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Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Acoustic Neuroma Support
1 year ago
IP chemotherapy
Is IP chemotherapy more effective than IV , I see patients with IP to be in remission for a longer period ..... suggestions pls
Is IP chemotherapy more effective than IV , I see patients with IP to be in remission for a longer period ..... suggestions pls
Kjhere
in
My Ovacome
1 year ago
athletes foot ?
I’ve always had problem with my pinky toe as it bends under my other toe. It’s never been this bad. Normally when it’s sore and itchy I apply athlete foot cream and it goes within a few days as sweat gets trapped easily. I’ve been using athletes foot cream for 3 weeks now and I don’t think it is that
I’ve always had problem with my pinky toe as it bends under my other toe. It’s never been this bad. Normally when it’s sore and itchy I apply athlete foot cream and it goes within a few days as sweat gets trapped easily. I’ve been using athletes foot cream for 3 weeks now and I don’t think it is that
Ladybitsandbobs
in
NRAS
1 year ago
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Unknown Territory!😔
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
AutumnLove
in
SHARE Metastatic Breast Cancer
1 year ago
very good apt with onc
Yesterday I saw my onc, after having a scan last week and blood work shortly before seeing her. Stable cancer! Great news! Earlier this year she'd found that my cancer cells had become triple negative, after 19 years with E+ and great results with anti-estrogen treatment. SShe put me on Xeloda and
Yesterday I saw my onc, after having a scan last week and blood work shortly before seeing her. Stable cancer! Great news! Earlier this year she'd found that my cancer cells had become triple negative, after 19 years with E+ and great results with anti-estrogen treatment. SShe put me on Xeloda and
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
radiation proctitis follow up
Saw my GI doc about my persistent bleeding and clots, now accompanied by mucus, urgency, and irregular bm’s. He has scheduled another colonoscopy next week to rule out any other source of my issues. At the same time he will do Radio Frequency Ablation assuming no other source of symptoms is found.
Saw my GI doc about my persistent bleeding and clots, now accompanied by mucus, urgency, and irregular bm’s. He has scheduled another colonoscopy next week to rule out any other source of my issues. At the same time he will do Radio Frequency Ablation assuming no other source of symptoms is found.
Jmr11820
in
Advanced Prostate Cancer
1 year ago
'Palliative Chemotherapy'
Following first reccurence after 11 months remission mum started carbo caelyx 2 weeks ago. She has just received a letter saying she is now aware treatment is palliative. She is beside herself and now I fear it's going to be a self fulfilled prophecy. Why must they send these letters.
Following first reccurence after 11 months remission mum started carbo caelyx 2 weeks ago. She has just received a letter saying she is now aware treatment is palliative. She is beside herself and now I fear it's going to be a self fulfilled prophecy. Why must they send these letters.
Worrieddaughter95
in
My Ovacome
1 year ago
Amelanotic Melanoma
Whilst amelanotic melanoma is relatively uncommon fatality rates tend to be higher because they often go undetected for longer, are often misdiagnosed because they mimic other skin lesions and are therefore commonly diagnosed at later stages. Any subtype of melanoma can be amelanotic. They can appear
Whilst amelanotic melanoma is relatively uncommon fatality rates tend to be higher because they often go undetected for longer, are often misdiagnosed because they mimic other skin lesions and are therefore commonly diagnosed at later stages. Any subtype of melanoma can be amelanotic. They can appear
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Colonoscopy Tuesday
Hello Everyone! I have been having mucous/blood in stool problems for several months now. I saw a doctor. Had blood work done and a stool sample taken. Blood work was fine. They did find dientamoeba fragilis in the stool sample but nothing else. I'm not experiencing pain. Most times soft stool. Mucous
Hello Everyone! I have been having mucous/blood in stool problems for several months now. I saw a doctor. Had blood work done and a stool sample taken. Blood work was fine. They did find dientamoeba fragilis in the stool sample but nothing else. I'm not experiencing pain. Most times soft stool. Mucous
Person82
in
Colon Cancer Connected
1 year ago
Worried About Colon Cancer
I am 18 years old and recently I have been experiencing a lot of different symptoms of colon cancer. This started about a month ago when I started to get this really weird feeling in my lower left abdomen area, it was a mixture of pain but also feels like it is some sort of mass maybe there. As soon
I am 18 years old and recently I have been experiencing a lot of different symptoms of colon cancer. This started about a month ago when I started to get this really weird feeling in my lower left abdomen area, it was a mixture of pain but also feels like it is some sort of mass maybe there. As soon
benjamin23910
in
Colon Cancer Connected
1 year ago
Results of biopsy from my last op. (Cystoscopy)
I got a telephone call Friday morning from my oncology. urology nurse. With results of (Cystoscopy) and biopsies. She said no new tumors but I still have CIS which is a cancer than can spread, to other parts of my body also. This was confirmed by the biopsies. It's G2 High Grade, I thought hear we
I got a telephone call Friday morning from my oncology. urology nurse. With results of (Cystoscopy) and biopsies. She said no new tumors but I still have CIS which is a cancer than can spread, to other parts of my body also. This was confirmed by the biopsies. It's G2 High Grade, I thought hear we
Ern007
in
Lung Conditions Community Forum
1 year ago
Alive at Five
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
6357axbz
in
Advanced Prostate Cancer
1 year ago
alpha-lipoic acid
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
hi all, can you take alpha-lipoic acid at anytime of the day away from thyroid meds? I’ve got burning mouth syndrome/metallic taste in my mouth and read the above can help (with vitamin c and L Lysine) but it can interfere with thyroid meds? Many thanks 🙏🏼
Thyroid_mum
in
Thyroid UK
1 year ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
Progression of Stage IVB PC
Hello, my husband was diagnosed last year with stage IVB prostate cancer (TXN1M1B) high grade/poorly differentiated metastatic prostate adenocarcinoma with significant neuroendocrine differentiation. A PET scan after C2 of Carboplatin and etoposide showed that the disease diffusely in the skeleton, prostate
Hello, my husband was diagnosed last year with stage IVB prostate cancer (TXN1M1B) high grade/poorly differentiated metastatic prostate adenocarcinoma with significant neuroendocrine differentiation. A PET scan after C2 of Carboplatin and etoposide showed that the disease diffusely in the skeleton, prostate
SpoonieJ
in
Advanced Prostate Cancer
1 year ago
Tear in Tendon
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
Shanim
in
NRAS
1 year ago
blood when wiping
I am 51 M. I have been having rectal bleeding for 6 months that looks like this. Sometimes slightly more. Does this look like fresh or old blood. I went to GP and they said they don’t feel an internal hemorrhoid or see a fissure. Does this look like bleeding from colon cancer. I am scared to death
I am 51 M. I have been having rectal bleeding for 6 months that looks like this. Sometimes slightly more. Does this look like fresh or old blood. I went to GP and they said they don’t feel an internal hemorrhoid or see a fissure. Does this look like bleeding from colon cancer. I am scared to death
worrybigtime
in
Colon Cancer Connected
1 year ago
From cancer to Kilimanjaro
hi everyone, I put an update on recently and people wanted to know more. Last year I was diagnosed with stage 3c low grade serous. It was a complete shock and I had no idea i was ill, until it was pretty bad. I underwent a huge debulking surgery and a round of chemo. I am pretty lucky and am now
hi everyone, I put an update on recently and people wanted to know more. Last year I was diagnosed with stage 3c low grade serous. It was a complete shock and I had no idea i was ill, until it was pretty bad. I underwent a huge debulking surgery and a round of chemo. I am pretty lucky and am now
Mrs_Thomas
in
My Ovacome
1 year ago
Family and loss and fear
So far in my life 3 family members had cancer and passed. I was about 3, so I don't remember the first one. I was 15 when my 9 year old cousin passed, and 21 when my grandmother passed. I lost more people in my life but cancer changes how you view their deaths.My father was diagnosed with cancer about
So far in my life 3 family members had cancer and passed. I was about 3, so I don't remember the first one. I was 15 when my 9 year old cousin passed, and 21 when my grandmother passed. I lost more people in my life but cancer changes how you view their deaths.My father was diagnosed with cancer about
Gradients-of-Blue
in
My Cancer Community
1 year ago
LDN RT for Medical Professionals
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
Shewulf
Administrator
in
LDN Research Trust
1 year ago
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