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Sjogren-Larsson syndrome
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Mucuna Puriens
Was just reading a post from the Parkinsons Movement side of Health Unlocked regarding the use of Mucuna root. I took myself off of Mirapex and use Mucuna Puriens for my dopamine needs, Valerian Root and melatonin for sleep. Anyone else using supplements rather than pharma y?
Was just reading a post from the Parkinsons Movement side of Health Unlocked regarding the use of Mucuna root. I took myself off of Mirapex and use Mucuna Puriens for my dopamine needs, Valerian Root and melatonin for sleep. Anyone else using supplements rather than pharma y?
eglimark
in
Restless Legs Syndrome
6 years ago
Which therapy helped you the most?
Can people say which of these helped them the most? I don't think there's an option for adding a poll. Dopamine agonists: These are most often the first medicines used to treat RLS. These drugs, including pramipexole (Mirapex), rotigotine (Neupro), and ropinirole (Requip), act like the neurotransmitter
Can people say which of these helped them the most? I don't think there's an option for adding a poll. Dopamine agonists: These are most often the first medicines used to treat RLS. These drugs, including pramipexole (Mirapex), rotigotine (Neupro), and ropinirole (Requip), act like the neurotransmitter
Hgaguk89
in
Restless Legs Syndrome
6 years ago
Fibro is bad
I’ve had fibromyalgia since 2009 when I had a triple aaa dissection since this happened to me I’ve had no end of issues. Now I had a knee replacement and since this I’ve been in constant pain day and night for two years. These last few days have been so bad I don’t know how to cope anymore Please any
I’ve had fibromyalgia since 2009 when I had a triple aaa dissection since this happened to me I’ve had no end of issues. Now I had a knee replacement and since this I’ve been in constant pain day and night for two years. These last few days have been so bad I don’t know how to cope anymore Please any
Whitbyjet
in
Fibromyalgia Action UK
6 years ago
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Birth partner...
Soo here we go.... My husband's best friend and his wife are expecting she got pregnant on first try despite the fact she got the morning after pill.. Long story short, she has no friends here, no family, nobody... She is now in the hospital just been induced and I'm her second birth partner... I said
Soo here we go.... My husband's best friend and his wife are expecting she got pregnant on first try despite the fact she got the morning after pill.. Long story short, she has no friends here, no family, nobody... She is now in the hospital just been induced and I'm her second birth partner... I said
Klndmr
in
Fertility Network UK
6 years ago
Does anyone know about Flecainide and Nebivolol together?
Hi, I'm new here but it's time for me to 'jump in'. I have been following the posts on here for a while now, finding them both interesting and informative, sometimes even quite amusing. A few weeks ago the decision was made to change my 50mg flecainide PIP to a regular dose (2 x 50mg) one in the morning
Hi, I'm new here but it's time for me to 'jump in'. I have been following the posts on here for a while now, finding them both interesting and informative, sometimes even quite amusing. A few weeks ago the decision was made to change my 50mg flecainide PIP to a regular dose (2 x 50mg) one in the morning
Patsy10
in
AF Association
6 years ago
EDS and cold weather
Hello! I’m new and wanted to ask about your experiences with EDS and cold weather, as well as sacroiliac joint dysfunction. I’m looking to chat about symptoms and discuss what has worked for you!
Hello! I’m new and wanted to ask about your experiences with EDS and cold weather, as well as sacroiliac joint dysfunction. I’m looking to chat about symptoms and discuss what has worked for you!
carleton
in
Ehlers-Danlos Support UK
6 years ago
Slowing down on Ropinirole withdrawal
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
RosieRow
in
Restless Legs Syndrome
6 years ago
Could this solve recurring UTIs that many of us suffer with?
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Marilyn1959
in
PMRGCAuk
6 years ago
Contraception? Endometriosis and hypermobility
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
jennt0506
in
Endometriosis UK
6 years ago
EDS Dentist Recommendations (London..Herts..)
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
Thanksgiving and a Question
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Ropinirole withdrawal: is it always agony?
I have PLMD, which developed from RLS some 6 years ago. I've been on Ropinirole for 3 months at a dosage of 2 x 0.25 mg a night. It's just beginning to lose its effect with PLMs occurring at night 1 hour plus after taking the tablets & now an hour or so before the 6-hour half-life is through in the early
I have PLMD, which developed from RLS some 6 years ago. I've been on Ropinirole for 3 months at a dosage of 2 x 0.25 mg a night. It's just beginning to lose its effect with PLMs occurring at night 1 hour plus after taking the tablets & now an hour or so before the 6-hour half-life is through in the early
dickJones
in
Restless Legs Syndrome
6 years ago
Seeking a Diagnosis (Cont...)
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
Can it be cryptic?
I believe I'm few months pregnant.missed my period in August and sept for the first time ever.did urine pt ,but came bk neg.since then have having several pregnancy symptoms.back pain,bloated stomach,increased appetite,bigger and sore breast,gained weight a lot .infact its so obvious i'm pregnant.people
I believe I'm few months pregnant.missed my period in August and sept for the first time ever.did urine pt ,but came bk neg.since then have having several pregnancy symptoms.back pain,bloated stomach,increased appetite,bigger and sore breast,gained weight a lot .infact its so obvious i'm pregnant.people
GloKezzy11
in
Pregnancy and Parenting Support
6 years ago
W7R1 back in Blighty 🇬🇧🇬🇧🇬🇧
Cor blimey guvenor that was a tough one on me plates of meat. Think it might be the jet lag off of my international travels to France (it was after all 1hr 40min long). I can't imagine for one minute it could have been the vin rouge or pain au raisin that contributed to my pain today 🥐🥐🍷🍷? First
Cor blimey guvenor that was a tough one on me plates of meat. Think it might be the jet lag off of my international travels to France (it was after all 1hr 40min long). I can't imagine for one minute it could have been the vin rouge or pain au raisin that contributed to my pain today 🥐🥐🍷🍷? First
Wolvesmad
Graduate
in
Couch to 5K
6 years ago
Trazodone pramipexole for RLS
I am not sure what is doing it. But after 20 years I am better I have taken pramipexole for years not much help Then my psychiatrist added trazodone for sleep 6 mo My final component weekly massages With a heavy component or concentration on legs and feet after 6 mo, I have really improved My guess
I am not sure what is doing it. But after 20 years I am better I have taken pramipexole for years not much help Then my psychiatrist added trazodone for sleep 6 mo My final component weekly massages With a heavy component or concentration on legs and feet after 6 mo, I have really improved My guess
seppamaki
in
Restless Legs Syndrome
6 years ago
Trazadone for RLS?
Has anyone on this forum had experience, positive or negative, with taking trazodone at bedtime for the rls? I'm considering asking my GP for a prescription for this next. My "go to" has been 1/2 to 1 hydrocodone per night, and the current prescription is nearly finished. So I'll either ask her for
Has anyone on this forum had experience, positive or negative, with taking trazodone at bedtime for the rls? I'm considering asking my GP for a prescription for this next. My "go to" has been 1/2 to 1 hydrocodone per night, and the current prescription is nearly finished. So I'll either ask her for
Restlesssinger
in
Restless Legs Syndrome
6 years ago
Hypericum (St. John's Wort)
I have just been reading about homeopathic Hypericum and/or herbal St John's Wort extract for RLS. It is a well known remedy for anxiety/depression because of its action in calming the nerves. Apparently it can heal the inflammation of the nerves that produce RL symptoms. Has anyone tried it?
I have just been reading about homeopathic Hypericum and/or herbal St John's Wort extract for RLS. It is a well known remedy for anxiety/depression because of its action in calming the nerves. Apparently it can heal the inflammation of the nerves that produce RL symptoms. Has anyone tried it?
Grandiflora
in
Restless Legs Syndrome
6 years ago
Hypothyroidism and sick sinus syndrome
I find this forum really useful for explaining some of the things I've wondered about for the last 30 years. A couple of years ago my GP found I had an irregular heartbeat. I eventually saw a cardiologist who diagnosed sick sinus syndrome and said that I didn't need any treatment. The GP thought I
I find this forum really useful for explaining some of the things I've wondered about for the last 30 years. A couple of years ago my GP found I had an irregular heartbeat. I eventually saw a cardiologist who diagnosed sick sinus syndrome and said that I didn't need any treatment. The GP thought I
LynetteP
in
Thyroid UK
6 years ago
Does anyone know how long??
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
bec90
in
Fertility Network UK
6 years ago
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