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Sickle-cell anaemia
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Advice please
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Vitamin B1
Hello, Has anyone found higher than normal dosing of b1 was useful with hypothyroid fatigue? There seems to be v small amounts of research around b1, fatigue and auto immune conditions, does anyone have more insight? I noticed Thorne basic b has more b1 than most and Wentz seems to advocate for
Hello, Has anyone found higher than normal dosing of b1 was useful with hypothyroid fatigue? There seems to be v small amounts of research around b1, fatigue and auto immune conditions, does anyone have more insight? I noticed Thorne basic b has more b1 than most and Wentz seems to advocate for
haggisplant
in
Thyroid UK
3 years ago
My iron tests are apparantly fine. Please advise the full propper iron panel needed to detetmine amenia
Hello Restless people I have asked this question before but cannot find the answer. My endo and GP say my iron results are fine and that I am not anemic. However I remember that there are situations where tests seem okay but where the isnt passing the blood brain barrier. Is there a test that shows
Hello Restless people I have asked this question before but cannot find the answer. My endo and GP say my iron results are fine and that I am not anemic. However I remember that there are situations where tests seem okay but where the isnt passing the blood brain barrier. Is there a test that shows
smilingjane
in
Restless Legs Syndrome
3 years ago
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Palpitations taking moviprep
Taking moviprep for a colonoscopy tomorrow and having palpitations, has anyone experienced this and did they stop?
Taking moviprep for a colonoscopy tomorrow and having palpitations, has anyone experienced this and did they stop?
Oak321
in
Oesophageal & Gastric Cancer
3 years ago
Blood Test Results - Comments on levels please
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
RLSofManyYears
in
Restless Legs Syndrome
3 years ago
Low folate - what causes it and what does it affect?
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
London3891
in
Thyroid UK
3 years ago
B12 now back to 'Normal'.
A few months ago I became very ill and after a series of blood tests was found to have very low B12 levels. I had all the symptoms of B12 deficiency/Pernicious Anaemia. My doctor prescribed Cyanocobalamin 1mg per day. After taking this for two months blood tests show that my B12 levels are now close
A few months ago I became very ill and after a series of blood tests was found to have very low B12 levels. I had all the symptoms of B12 deficiency/Pernicious Anaemia. My doctor prescribed Cyanocobalamin 1mg per day. After taking this for two months blood tests show that my B12 levels are now close
DogLover55
in
Pernicious Anaemia Society
3 years ago
Anaemia problems ?
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
jimbo1605
in
LUPUS UK
3 years ago
Eye twitching is back. Why?
I have continued to take every other day injections with hydroxocobalamin for the past month. Unfortunately I ran out of hydroxocobalamin so I switched to cyanocobalamin. But some of my symptoms have returned including the eye twitch. Do you think this is dependent on the b12?
I have continued to take every other day injections with hydroxocobalamin for the past month. Unfortunately I ran out of hydroxocobalamin so I switched to cyanocobalamin. But some of my symptoms have returned including the eye twitch. Do you think this is dependent on the b12?
Zeffy90
in
Pernicious Anaemia Society
3 years ago
What indicates anaemia
Can anybody shed any light on my blood count please? My red blood count is low, hct 37 and my haematologist said it's nothing to worry about but I am struggling with my running in that although I feel I'm pushing myself as hard as possible I'm 5 + minutes slower doing my park run from pre pandemic days
Can anybody shed any light on my blood count please? My red blood count is low, hct 37 and my haematologist said it's nothing to worry about but I am struggling with my running in that although I feel I'm pushing myself as hard as possible I'm 5 + minutes slower doing my park run from pre pandemic days
JP1952
in
MPN Voice
3 years ago
Which choice of B12 to buy?
Hi Everyone, I want to put an order into Bodfeld for my next lot of B12 Ampules but am confused? The usual ones I buy Rotexmedica Depot are showing in a different box (£48 18 for a 100) It used to be with black and red lettering and this one is a peachy colour. I also see it says Cyanocobalamin and
Hi Everyone, I want to put an order into Bodfeld for my next lot of B12 Ampules but am confused? The usual ones I buy Rotexmedica Depot are showing in a different box (£48 18 for a 100) It used to be with black and red lettering and this one is a peachy colour. I also see it says Cyanocobalamin and
Catsgalour
in
Pernicious Anaemia Society
3 years ago
How long does the "depot" last of a B12 injection?
The hydroxocobalamin injections I have seen all say "DEPOT". Does this mean an intramuscular injection of B12 forms a sort of "nodule" which dissipates slowly over a long period. Perhaps days? Could it be as long as weeks? I had the idea that B12 was rapidly absorbed by the flow of blood in the muscle
The hydroxocobalamin injections I have seen all say "DEPOT". Does this mean an intramuscular injection of B12 forms a sort of "nodule" which dissipates slowly over a long period. Perhaps days? Could it be as long as weeks? I had the idea that B12 was rapidly absorbed by the flow of blood in the muscle
Cetus
in
Pernicious Anaemia Society
3 years ago
Is it possible to be deficient in nutrients, even if nutrient levels in your blood are optimal?
Just like thyroid hormones in the blood can be at optimal levels but may not be reaching the cells or may not be absorbed properly by the cells, I wonder if something similar could happen with vitamins and minerals. Vit. D3 65 (25 - 80) Vit. B12 1057 (180 - 914) Folate >20 (4.0 - 19.9) Ferritin 150 (
Just like thyroid hormones in the blood can be at optimal levels but may not be reaching the cells or may not be absorbed properly by the cells, I wonder if something similar could happen with vitamins and minerals. Vit. D3 65 (25 - 80) Vit. B12 1057 (180 - 914) Folate >20 (4.0 - 19.9) Ferritin 150 (
Canu
in
Thyroid UK
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
INF+ ATO Study, "A knockout combination for MPN stem cells"
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
EPguy
in
MPN Voice
3 years ago
Should I get an MMA test?
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
Backstory - Hashi for 12yrs, 2 + years with added T3. History of blood tests for thyroid and Vits/minerals. I’m not great at taking my Vits/minerals regularly. So I haven’t had any supplements for at least 2mths because I had Covid, family issues and then another serous infection. So here we are with
NWA6
in
Thyroid UK
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
Vitamin blood test results
I have Hashimotos and now have the result of recent vit tests. Serum B12 1072 ng/l (197-771) Serum folate >20.0 ug/l (2.1-26.8) Serum Ferritin 63.0 ug/l (13.0-150.0) OH Vitamin D 113.0 nmol/L 50 ->200 My Specialist noted that the B12 and folate are high but not of concern as it’s probably related to
I have Hashimotos and now have the result of recent vit tests. Serum B12 1072 ng/l (197-771) Serum folate >20.0 ug/l (2.1-26.8) Serum Ferritin 63.0 ug/l (13.0-150.0) OH Vitamin D 113.0 nmol/L 50 ->200 My Specialist noted that the B12 and folate are high but not of concern as it’s probably related to
Runner25
in
Thyroid UK
3 years ago
Cytogenetics interpretation help needed
First time to post my profile and a question. I was diagnosed during a separate procedure in November 2019 and was on W&W until May 2021 when a scan showed a lump developing on my spine along with worsening anaemia. Consultant decided time was right to start treatment. Obinutuzumab initially which generated
First time to post my profile and a question. I was diagnosed during a separate procedure in November 2019 and was on W&W until May 2021 when a scan showed a lump developing on my spine along with worsening anaemia. Consultant decided time was right to start treatment. Obinutuzumab initially which generated
Dawson21
in
CLL Support
3 years ago
Low serum B12 but high Active B12 (HoloTC) - confused!
I just picked up 5 years worth of blood test results (frustrated with being in the dark about results all the time) and checked out my latest results. For reference, I'm in Australia. On my most recent test on 16th July 2021 (before any B12 supplementation): Total B12 is 250 pmol/L Active B12 (HoloTC
I just picked up 5 years worth of blood test results (frustrated with being in the dark about results all the time) and checked out my latest results. For reference, I'm in Australia. On my most recent test on 16th July 2021 (before any B12 supplementation): Total B12 is 250 pmol/L Active B12 (HoloTC
fireflymairi
in
Pernicious Anaemia Society
3 years ago
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