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Sjogren-Larsson syndrome
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Little Embie on board! - what supplements to stop? / tips
Firstly thank you all so much for your responses yesterday!. Little embie now on board! Out of my 4 , i had one 5aa that has been put in. Two others that are close but not quite there yet to freeze ( they are letting me know tomorrow) my lining just made it at 6.5! Hopefully thick enough! I do have
Firstly thank you all so much for your responses yesterday!. Little embie now on board! Out of my 4 , i had one 5aa that has been put in. Two others that are close but not quite there yet to freeze ( they are letting me know tomorrow) my lining just made it at 6.5! Hopefully thick enough! I do have
kathgibson22
in
Fertility Network UK
4 years ago
3 days with no Pramiperoxle, what now?
Could someone advise me how long it takes to withdraw from Pramiperoxile fully and finally. The last 3 days of no Pramiperoxle have been better/easier that I thought it would be but still get periods of being extremely uncomfortable with RLS symptoms. I am taking Cannabis oil two drops twice a day
Could someone advise me how long it takes to withdraw from Pramiperoxile fully and finally. The last 3 days of no Pramiperoxle have been better/easier that I thought it would be but still get periods of being extremely uncomfortable with RLS symptoms. I am taking Cannabis oil two drops twice a day
kelirock
in
Restless Legs Syndrome
4 years ago
Quitting Pramipexole
Has anybody successfully quit Pramipexole after being hooked to it for years? How? When I started Pramipexole (Mirapex) in 2011, with 0.125mg a day, I guess nobody knew yet about this Augmentation shit, and my doctor told me to just increase the dosage if the current dosage doesn't work anymore. Now
Has anybody successfully quit Pramipexole after being hooked to it for years? How? When I started Pramipexole (Mirapex) in 2011, with 0.125mg a day, I guess nobody knew yet about this Augmentation shit, and my doctor told me to just increase the dosage if the current dosage doesn't work anymore. Now
RestlessRR
in
Restless Legs Syndrome
4 years ago
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Day 31 in the ICU. I’m having a hard time trying to cope...
Again we spoke to the doctors and they are not rooting for my dad to make it. He is at 55% on the vent with peep of 10. We discussed if the next step would be the trach. But she also said that that may bring more problems to my Dad and it doesn’t guarantee that he will make it. She talked about considering
Again we spoke to the doctors and they are not rooting for my dad to make it. He is at 55% on the vent with peep of 10. We discussed if the next step would be the trach. But she also said that that may bring more problems to my Dad and it doesn’t guarantee that he will make it. She talked about considering
Garbagestar34
in
ICUsteps
4 years ago
I’d be interested if this works for anyone else
I read that histamine intolerance can cause restless legs so I looked up foods with much histamine. I’ve cut out bananas, avocado, yoghourt, citrus fruits, tomatoes and spinach. After a few days my RLS disappeared. I am still taking my dopamine agonists but have not increased the dose as I was planning
I read that histamine intolerance can cause restless legs so I looked up foods with much histamine. I’ve cut out bananas, avocado, yoghourt, citrus fruits, tomatoes and spinach. After a few days my RLS disappeared. I am still taking my dopamine agonists but have not increased the dose as I was planning
LoisTonya
in
Restless Legs Syndrome
4 years ago
Aspartam!!!
For some months I've liked to drink Coke but always chose light to avoid calories. My RLS became an awful hell with severe pain. Now I stopped to drink it and am free of pain! I still have RLS and need Pramipexol at night but the hell of pain during the day is gone. Seems I'm very sensible to Aspartam
For some months I've liked to drink Coke but always chose light to avoid calories. My RLS became an awful hell with severe pain. Now I stopped to drink it and am free of pain! I still have RLS and need Pramipexol at night but the hell of pain during the day is gone. Seems I'm very sensible to Aspartam
silkyreg
in
Restless Legs Syndrome
4 years ago
Success with Suboxone?
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
Hi all - I’m new (posting) here. Thanks for being a community, I’ve read so many posts and found comfort from all of you!! Quick background - I have suffered with RLS at least 20 years - but probably my whole life. Started pramipexole .25 in 2000 and in 2018 was taking 2.75mg due to general lack of
erinjee
in
Restless Legs Syndrome
4 years ago
Hydroxychloroquine
Hi All, I haven’t posted on here for ages . Hope people are keeping as well as they can be, both physically and mentally during lockdown. I was finally diagnosed with Lupus SLE and Sicca Syndrome at the start of this year . I have been on hydroxychloroquine since January. I do feel it’s helping with
Hi All, I haven’t posted on here for ages . Hope people are keeping as well as they can be, both physically and mentally during lockdown. I was finally diagnosed with Lupus SLE and Sicca Syndrome at the start of this year . I have been on hydroxychloroquine since January. I do feel it’s helping with
Seren65
in
LUPUS UK
4 years ago
Homeopathy meet after 2 years
Hi All, When I was diagnosed with PA in 2018 I was suffering a lot and met homeopathy. They claimed to cure PA in 3 years and made me to pay lot of amount upfront. I just believed them as I was going through a lot and nothing seems to give me relief as I was in early days of b12 injection treatment.
Hi All, When I was diagnosed with PA in 2018 I was suffering a lot and met homeopathy. They claimed to cure PA in 3 years and made me to pay lot of amount upfront. I just believed them as I was going through a lot and nothing seems to give me relief as I was in early days of b12 injection treatment.
Thulasi1
in
Pernicious Anaemia Society
4 years ago
Saved by Methadone
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
After years on Pramipexole 0.75 mg long acting , the inevitable augmentation occurred and I got off it with great difficulty. Since that time, August 2019, I have had very little sleep. I have tried tramadol, codeine, oxycodone, lyrica, Gabapentin, clonazepam, MSContin and various combinations. I have
wairoa36
in
Restless Legs Syndrome
4 years ago
IcyHot for RLS
IcyHot, sold in the US, is helping me with my RLS. It is similar to Aspercreme, the only difference is IcyHot has MENTHOL in it. Menthol is the ingredient that helps cure with RLS!. It is true!! I am using it, as a matter of fact, I haven't had the need to use it in the last week. It is like a miracle
IcyHot, sold in the US, is helping me with my RLS. It is similar to Aspercreme, the only difference is IcyHot has MENTHOL in it. Menthol is the ingredient that helps cure with RLS!. It is true!! I am using it, as a matter of fact, I haven't had the need to use it in the last week. It is like a miracle
Micafe
in
Restless Legs Syndrome
4 years ago
False/positive results
I am on a methadone clinic. I have been on it for 6 years. In 2016, I started testing positive on the Dip test for Fentanyl. The clinic would send out the positive urine test to be confirmed. It would come back Negative from the lab. I am only coming up positive certain tests. The last test came back
I am on a methadone clinic. I have been on it for 6 years. In 2016, I started testing positive on the Dip test for Fentanyl. The clinic would send out the positive urine test to be confirmed. It would come back Negative from the lab. I am only coming up positive certain tests. The last test came back
Jewel_7Aniver
in
NRAS
4 years ago
Finally a diagnosis
Hi everyone - thanks for your kind & helpful messages since a joined a few weeks ago. My rheumatologist has diagnosed palindromic rheumatism and fibromyalgia. Prescribed Amitriptyline. It’s a relief knowing what is wrong, now I can start find out how to manage it. Has anyone else found Amitriptyline
Hi everyone - thanks for your kind & helpful messages since a joined a few weeks ago. My rheumatologist has diagnosed palindromic rheumatism and fibromyalgia. Prescribed Amitriptyline. It’s a relief knowing what is wrong, now I can start find out how to manage it. Has anyone else found Amitriptyline
Sunnyseas
in
NRAS
4 years ago
Anyone else with RLS & mind racing? Poor quality sleep.....
My RLS is under control with dopamine agents, insofar as the sensation in my legs is concerned...but my mind is constantly active and I don't sleep deeply at all. It's not consistent, sometimes it's worse than other times. I know the drugs can cause insomnia. I don't have a problem falling asleep, usually
My RLS is under control with dopamine agents, insofar as the sensation in my legs is concerned...but my mind is constantly active and I don't sleep deeply at all. It's not consistent, sometimes it's worse than other times. I know the drugs can cause insomnia. I don't have a problem falling asleep, usually
silkusmaximus
in
Restless Legs Syndrome
4 years ago
Early period or pregnancy
Hi. I had a missed miscarriage when I had to take Misoprostol in the first week of April. I got my first period on 12 May. Now three weeks later I've been getting pain in my lower abdomen and pink discharge. Do you think I am pregnant again or is it an early period? I never missed my 28 day cycle so
Hi. I had a missed miscarriage when I had to take Misoprostol in the first week of April. I got my first period on 12 May. Now three weeks later I've been getting pain in my lower abdomen and pink discharge. Do you think I am pregnant again or is it an early period? I never missed my 28 day cycle so
Hidden
in
Pregnancy and Parenting Support
4 years ago
Ropinarole
I was on ropinarole for 10 years and progressed from 1mg to 3mg and it still worked for my restless leg and the only reason I came off it was because I couldn't sleep and had heard of augument in relation to these tablets. Since I have come off them nothing else seems to work for me ie Gabapentin Pregabalin
I was on ropinarole for 10 years and progressed from 1mg to 3mg and it still worked for my restless leg and the only reason I came off it was because I couldn't sleep and had heard of augument in relation to these tablets. Since I have come off them nothing else seems to work for me ie Gabapentin Pregabalin
Jenkins1414
in
Restless Legs Syndrome
4 years ago
Opiates for treatment
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
54 yr sufferer here: SEVERE RLS in legs, hips and arms) with PLMD (I thrash 250 times/hr while asleep). FINALLY, relief: low doses of Methadone and Morphine taken over 6 hrs (5-11pm) have changed my life. I have had to increase both slowly, but I’m 75 so who cares?! No addiction problems. Also lots and
Hidden
in
Restless Legs Syndrome
4 years ago
Chronic Fatigue Study
I came across this, and thought some of our members diagnosed with chronic fatigue might be interested in signing up: https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs?CMP=share_btn_fb&fbclid=IwAR0d1eOCfiYLbj1YRNoaE-UB88_1aKWm4g9DotCR2gqM8PEequMzQWj6Gn4
I came across this, and thought some of our members diagnosed with chronic fatigue might be interested in signing up: https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs?CMP=share_btn_fb&fbclid=IwAR0d1eOCfiYLbj1YRNoaE-UB88_1aKWm4g9DotCR2gqM8PEequMzQWj6Gn4
Cooper27
in
Thyroid UK
4 years ago
Advise please on Pregabalin
Hi, I’ve previously had advise when I was taking Ropinirole. I was on this drug for 11 years ended up augmenting and acquiring a gambling habit. I was advised to come off the Ropinirole which I did, taking a long and painful time doing so. I took a couple of Codeine to help me at the end. Since then
Hi, I’ve previously had advise when I was taking Ropinirole. I was on this drug for 11 years ended up augmenting and acquiring a gambling habit. I was advised to come off the Ropinirole which I did, taking a long and painful time doing so. I took a couple of Codeine to help me at the end. Since then
Scattypatty
in
Restless Legs Syndrome
4 years ago
Thinking of everyone going through a mmc
Hey, I know there are a few that have been through a miscarriage in the last couple of weeks and a few that have opted for surgery. I had an MVA this morning so I totally feel for you all. The procedure really wasn’t very pleasant and my husband couldn’t join me which was less than ideal. However the
Hey, I know there are a few that have been through a miscarriage in the last couple of weeks and a few that have opted for surgery. I had an MVA this morning so I totally feel for you all. The procedure really wasn’t very pleasant and my husband couldn’t join me which was less than ideal. However the
hifer
in
Fertility Network UK
4 years ago
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