Yesterday I saw my onc, after having a scan last week and blood work shortly before seeing her. Stable cancer! Great news! Earlier this year she'd found that my cancer cells had become triple negative, after 19 years with E+ and great results with anti-estrogen treatment. SShe put me on Xeloda and has lowered the dose twice due to side effects-hands very tender, red, with splitting skin. Those side effects have lessened enough that I can live with current side effects. I asked her if feeling cold all the time could be Xeloda related and she said a very firm yes. So I'm doomed to wearing sweaters in spite of the summer heat! (The good part of that is that's a great excuse to buy more sweaters, LOL!) She's not going to see me again until October, though I'll be seeing the NP who works with her every month.
I'm having more "good days" than I was and have been able to do laundry, empty the dish washer and do a bit of food prep, too. I've not driven since I was in the hospital for 23 days last Octoberfor a bowel obstruction. Haven't been able to do any gardening, either. But now I think I may be able to do those things again sometime soon.
Hugs to all, and Happy Independence Day to every one in the US!
Written by
PJBinMI
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Thanks! I'm wearing red, white and blue today, for the Forth! And enjoying childhoood memories of firrework displays. My parents used to take us to a large park in Berkeley or Oakland, Ca, where many families gathered for a great fireworks show! So long ago!
I'm so glad to hear that you are doing better and finding ways to manage your latest treatment! You give me hope for a lengthy journey on this rocky section of the MBC road! May your treatment last for a long time.
I love your rocky road analogy! Journey is my favorite way to refer to this living with MBC, and rocky road fits in with that. Sure not what I expected for my retirement years!
I am so happy for your good news! Glad to hear the Xeloda is working and that the dose reduction is helping with side effects and allowing you to resume some of your favorite activities. Hoping you continue to have great results. Sending hugs.
I remember Best Bird and all of her research and work regarding dosages and that we did not always need the maximum dose of meds to be effective. The standard of care always seems to be the maximum dose but not everyone can tolerate that because all of our bodies are different. I am still on 125 mg of Ibrance but I know several on here have done very well with a 75 mg dose. I guess more is not always better!
I hope your scan results are good, too. My prrayer before scans is always that they'll show whatever neeeds to be known. Thinking of it that way has really helped me be less nervous about scans.
hi PBJ- I’m on xeloda too. I didn’t know about it causing you to feel cold! I just had to have a two week break and now also on vit e and hope that helps. My hands are good it is my feet bottoms that hurt a lot but not cracked skin just puffy and red when I try to walk a little in sneakers. I am better in loose sandals.
So glad to hear things are improving for you.I have so valued all your comments in the past.Getting back into the garden will brighten your days even more!!!
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Xeloda & Eating
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Xeloda
