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Sickle-cell anaemia
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Fatigue
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Annalisea
in
Fibromyalgia Action UK
3 years ago
Folate deficiency - inherited ?
I have folate deficiency anaemia, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious anaemia and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
I have folate deficiency anaemia, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious anaemia and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
Catlover46
in
Pernicious Anaemia Society
3 years ago
Myleofibrosis diagnosis
Thank you to Mark for the link and invite. My husband, Fred, and I just found out in July that he has MF, which we never even heard of. Lots of fear and questions. He has a good team in Houston, Texas at MD Anderson. We are going for the SCT and meet with the team in one week. Today he is getting
Thank you to Mark for the link and invite. My husband, Fred, and I just found out in July that he has MF, which we never even heard of. Lots of fear and questions. He has a good team in Houston, Texas at MD Anderson. We are going for the SCT and meet with the team in one week. Today he is getting
Kashworth
in
MPN Voice
3 years ago
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Iron Panel Results - comments please
Please see below results following advice form my previous post... Iron: 11.0 umol/L (Range: 6.6 - 26) TIBC: 45 umol/L (Range: 41 - 77) Transferrin Saturation: 24 % (Range: 20 - 55) Ferratin: 37 ug/L (Range: 13 - 150) (Optimum Ferritin level for females : >27 ug/L It's all within range, but
Please see below results following advice form my previous post... Iron: 11.0 umol/L (Range: 6.6 - 26) TIBC: 45 umol/L (Range: 41 - 77) Transferrin Saturation: 24 % (Range: 20 - 55) Ferratin: 37 ug/L (Range: 13 - 150) (Optimum Ferritin level for females : >27 ug/L It's all within range, but
Molly161018
in
Thyroid UK
3 years ago
Aching legs
I’m new here. In May my skin specialists confirmed SCLE following a biopsy. I am having other tests querying SLE because I have other symptoms. One of them is badly aching legs that feel like they are burning hot and I find it difficult to walk up stairs. I have to hold on and pull myself up .
I’m new here. In May my skin specialists confirmed SCLE following a biopsy. I am having other tests querying SLE because I have other symptoms. One of them is badly aching legs that feel like they are burning hot and I find it difficult to walk up stairs. I have to hold on and pull myself up .
Mozart52
in
LUPUS UK
3 years ago
Blood test changes.
67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had warning flags all over for first time in two years. About half of them flagged. Had major prostate surgery last month at MD ANDESON. Ones I really noticed were NO MONOCYTES, HIGH ATYPICAL LYMPHS, HIGH BASOS, DOUBLING
67 years old, 3.5 years on Imbruvica. In remission. Last week's blood test had warning flags all over for first time in two years. About half of them flagged. Had major prostate surgery last month at MD ANDESON. Ones I really noticed were NO MONOCYTES, HIGH ATYPICAL LYMPHS, HIGH BASOS, DOUBLING
lsutigers2018
in
CLL Support
3 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
3 years ago
Help please
Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and hands, Tiredness, visual disturbance and muscle aches. My father and brother both have pernicious anaemia . Intrinsic factor and parietal were negative and Hb and MCV ok. Saw GP yesterday ( young locum) who did full neuro
Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and hands, Tiredness, visual disturbance and muscle aches. My father and brother both have pernicious anaemia . Intrinsic factor and parietal were negative and Hb and MCV ok. Saw GP yesterday ( young locum) who did full neuro
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Which blood tests to take?
I’m due to see my doctor again in a couple of weeks, and whilst I’m due to do a full thyroid panel, I’m conscious that various advice on here has also advised to test a broader range of things. Off the top of my head, that should include: Ferritin Folate Vitamin D Vitamin B12 I’m currently ting selenium
I’m due to see my doctor again in a couple of weeks, and whilst I’m due to do a full thyroid panel, I’m conscious that various advice on here has also advised to test a broader range of things. Off the top of my head, that should include: Ferritin Folate Vitamin D Vitamin B12 I’m currently ting selenium
JonnyA
in
Thyroid UK
3 years ago
Gi updates and others
Hi Everyone! I hope you’re all staying safe and well. It’s certainly been an interesting month to say the least and will glad to be moving into October. Let’s just say there’s been alot of not so good behaviors from both girls and they’ve kept us busy and stressed. We try to remind them that we love
Hi Everyone! I hope you’re all staying safe and well. It’s certainly been an interesting month to say the least and will glad to be moving into October. Let’s just say there’s been alot of not so good behaviors from both girls and they’ve kept us busy and stressed. We try to remind them that we love
JennaShi
in
LUPUS UK
3 years ago
Very helpful to me
Just wanted to share what someone in the medical field that has Pernicious Anaemia herself for 11 years gave me. This list has been EXTREMELY HELPFUL being she has researched these with the absorbing because she also atrophic gastritis and anxiety and even at the beginning having trouble walking.
Just wanted to share what someone in the medical field that has Pernicious Anaemia herself for 11 years gave me. This list has been EXTREMELY HELPFUL being she has researched these with the absorbing because she also atrophic gastritis and anxiety and even at the beginning having trouble walking.
25092
in
Pernicious Anaemia Society
3 years ago
Steroid injections?
Hi everyone, I’m due to get a steroid injection soon and just wondered as to wether these are ok to have with b12 deficiency? I was diagnosed the end of may so have only just started my road to recovery. I have many many symptoms and just don’t want to go backwards! Any advice would be gratefully received
Hi everyone, I’m due to get a steroid injection soon and just wondered as to wether these are ok to have with b12 deficiency? I was diagnosed the end of may so have only just started my road to recovery. I have many many symptoms and just don’t want to go backwards! Any advice would be gratefully received
Vonnie-72
in
Pernicious Anaemia Society
3 years ago
My HCT was low for me..help.
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
Elizka
in
MPN Voice
3 years ago
Magnesium supplements - what brands to try, what to avoid!
Hi All, I've been researching magnesium supplements as I'd like to try one to help my sleep, muscle and general aches etc., but following Wentz advice and what I've read online, thinking a combined /complex would be the best way to go above an oxide. I don't want a high citrate tab considering my '
Hi All, I've been researching magnesium supplements as I'd like to try one to help my sleep, muscle and general aches etc., but following Wentz advice and what I've read online, thinking a combined /complex would be the best way to go above an oxide. I don't want a high citrate tab considering my '
Ebx_design
in
Thyroid UK
3 years ago
Low iron low Hb?
I have recently been diagnosed as having very low iron in my blood. It is only at 4. Is having low iron basically low hb?
I have recently been diagnosed as having very low iron in my blood. It is only at 4. Is having low iron basically low hb?
Xoxtara
in
Thyroid UK
3 years ago
Covid Vax Antibody Response/ Member Survey
The LLS study here suggests 97% of us should get some response from the initial vaccine set. My understanding is your WBC counts, esp Neut and Lyph, are important at the time of vaccine. A while ago Paul123456 posted an antibody survey. Maybe a good time to do it again. -Whether you had Covid before
The LLS study here suggests 97% of us should get some response from the initial vaccine set. My understanding is your WBC counts, esp Neut and Lyph, are important at the time of vaccine. A while ago Paul123456 posted an antibody survey. Maybe a good time to do it again. -Whether you had Covid before
EPguy
in
MPN Voice
3 years ago
Blood tests - time taken
How long does it take for basic blood tests to be done in the community and for the results to return to the GP, in your experience, on average? The bloods I had tested were FBC, thyroid panel, iron panel and B12. Mine were done on Friday and I need - pretty urgently - to get the results back. Inside
How long does it take for basic blood tests to be done in the community and for the results to return to the GP, in your experience, on average? The bloods I had tested were FBC, thyroid panel, iron panel and B12. Mine were done on Friday and I need - pretty urgently - to get the results back. Inside
HowNowWhatNow
in
Thyroid UK
3 years ago
More advice needed.
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
Calypsoplus
in
Pernicious Anaemia Society
3 years ago
Fortification of flour is a public health policy known to reduce neural tube defects in babies
Note: As written, no mention of B12. I know I have previously seen the concept of fortifying with folic acid possibly being a problem in those who are B12 deficient being dismissed. [i]Folic acid is to be added to the most commonly consumed flours in the UK to help prevent spinal conditions in babies
Note: As written, no mention of B12. I know I have previously seen the concept of fortifying with folic acid possibly being a problem in those who are B12 deficient being dismissed. [i]Folic acid is to be added to the most commonly consumed flours in the UK to help prevent spinal conditions in babies
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Fortification of flour is a public health policy known to reduce neural tube defects in babies
Note: As written, no mention of B12. I know I have previously seen the concept of fortifying with folic acid possibly being a problem in those who are B12 deficient being dismissed. [i]Folic acid is to be added to the most commonly consumed flours in the UK to help prevent spinal conditions in babies
Note: As written, no mention of B12. I know I have previously seen the concept of fortifying with folic acid possibly being a problem in those who are B12 deficient being dismissed. [i]Folic acid is to be added to the most commonly consumed flours in the UK to help prevent spinal conditions in babies
helvella
in
Pernicious Anaemia Society
3 years ago
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