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Sjogren-Larsson syndrome
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pramipexole shortage
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
Grumpdad
in
Restless Legs Syndrome
1 year ago
Left atrial enlargement
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
MPG1972
in
Thyroid UK
1 year ago
augmentation on neupro+Gabapentin. should I switch to a different dopamine agonist? All that’s helping is cannabis.
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
Discopage
in
Restless Legs Syndrome
1 year ago
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Gabapentin plus Sertraline
I’d be grateful for advice. I have longstanding RLS and currently take codeine 30-60mg with partial effect. I’ve never taken anything else for RLS. A few weeks ago I needed antidepressants and my GP gave me Sertraline, as I had managed several months on this previously, with the RLS remaining tolerable
I’d be grateful for advice. I have longstanding RLS and currently take codeine 30-60mg with partial effect. I’ve never taken anything else for RLS. A few weeks ago I needed antidepressants and my GP gave me Sertraline, as I had managed several months on this previously, with the RLS remaining tolerable
Embroiderer
in
Restless Legs Syndrome
1 year ago
RLS and antidepressants
Hi, I was just wondering if anyone in the UK has been prescribed an antidepressant that doesn’t make their restless legs worse? I’ve been on citalopram, fluoxetine and duloxetine, they have all made my RLS worse.
Hi, I was just wondering if anyone in the UK has been prescribed an antidepressant that doesn’t make their restless legs worse? I’ve been on citalopram, fluoxetine and duloxetine, they have all made my RLS worse.
Heather-rose
in
Restless Legs Syndrome
1 year ago
Form of Magnesium?
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
serengazer
in
Restless Legs Syndrome
1 year ago
Advice about hair loss please
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Catsrock23
in
Thyroid UK
1 year ago
6 weeks baby implanted on the low side of the womb
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
MariannaB
in
Fertility Network UK
1 year ago
Alternating meds
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
WelbyB
in
Restless Legs Syndrome
1 year ago
kratom vs Gabapentin
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
RCHD
in
Restless Legs Syndrome
1 year ago
subutex
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
RlS2023
in
Restless Legs Syndrome
1 year ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
theia
in
Myalgic Encephalomyelitis Community
1 year ago
Shortage of Pramipexole 0.18mg? UK
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Felixstowe
in
Restless Legs Syndrome
1 year ago
GBAPENTIN TIMES
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
auldreekie18
in
Restless Legs Syndrome
1 year ago
kratom issues
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
RCHD
in
Restless Legs Syndrome
1 year ago
GABA Nutrientsupplement vs Gabapentin and other Prescription Drugs of the same order
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
Ohmg
in
Restless Legs Syndrome
1 year ago
ChatGPT and Restless legs
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
thorp
in
Restless Legs Syndrome
1 year ago
Surgery
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
davissw
in
Cure Parkinson's
1 year ago
Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
1 year ago
Caffeine / pregabalin / conflicting advice
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
67Waterman
in
Restless Legs Syndrome
1 year ago
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