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Sickle-cell anaemia
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Very low serum ferritin result
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hazel1010
in
Pernicious Anaemia Society
2 years ago
If anyone can help my dad interpret these numbers it might enable him to ask some intelligent questions when GP calls next week. Thanks
Hello again! I’ve asked a lot of questions on here lately and have received some really helpful and sound advice. This time I hope you can help with my dad’s reasonably comprehensive results. His thyroid hormones have been going awry for a couple of years and GP has just been monitoring. He takes no
Hello again! I’ve asked a lot of questions on here lately and have received some really helpful and sound advice. This time I hope you can help with my dad’s reasonably comprehensive results. His thyroid hormones have been going awry for a couple of years and GP has just been monitoring. He takes no
musicaljune
in
Thyroid UK
2 years ago
They Sold It Anyway for 40 Years !
Drugmakers Knew Zantac Caused Cancer But Sold It Anyway for 40 Years😱 https://childrenshealthdefense.org/defender/brent-wisner-rfk-jr-drugmakers-knew-zantac-caused-cancer/?utm_source=salsa&eType=EmailBlastContent&eId=d7346b6c-cd3d-4651-80bb-7171ca3e8c20 I was prescribed Zantac for stomach issues many
Drugmakers Knew Zantac Caused Cancer But Sold It Anyway for 40 Years😱 https://childrenshealthdefense.org/defender/brent-wisner-rfk-jr-drugmakers-knew-zantac-caused-cancer/?utm_source=salsa&eType=EmailBlastContent&eId=d7346b6c-cd3d-4651-80bb-7171ca3e8c20 I was prescribed Zantac for stomach issues many
Polaris
in
Pernicious Anaemia Society
2 years ago
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News letter
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan
in
Pernicious Anaemia Society
2 years ago
Recent Iron test values and next steps
Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg several months ago. I started with daily and soon switched to alternate days. I happily reported my RLS was [u]significantly[/u] improved. Today I received lab results for iron. Here is a comparison of last year vs. today
Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg several months ago. I started with daily and soon switched to alternate days. I happily reported my RLS was [u]significantly[/u] improved. Today I received lab results for iron. Here is a comparison of last year vs. today
PoorRichard
in
Restless Legs Syndrome
2 years ago
Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Latest antibody count post 4th vaccine
Will I be needing more booster vaccines? I received the latest results from the LLS study and I was not pleased with the results. After a bout with covid at the start of the year and receiving my 4th Moderna vaccine my antibody test came back >2500 Needless to say I was happy with those results. Five
Will I be needing more booster vaccines? I received the latest results from the LLS study and I was not pleased with the results. After a bout with covid at the start of the year and receiving my 4th Moderna vaccine my antibody test came back >2500 Needless to say I was happy with those results. Five
rubberlegs68
in
CLL Support
2 years ago
Help with iron results please
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hidden
in
Thyroid UK
2 years ago
Query about B12 and Folate blood test result
Hi I wonder if anyone here can help. I've looked online and can find no answers. I need B12 injections periodically and my blood test results have always given me a number on the axis graph to show if within range or out of range. My mother just recently had a load of blood tests and when the B12 and
Hi I wonder if anyone here can help. I've looked online and can find no answers. I need B12 injections periodically and my blood test results have always given me a number on the axis graph to show if within range or out of range. My mother just recently had a load of blood tests and when the B12 and
Endielle
in
Pernicious Anaemia Society
2 years ago
Weighloss?
Just checking to see if others are experiencing a small albeit constant weight loss on Ropinerol? I also take Topamax for chronic migraine. Have been taken both for just over a year now and have lost all appetite. Nearly 4 stones in weight during this year, and I do eat some very naughty food like everyone
Just checking to see if others are experiencing a small albeit constant weight loss on Ropinerol? I also take Topamax for chronic migraine. Have been taken both for just over a year now and have lost all appetite. Nearly 4 stones in weight during this year, and I do eat some very naughty food like everyone
Mulle74
in
Restless Legs Syndrome
2 years ago
Iron infusion
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
Ophelia1
in
LUPUS UK
2 years ago
Blood result question
Hi everyone I finally received a copy of my initial haematology appointment letter. No idea what numbers mean but understand they are still querying PV and Primary or Secondary Polycythaemia. Sept 21 I had haemoglobin of 167g/1 & 48.5% haematocrit. Jan 2022 haemaogloblin of 164g/1 & 45.9% haematrocrit
Hi everyone I finally received a copy of my initial haematology appointment letter. No idea what numbers mean but understand they are still querying PV and Primary or Secondary Polycythaemia. Sept 21 I had haemoglobin of 167g/1 & 48.5% haematocrit. Jan 2022 haemaogloblin of 164g/1 & 45.9% haematrocrit
LittleLuna
in
MPN Voice
2 years ago
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Folate Deficient (3rd time since October 2019)
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Shazy-B
in
Pernicious Anaemia Society
2 years ago
Folate deficiency (3rd time)
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Shazy-B
in
Thyroid UK
2 years ago
New to all of this Pernicious Anemia Confused about physical response?
I am new here and this is my first question ever in this group. I have pernicious anemia due to GERD and much antacids, Protein Pump inhibitors, which have now wrecked my body and B12 levels. I started injecting 1000 cc daily, (from Vitamin Quick Shop and Pernicious Anemia org.) for a week, than every
I am new here and this is my first question ever in this group. I have pernicious anemia due to GERD and much antacids, Protein Pump inhibitors, which have now wrecked my body and B12 levels. I started injecting 1000 cc daily, (from Vitamin Quick Shop and Pernicious Anemia org.) for a week, than every
RisingOne
in
Pernicious Anaemia Society
2 years ago
Advice before discussing private blood result with doctor please
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
BERTIE4500
in
Pernicious Anaemia Society
2 years ago
Folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
Magnesium supplement advice please
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
Baggiesfan
in
Thyroid UK
2 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
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