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Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
6 months ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
6 months ago
b12 injections
i am on iron tablets..b12 injections 2 a week for 3 weeks and folate. i'm complicated sadly and noone has answers . let down by one gastro waiting to see usual one both refused tests . despite 4 injections and being told b12 can affect msny things like mood its never been mentioned it can help with
i am on iron tablets..b12 injections 2 a week for 3 weeks and folate. i'm complicated sadly and noone has answers . let down by one gastro waiting to see usual one both refused tests . despite 4 injections and being told b12 can affect msny things like mood its never been mentioned it can help with
basten
in
Pernicious Anaemia Society
2 months ago
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zoledronic acid infusion and osteoarthritis
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
Radars
in
Bone Health and Osteoporosis UK
8 months ago
Looking for advice for my newly diagnosed dad
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Springsunshi
in
Advanced Prostate Cancer
6 months ago
Possible irritable bowel
Hi folks, is it common to have autoimmune plus IBS? and how do you know if they are seperate entities or part of UCTD? I have diagnosed esophageal dysmotility, and have to be careful how I eat to avoid spasm and blockage. Now I have something like IBS -c, and I've had various GP tests for blood
Hi folks, is it common to have autoimmune plus IBS? and how do you know if they are seperate entities or part of UCTD? I have diagnosed esophageal dysmotility, and have to be careful how I eat to avoid spasm and blockage. Now I have something like IBS -c, and I've had various GP tests for blood
redmaggie
in
LUPUS UK
2 months ago
Bisacodyl
Taken a med to treat constipation hour ago (sorry for tmi ) and legs going nuts .The active ingredient is Bisacodyl does anyone know of its a trigger ? Thanks Pipps
Taken a med to treat constipation hour ago (sorry for tmi ) and legs going nuts .The active ingredient is Bisacodyl does anyone know of its a trigger ? Thanks Pipps
Pippins2
in
Restless Legs Syndrome
2 months ago
Pulmonary metastasectomy anyone?
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
Kahe
in
SHARE Metastatic Breast Cancer
6 months ago
Help with iron results
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Becsf
in
Thyroid UK
2 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
6 months ago
Fulvestrant side effects and updates
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
JonaC38
in
SHARE Metastatic Breast Cancer
6 months ago
gastrografin
It’s taken soooo long to pass bm finally, high fibre, no laxatives, strict routine and suppositries- I eat prunes, potato skin and bran without fail - it’s working!!! Having ct colonography on Thursday must I’m told start low residual diet and take this marker - which will also clear me out. The department
It’s taken soooo long to pass bm finally, high fibre, no laxatives, strict routine and suppositries- I eat prunes, potato skin and bran without fail - it’s working!!! Having ct colonography on Thursday must I’m told start low residual diet and take this marker - which will also clear me out. The department
Dudders123
in
IBS Network
2 months ago
Would oral iron be useful given my Iron levels (in description)?
I have RLS and got some bloodwork done. The following came up: IRON , SERUM 91.0 µg/dL TOTAL IRON BINDING CAPACITY ( TIBC), SERUM 353 µg/dL FERRITIN , SERUM 116.1 ng/mL I was wondering if Oral Iron would be useful for me or end up giving me toxic levels of it.
I have RLS and got some bloodwork done. The following came up: IRON , SERUM 91.0 µg/dL TOTAL IRON BINDING CAPACITY ( TIBC), SERUM 353 µg/dL FERRITIN , SERUM 116.1 ng/mL I was wondering if Oral Iron would be useful for me or end up giving me toxic levels of it.
MrCrow
in
Restless Legs Syndrome
2 months ago
Brian
Hi, I’ve had stomach discomfort for more than 30 years. Had every test endoscopy twice, every medication and no change in fact it’s worse than it’s ever been. Wake every night at 2.30 with a stomach ache. Huge gas builds up like a blast. I feel it move, go back to bed and it builds again. I’ve tried
Hi, I’ve had stomach discomfort for more than 30 years. Had every test endoscopy twice, every medication and no change in fact it’s worse than it’s ever been. Wake every night at 2.30 with a stomach ache. Huge gas builds up like a blast. I feel it move, go back to bed and it builds again. I’ve tried
Korybut
in
IBS Network
2 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
6 months ago
bloating
Hi everyone, new here. Recently been troubled with bloating and constipation. Take Miralax daily but results are disappointing. Bloating hasn’t decreased in about 12 days. Any tips? Thank you
Hi everyone, new here. Recently been troubled with bloating and constipation. Take Miralax daily but results are disappointing. Bloating hasn’t decreased in about 12 days. Any tips? Thank you
ginx54
in
IBS Network
2 months ago
oral thrush
I’m on nexthaler and it’s getting me down, particles fly to the black of my throat I have to rinse my mouth and brush my teeth every time I take it but still have got oral thrush. I’ve tried to get an appointment with the asthma nurse, I’ve been told I’m not downtime her until September .. people have
I’m on nexthaler and it’s getting me down, particles fly to the black of my throat I have to rinse my mouth and brush my teeth every time I take it but still have got oral thrush. I’ve tried to get an appointment with the asthma nurse, I’ve been told I’m not downtime her until September .. people have
Shiraz07
in
Asthma Community Forum
2 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
6 months ago
Recent iron results - not sure what to do now
Hi everyone, I've recently had an iron panel (NHS) after 10 weeks of supplementing with 1 then 2 x Three arrows per day, as well as taking cacao liquid (as recommended here) in the hope of increasing my stubbornly low ferritin. However I'm not sure how to read the results so any advice very welcome
Hi everyone, I've recently had an iron panel (NHS) after 10 weeks of supplementing with 1 then 2 x Three arrows per day, as well as taking cacao liquid (as recommended here) in the hope of increasing my stubbornly low ferritin. However I'm not sure how to read the results so any advice very welcome
Becsf
in
Thyroid UK
2 months ago
colonoscopy
Hi all. I’ve got to have a colonoscopy, with three days of a low fibre diet as part of the preparation. The hospital has given me a list of foods I can eat, but at least half of them aren’t gluten free or the gf equivalent is higher in fibre. I’m also vegetarian and on a low fat diet, and at the moment
Hi all. I’ve got to have a colonoscopy, with three days of a low fibre diet as part of the preparation. The hospital has given me a list of foods I can eat, but at least half of them aren’t gluten free or the gf equivalent is higher in fibre. I’m also vegetarian and on a low fat diet, and at the moment
Singinglouder
in
Gluten Free Guerrillas
2 months ago
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