 (horrible childhood exp). IM Injection at Gp Monday but not going to
Bacca
in
Pernicious Anaemia Society
2 months ago
Update: NEPC Treatment
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
A few people messaged me regarding updates about my dad’s participation in Duke CHAMP trial for small cell/NEPC. He was admitted into trial Dec ‘23 and received 3 immunotherapy infusions until he had a very severe allergic reaction causing intense itching and grade 4 red rash all over his body. He admitted
antisocialsocialwrkr
in
Advanced Prostate Cancer
6 months ago
Could this be IBS-C or slow transit?
I'm 79 and suffered with constipation on and off for more than 10 years and got to the stage where I only have a movement by using bisacodyl, nothing else works for me, I take 3 every 5days, which clears me out I feel well, appetite is good and have not lost any weight. Had FIT and blood tests both
I'm 79 and suffered with constipation on and off for more than 10 years and got to the stage where I only have a movement by using bisacodyl, nothing else works for me, I take 3 every 5days, which clears me out I feel well, appetite is good and have not lost any weight. Had FIT and blood tests both
Bazh
in
IBS Network
2 months ago
Tirosint - can anyone advise how I can find out if this brand is available in my area?
I am struggling to access lactose free Levothyroxine at my GP surgery’s pharmacy and have read that Tirosint has fewer excipients than most brands of T4 and wondered if anyone could advise me the best way forward for accessing this brand/or other similar brands? Many thanks.
I am struggling to access lactose free Levothyroxine at my GP surgery’s pharmacy and have read that Tirosint has fewer excipients than most brands of T4 and wondered if anyone could advise me the best way forward for accessing this brand/or other similar brands? Many thanks.
Mac2013
in
Thyroid UK
2 months ago
My dad has CLL with TP53 mutation
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions of chemotherapy and went back to remission Lately in January he noticed some lymph nodes in his neck as well as in his face After examination
Ornate2001
in
CLL Support
6 months ago
ferritin level suddenly jumped.. can this happen??
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
Starseed56
in
Thyroid UK
2 months ago
Endometriosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Women's Health
8 months ago
Endo diagnosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Endometriosis UK
8 months ago
Still struggling with BP meds
Hi everyoneHaven't posted for a while not sure why I get BHF posts and none for this page anymore ? Anyway still having difficulties with meds and would be grateful for any help please . I am now on Irbesartan 75mg felt dreadful the first few days but seems to be settling. I am also on Rosuvastatin
Hi everyoneHaven't posted for a while not sure why I get BHF posts and none for this page anymore ? Anyway still having difficulties with meds and would be grateful for any help please . I am now on Irbesartan 75mg felt dreadful the first few days but seems to be settling. I am also on Rosuvastatin
BobbyCollins
in
High Blood Pressure Support
2 months ago
help hand hold
hello everyone . I have had pain in my low left quadrant , it’s literally below my bikini line so unsure even if it is bowel related . My fecal calprotectin came back as 690, but I’m being tested for h plorie so I assume I’ve had a stomach bug . However the pain in the area stated , below my bikini
hello everyone . I have had pain in my low left quadrant , it’s literally below my bikini line so unsure even if it is bowel related . My fecal calprotectin came back as 690, but I’m being tested for h plorie so I assume I’ve had a stomach bug . However the pain in the area stated , below my bikini
Kali2306
in
Colon Cancer Connected
2 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
4 months ago
Malecare newsletter reports Finish study glucocorticoids (e.g. prednisone, prednisolone, dexamethasone) can lead to castrate resistance
“However, recent studies have shown that the glucocorticoid receptor also has an oncogenic, or cancer-promoting, effect in cancers like breast and prostate cancer. In prostate cancer, the glucocorticoid receptor can replace the activity of the androgen receptor, which is main oncogenic factor in this
“However, recent studies have shown that the glucocorticoid receptor also has an oncogenic, or cancer-promoting, effect in cancers like breast and prostate cancer. In prostate cancer, the glucocorticoid receptor can replace the activity of the androgen receptor, which is main oncogenic factor in this
Graham49
in
Advanced Prostate Cancer
6 months ago
how to reduce testosterone after orchiectomy
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
NOTE : An orchiectomy is a surgical procedure to remove one or both testicles. Posting here to learn from others. Questions is How to reduce testosterone after Orchiectomy ?
God_Loves_Me
in
Advanced Prostate Cancer
6 months ago
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