very good apt with onc

[PJBinMI]

Yesterday I saw my onc, after having a scan last week and blood work shortly before seeing her. Stable cancer! Great news! Earlier this year she'd found that my cancer cells had become triple negative, after 19 years with E+ and great results with anti-estrogen treatment. SShe put me on Xeloda and has lowered the dose twice due to side effects-hands very tender, red, with splitting skin. Those side effects have lessened enough that I can live with current side effects. I asked her if feeling cold all the time could be Xeloda related and she said a very firm yes. So I'm doomed to wearing sweaters in spite of the summer heat! (The good part of that is that's a great excuse to buy more sweaters, LOL!) She's not going to see me again until October, though I'll be seeing the NP who works with her every month.

I'm having more "good days" than I was and have been able to do laundry, empty the dish washer and do a bit of food prep, too. I've not driven since I was in the hospital for 23 days last Octoberfor a bowel obstruction. Haven't been able to do any gardening, either. But now I think I may be able to do those things again sometime soon.

Hugs to all, and Happy Independence Day to every one in the US!

[hopenowandtomorrow]

Wonderful news PBJinMI! So happy to hear of your progress & a good result from the meds!

Happy 4th to you too!

❤️🙏❤️

[PJBinMI in reply to hopenowandtomorrow]

Thanks! I'm wearing red, white and blue today, for the Forth! And enjoying childhoood memories of firrework displays. My parents used to take us to a large park in Berkeley or Oakland, Ca, where many families gathered for a great fireworks show! So long ago!

[Aprilfoolz1 in reply to PJBinMI]

I grew up just east of the Caldecott tunnel and attended UC Berkeley . I loved to go up to Skyline and watch the fireworks ! Great memories

[marianne88]

wow that’s awesome. So happy for you!!! How many treatments have you been on since you started this journey ❤️❤️

[MettavivorDS]

I'm so glad to hear that you are doing better and finding ways to manage your latest treatment! You give me hope for a lengthy journey on this rocky section of the MBC road! May your treatment last for a long time.

[PJBinMI in reply to MettavivorDS]

I love your rocky road analogy! Journey is my favorite way to refer to this living with MBC, and rocky road fits in with that. Sure not what I expected for my retirement years!

[Mumberly]

awesome news!! Thanks for sharing 😊

Kim

[BluHydrangea]

this is wonderful bews after some of your challenges! So very happy for you and thanks for letting us know!!!!💃🏼

[Nocillo]

Sounds like you’re doing great! Keep it up!

[bikebabe]

fab news.

[PJBinMI in reply to bikebabe]

I think so, too! Wish I could share my good luck with all!

[Aprilfoolz1]

wonderful news !

[PJBinMI in reply to Aprilfoolz1]

Thanks! I hope you, and everyone here, do so wonderfully!

[GollyG]

Thrilled for you, and so inspiring for the rest of us!

[PJBinMI in reply to GollyG]

Thanks. I share my good news to help others have hope....

[Justme153]

Woooo Hoooooo🎉🎉🎉 So Happy for You!!!!

[PJBinMI in reply to Justme153]

Wish I could hear your Woooo hoooooo! I am imaniging it! LOL

[love2golfwell]

I am so happy for your good news! Glad to hear the Xeloda is working and that the dose reduction is helping with side effects and allowing you to resume some of your favorite activities. Hoping you continue to have great results. Sending hugs.

[PJBinMI in reply to love2golfwell]

Yeah! Thank you. Dose reduction can be a bit scary, and I was rather surprised by the test results!

[love2golfwell in reply to PJBinMI]

I remember Best Bird and all of her research and work regarding dosages and that we did not always need the maximum dose of meds to be effective. The standard of care always seems to be the maximum dose but not everyone can tolerate that because all of our bodies are different. I am still on 125 mg of Ibrance but I know several on here have done very well with a 75 mg dose. I guess more is not always better!

[Totheriver]

So glad to hear you had good results 💕. I have scans tomorrow and have a bit of scan anxiety.

[PJBinMI in reply to Totheriver]

I hope your scan results are good, too. My prrayer before scans is always that they'll show whatever neeeds to be known. Thinking of it that way has really helped me be less nervous about scans.

[Totheriver in reply to PJBinMI]

Thanks! That is a really good way of looking at it💕

[KimberlyB40]

Great news!!! So so happy to hear !! 🙏😘

[NShaft]

so happy to hear you are on a smooth patch. May it continue for a long time!

[PJBinMI in reply to NShaft]

Thanks! I know I'm fortunate to have done sooo well for sooo long. Wish every one did so well.

[Shafight]

good news. You are such a trouper. I’m amazed at how long you’ve been fighting this!!!

[Granny333]

wonderful news, so happy for you

[Katie9898]

So happy for your great news!

[ba5083]

Wonderful news! Your post has made me smile today!

[jersey-jazz]

That news from you is so good. You deserve a "rest" from all this fxxxxxg cancer.

[PJBinMI in reply to jersey-jazz]

Cancer certainly deserves every angry, nasty, demeaning word there is!

[Half-Full]

Great news! Maybe give Voltarin a try for the HFS. New study shows it’s very effective.

[PJBinMI in reply to Half-Full]

Is there a brand of Voltarin you can recommend? Where do you buy it?

[Half-Full in reply to PJBinMI]

Our local Costco has the brand name (Voltarin) in bulk (3 large tubes I believe).

[Kcap430]

sooo happy for you and so encouraging to many of us! Enjoy your summer even if it’s with a sweater❤️

[Bettybuckets]

hi PBJ- I’m on xeloda too. I didn’t know about it causing you to feel cold! I just had to have a two week break and now also on vit e and hope that helps. My hands are good it is my feet bottoms that hurt a lot but not cracked skin just puffy and red when I try to walk a little in sneakers. I am better in loose sandals.

[13plus]

Thank goodness for some good news this week! That is fabulous! You just keep on rocking on, and I love it! 😊

[mudakurag]

So glad to hear things are improving for you.I have so valued all your comments in the past.Getting back into the garden will brighten your days even more!!!

Mary

[Likes]

glad you are better!!!!!