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Sickle-cell anaemia
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Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
2 years ago
How to monitor injection results
I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 (74 ng/L), some loss of sensation in my feet, and nerve conduction assessment in my legs. Due to physician confusion regarding treatment with B12 (cyanocobalamin) injection, I bounced around with injection frequency, with
I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 (74 ng/L), some loss of sensation in my feet, and nerve conduction assessment in my legs. Due to physician confusion regarding treatment with B12 (cyanocobalamin) injection, I bounced around with injection frequency, with
WiscGuy
in
Pernicious Anaemia Society
2 years ago
5th Covid vaccine
I know this topic has been covered recently but I’m still confused about the 5th Covid vaccine. I’ve just rang 119 and spoken to a guy who has said they are not inviting anyone for a 5th vaccine. They are currently working on people eligible for the spring booster as set out in the NHS guidelines.
I know this topic has been covered recently but I’m still confused about the 5th Covid vaccine. I’ve just rang 119 and spoken to a guy who has said they are not inviting anyone for a 5th vaccine. They are currently working on people eligible for the spring booster as set out in the NHS guidelines.
Tiggy70
in
PMRGCAuk
2 years ago
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Should Doctor have prescribed B12 injections?
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
Please advise if anyone else has experienced similar, and what treatment was. Feeling very tired and on occasions breathless when walking uphill. Blood test showed small red blood cells, very low iron and borderline B12 deficiency. Prescribed iron tablets twice a day. Nothing prescribed for low B12.
lardycake
in
Pernicious Anaemia Society
2 years ago
B12 injections and iron
Had labs done today in preparation for my hematology check up next week. My ferritin has increased slightly, but my iron , TIBC, and sat % have all decreased slightly. Also my MCV increased and my WBC decreased. Most are still in range, but I know ranges aren't always optimal (and my hematologist
Had labs done today in preparation for my hematology check up next week. My ferritin has increased slightly, but my iron , TIBC, and sat % have all decreased slightly. Also my MCV increased and my WBC decreased. Most are still in range, but I know ranges aren't always optimal (and my hematologist
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
Blood tests
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron might be low but wondering what else I should get checked . I’m in Portugal so not sure if they know much about PA and requires blood tests.
lifegems
in
Pernicious Anaemia Society
2 years ago
Before You Book (or recommend) That Iron Infusion
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Please read the article embedded in this post to FreeGaza. In my unprofessional opinion, if you feel you must have an infusion then ask for Iron Dextran. Dextrose is a single molecule sugar that theoretically should be able to cross the BBB. Injectafer and iron sucrose, in my humble opinion, don’t stand
Hidden
in
Restless Legs Syndrome
2 years ago
When to take iron
It seems, from what I have read, that iron has to be taken without food. But also not close to when I take other minerals such as calcium or magnesium, or certain medicines like my thyroid medicine. Is it OK then to take iron at the same time I take my RLS medicine, which at this time is still ropinerole
It seems, from what I have read, that iron has to be taken without food. But also not close to when I take other minerals such as calcium or magnesium, or certain medicines like my thyroid medicine. Is it OK then to take iron at the same time I take my RLS medicine, which at this time is still ropinerole
KickininAz
in
Restless Legs Syndrome
2 years ago
Blood test results - please help!
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
Annieza
in
Thyroid UK
2 years ago
Where to buy?
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
Polo22
in
Pernicious Anaemia Society
2 years ago
Olaparib induced anaemia and walking probs, anyone?
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Trickysite
in
My Ovacome
2 years ago
Raised mcv
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
poly2
in
MPN Voice
2 years ago
IFA & PCA blood tests
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
ATS1304
in
Pernicious Anaemia Society
2 years ago
Help with CKD stage 2
It was confirmed 2 days ago that I’m a stage 2 kidney dysfunction with high protein in urine and borderline type 2 diabetes they told me I need to routine bloods again in 3 months and told me to cut down on process foods protein potassium in foods plus watch the salt and sugar content. Is this all I
It was confirmed 2 days ago that I’m a stage 2 kidney dysfunction with high protein in urine and borderline type 2 diabetes they told me I need to routine bloods again in 3 months and told me to cut down on process foods protein potassium in foods plus watch the salt and sugar content. Is this all I
Emmie46
in
Early CKD Support
2 years ago
Wellness poster for my stay at hospital
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
Kraskie1915
in
CLL Support
2 years ago
Unusual results on standard differential -- would love feedback (and, if possible, reassurance?)
Hey, all, yesterday I was a bit shaken by results that were, for me, unusual, coinciding with the most clipped doctor visit ever had, so left full of unanswered questions. My lymphs had gone quite up (okay, that's CLL progressing) and WBD went well up too (okay, CLL progressing) BUT, neutrophils, which
Hey, all, yesterday I was a bit shaken by results that were, for me, unusual, coinciding with the most clipped doctor visit ever had, so left full of unanswered questions. My lymphs had gone quite up (okay, that's CLL progressing) and WBD went well up too (okay, CLL progressing) BUT, neutrophils, which
Vlaminck
in
CLL Support
2 years ago
Absorption of vitamins and Minerals in tablet form
Looking for some advice. I have a 3 monthly B12 injections due to poor absorption. My question is - will l have absorption difficulties with other vitamins or Iron in tablet form? Are these types of tablets ineffective for people like me?
Looking for some advice. I have a 3 monthly B12 injections due to poor absorption. My question is - will l have absorption difficulties with other vitamins or Iron in tablet form? Are these types of tablets ineffective for people like me?
Bialystok
in
Pernicious Anaemia Society
2 years ago
Sct question
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Johan2021
in
MPN Voice
2 years ago
W + W for 17 yrs - levels up recently
Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Monocytes absolute - 3900 to 9000 White Blood Count - 57 to 71 I'm seeing my Hemo-Onc on Thursday to go over things and am looking for advice on what to ask.
Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Monocytes absolute - 3900 to 9000 White Blood Count - 57 to 71 I'm seeing my Hemo-Onc on Thursday to go over things and am looking for advice on what to ask.
gardener58
in
CLL Support
2 years ago
What is if any, the proper amount of B12 to self inject. 1ml, once a week, 2ml, once a week or 0.5ml every day. Twice a day, 0.3ml, for PA?
This site has been a tremendous help for me! I have been self- injecting 1ml of B12 subcutaneous once a week since, Nov. 8, 2022, there has been improvement. But, sometimes symptoms get worse, numbness in hands and arms, joint pain, tingling etc. All tests point to Pernicious Anemia, D levels, homocysteine
This site has been a tremendous help for me! I have been self- injecting 1ml of B12 subcutaneous once a week since, Nov. 8, 2022, there has been improvement. But, sometimes symptoms get worse, numbness in hands and arms, joint pain, tingling etc. All tests point to Pernicious Anemia, D levels, homocysteine
RisingOne
in
Pernicious Anaemia Society
2 years ago
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