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Sickle-cell anaemia
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Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
nosleep1969
in
Restless Legs Syndrome
2 years ago
Functional vitB12 deficiency - anyone else?
I was diagnosed with a 'functional vitB12 deficiency' last year (I had high levels of MMA (methylmalonic acid) in my blood, but normal vitB12 levels in my blood as I had been taking max prescribed dose of cyanocobalamin) - which essentially means that although I have vitB12 in my blood, my body can't
I was diagnosed with a 'functional vitB12 deficiency' last year (I had high levels of MMA (methylmalonic acid) in my blood, but normal vitB12 levels in my blood as I had been taking max prescribed dose of cyanocobalamin) - which essentially means that although I have vitB12 in my blood, my body can't
Dilly_blue
in
Pernicious Anaemia Society
2 years ago
Muscle pain
Hello, read an old post on here about thyroid and coccyx pain which I started with a few months ago ,anybody have thoughts on this please
Hello, read an old post on here about thyroid and coccyx pain which I started with a few months ago ,anybody have thoughts on this please
4youreyesonly
in
Thyroid UK
2 years ago
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Prolia
Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side effects sound awful along with steroids. I really don’t want to feel any worse. Any advice appreciated. Thanks
Hi all. My rheumatologist is suggesting prolia injection for osteoporosis. Any info anyone please. I think I want to go down naturally route as the side effects sound awful along with steroids. I really don’t want to feel any worse. Any advice appreciated. Thanks
Uglow
in
PMRGCAuk
2 years ago
DU Suppression Test and B12
Anyone heard of this test: DU Suppression and have any more recent info on this test? References provoking my question: https://pubmed.ncbi.nlm.nih.gov/6426860/#:~:text=The%20exact%20mechanism%20of%20the,B12%20and%2For%20folate%20deficiency. and Nevertheless, in clinical practice abnormal dU suppression
Anyone heard of this test: DU Suppression and have any more recent info on this test? References provoking my question: https://pubmed.ncbi.nlm.nih.gov/6426860/#:~:text=The%20exact%20mechanism%20of%20the,B12%20and%2For%20folate%20deficiency. and Nevertheless, in clinical practice abnormal dU suppression
B12life
in
Pernicious Anaemia Society
2 years ago
Help!
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Lilybeans
in
Restless Legs Syndrome
2 years ago
basophil
I have cll, on watch and wait, 88 white blood cells count, but on my recent blood test my basophil is 1.2 10*9/l, I know that it is extremely high, could you please let me know what problems I could have, regards, dellkota
I have cll, on watch and wait, 88 white blood cells count, but on my recent blood test my basophil is 1.2 10*9/l, I know that it is extremely high, could you please let me know what problems I could have, regards, dellkota
dellkota
in
Thyroid UK
2 years ago
Drs phone call and advice on buying the right supplements please
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
catpurple7
in
Thyroid UK
2 years ago
What happens when you end tocilizumab
I have GCA and PMR , plus a few other conditions.. I am on Prednisolone, Azothioprine and tocilizumab . I am getting towards the end of the tocilizumab injections as the aim is to get to 7 mg Pred and I am about to reduce to 9 mgs. The tocilizumab has done wonders with unreadably low CRP and ESR of 3
I have GCA and PMR , plus a few other conditions.. I am on Prednisolone, Azothioprine and tocilizumab . I am getting towards the end of the tocilizumab injections as the aim is to get to 7 mg Pred and I am about to reduce to 9 mgs. The tocilizumab has done wonders with unreadably low CRP and ESR of 3
Caroline2079
in
PMRGCAuk
2 years ago
2nd bloodtest in 2 weeks.
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
catpurple7
in
Thyroid UK
2 years ago
Iron infusions
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
Laura9594
in
Restless Legs Syndrome
2 years ago
A question about Thyroid blood tests.
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Hello Everyone, I am seeing an Endocrinologist in a couple of weeks, I was diagnosed with B12 Deficiency last December and am having treatment. Unfortunately, my MVC are getting larger since treatment and I have been told to check out my thyroid. I have had my T3 free, T4 free and TSH blood tests
Bubydizer
in
Thyroid UK
2 years ago
B12 injections
I am new to this sight and very thankful to have found it! I have been recently diagnosed with pernicious anemia and am suffering from incredibly bad GI issues because of it. I take my injections once monthly. After my injection my GI issues get better for about two weeks and then get worse again.
I am new to this sight and very thankful to have found it! I have been recently diagnosed with pernicious anemia and am suffering from incredibly bad GI issues because of it. I take my injections once monthly. After my injection my GI issues get better for about two weeks and then get worse again.
CrossStitcher75
in
Pernicious Anaemia Society
2 years ago
Induced copper deficiency by b12 treatment
Hi, So i had treated an b12-deficiency and experienced the "worse before better" situation. To make a long story short, this actually turned out to be an induced copper deficiency as my body rapidly started producing new red blood cells to correct the macrocytic anemia. This required increased mobilization
Hi, So i had treated an b12-deficiency and experienced the "worse before better" situation. To make a long story short, this actually turned out to be an induced copper deficiency as my body rapidly started producing new red blood cells to correct the macrocytic anemia. This required increased mobilization
SebastianB
in
Pernicious Anaemia Society
2 years ago
Which Magnesium?
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
I have been taking magnesium glycinate for the past 3 months,, but unfortunately bought some with extra rubbish! I was looking for a better alternative and came across a 'which magnesium' site . It said magnesium glycinate was good for depression, anxiety and general well being. Well thats me! It also
carnation
in
Thyroid UK
2 years ago
Can you insist on a Pernicious Anaemia Test with low B12?
I was diagnosed with Pernicious Anaemia at 27 by a specialist after having various tests for other things, and have been on B12 injections ever since and am now in my 60's. My daughter is 28yrs old and her blood test has just come back with 'low B12'. She told her GP that I was diagnosed in my 20's
I was diagnosed with Pernicious Anaemia at 27 by a specialist after having various tests for other things, and have been on B12 injections ever since and am now in my 60's. My daughter is 28yrs old and her blood test has just come back with 'low B12'. She told her GP that I was diagnosed in my 20's
Mel434
in
Pernicious Anaemia Society
2 years ago
Was wondering about anemia?
I just had blood work taken by my rheumatologist, and it shows that I am getting anemic again. This happens every 6 months or so. I had all kinds of tests to see if I have cancer, but it is negative (thank goodness). I have had tests to see if I am losing blood (endoscopy and colonoscopy). Both show
I just had blood work taken by my rheumatologist, and it shows that I am getting anemic again. This happens every 6 months or so. I had all kinds of tests to see if I have cancer, but it is negative (thank goodness). I have had tests to see if I am losing blood (endoscopy and colonoscopy). Both show
Willow7733
in
LUPUS UK
2 years ago
Patient Experiences on DTE
This is useful narrative paper on why how and when patients prefer NDT (DTE) over other therapies. It might have been posted before, but the journal is obscure. Downloadable paper: Patient Experiences and Perceptions Associated with the Use of Desiccated Thyroid Extract
Freddy J. K. Toloza 1,2,
This is useful narrative paper on why how and when patients prefer NDT (DTE) over other therapies. It might have been posted before, but the journal is obscure. Downloadable paper: Patient Experiences and Perceptions Associated with the Use of Desiccated Thyroid Extract
Freddy J. K. Toloza 1,2,
diogenes
in
Thyroid UK
2 years ago
Confused again, do I stop B12 injections ?
Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ferritin B12 and folate have been self injecting B12 for a few months, and supplementing magnesium, vit D, C, E, A, B6, Zinc, Selenium. B12 GP test last year Serum vit B12 354.0 ng/L no reference range included
Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ferritin B12 and folate have been self injecting B12 for a few months, and supplementing magnesium, vit D, C, E, A, B6, Zinc, Selenium. B12 GP test last year Serum vit B12 354.0 ng/L no reference range included
Polo22
in
Pernicious Anaemia Society
2 years ago
B12 and iron deficient
I had pyloric stenosis surgery at 3 months old where they take out some of the deodenum which is the area that absorbs iron and b12. I’ve had to get b12 injections and now am iron deficient. Curious if anyone else had the same surgery as a baby and now have the same vitamin and mineral malabsorption
I had pyloric stenosis surgery at 3 months old where they take out some of the deodenum which is the area that absorbs iron and b12. I’ve had to get b12 injections and now am iron deficient. Curious if anyone else had the same surgery as a baby and now have the same vitamin and mineral malabsorption
OonaSt
in
Pernicious Anaemia Society
2 years ago
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